Personal Struggles
Focus on Caring: Looking for trouble
My oh my how often we are on the road, driving to our intended destination, and we observe someone with car trouble. Each and every time I observe such a scene I always say a little prayer that the Universe will step in and send someone to be of assistance to this poor soul.
Thomas Weller of San Diego, California looks for trouble and provides assistance in the form of: fuel for those who thought driving on fumes would get them to their destination, a change of tire for that troublesome flat tire that started out as a slow leak but ended as a pancake, or a lift to a safer place so that the stranded motorist could get off the highway.
This isn’t a passing fancy of his, he’s been doing it for 50 years. Read the rest of this entry »
Time to recognize & bolster family caregivers
The proposed Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act would require the development of an integrated national strategy to provide resources for under-served family caregivers in the United States. If you are not currently a caregiver for a loved one, you most likely will be, and no doubt you know of someone who is already an unpaid caregiver (as opposed to a hired caregiver) for a person in their family.
Source: Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act – AARP
Many families, even those with young children, find themselves thrust into the role of caring for a loved one when they least expect it and can ill afford to. Caregiving for a child or an adult with disabilities, or caring for an adult with a debilitating illness, has become the norm for many in the United States and abroad.
These caregivers “prepare meals, handle finances, manage medications, drive to doctors’ appointments, help with bathing and dressing, perform complex medical tasks and more – all so loved ones can live at home.”
Keep in mind, the above tasks are those they were already performing for their own household, tasks that multiplied exponentially with the increased needs of their disabled or ill family member. Add a job outside of the home to all of that, and you have to wonder how these overworked and over-stressed heroes manage at all! Read the rest of this entry »
Focus on Caring: The Spineless Bystander Effect
On July 7, 2014, I wrote an article Spineless inaction: the bystander effect, an article that told the story of a female McDonald’s restaurant employee who was severely beaten by another woman. No one called 911, no one tried to intervene, but everyone within a block of the beating took cell phone video of the attack. That, my friends, is an example of spineless inaction.
I’m going to counter that horrific example with a rewarding one out of Buffalo, New York.
Darnell Barton, a bus driver in Buffalo, New York, was on his multi-trip route over a bridge on the expressway. Ahead of him, he could see a woman standing over the railing on the ledge; the intent of this woman was obvious to anyone who observed her. The entire episode was caught on the bus dashboard camera. Read the rest of this entry »
The Elephant in the Room
Have you ever jumped to conclusions or reacted ill-advisedly because you didn’t have all the information about a particular person or situation? If you haven’t, I guess I’m the only sorry person out there who has made that mistake far too many times throughout my life.
Dr. Bernie S. Siegel is my commentator today as I quote directly from his 365 Prescriptions for the Soul that starts with an Indian parable:
Three blind men touch an elephant. The first blind man was holding the elephant’s leg and said, “I think an elephant is like the trunk of a tree.” The second blind man was holding the elephant’s trunk and said, “An elephant is like a large snake.” The third blind man said, “An elephant is like a great wall,” while touching the elephant’s side.
You all know the story about the elephant that walked into an area where many blind men were living. They all wanted to know what the elephant was like. So when the elephant was captured, they were allowed to touch it. Of course their descriptions varied depending on the part of the elephant they touched. Read the rest of this entry »
Focus on Caring: Boundaries that constrain us
How are you defined? What kind of box would you fit into? Here are a few characteristics some might assign to me:
- White American
- Baby Boomer
- Pacific Northwest resident
- Wife
- Mother
- Sister, aunt, niece, cousin, friend
- Seattle Seahawks super fan
All items on that list are correct but if that’s all that people see about me, they’ve greatly reduced the trueness of who I am because my box also contains the following:
- spiritual but definitely not religious person
- free-thinker (is that redundant?)
- writer of things that matter to me
- advocate of the elderly and just about everyone else who crosses my path in life
Setting boundaries between who I am, and who you are, benefits no one.
Leonard Pitts, Jr. spoke at a TEDx event in February of this year. His 20 minute talk, The Boundaries We Choose, is readily available on YouTube so I strongly suggest you seek it out. He suggests, “Our labels shouldn’t define who we are and place us in a strict box.” He then spoke of labels one might put in his box: African American, Christian, Husband, Father, Fan of the LA Lakers. If you’ve read any of Mr. Pitts’ literary pieces in the Miami Herald or any of his books, you already know that he is more than the contents his box may imply. (To be sure, there is a very valid reason why he was named the 2004 Pulitzer Price Winner for Commentary.)
During his February TEDx talk, he provided a fabulous story that illustrates the downside of labels or identifying markers. I’ll let you discover that beautiful and clarifying story by watching his TEDx video, but for the purposes of this blog posting, I will provide you with one of his statements from that video.
Our bonds are more than connecting with certain markers that define people.
Examine, if you will, your way of describing something that happened to you during the course of your day.
When you relay a story about a person taking his or her time in line at the Starbucks store, holding everyone up for far too long a time, do you define the person this way?
This Asian woman in front of me acted like she owned the damn place. She was so selfish, taking her damn time ordering her fancy drink when all I wanted was a damn cup of brewed coffee.
Or did you simply say
This damn person in front of me took so much time ordering a fancy damn cup of coffee that I just about ran out of time to get my plain and simple cup of brewed coffee.
Tuesdays in September: Focus on Caring
Just a brief post to announce that I have designated each Tuesday in September as a day to Focus on Caring.
On September 1st (tomorrow) I’ll introduce the topic by providing extraordinary insight by Leonard Pitts, Jr. and my takeaway from his insight. On subsequent Tuesdays I will provide heartwarming and heart-wrenching stories about ordinary people, doing the ordinary right thing, at an extraordinary time.
In short, I will introduce you to people like you and me who, in my mind, are every day heroes: people who chose to do the right thing in an amazing way.
Be pro-something instead of anti-something
Helene Gayle, Care USA President and CEO, learned early on in her adult life that giving to others was a necessary part of her participation in this world. It makes sense, then, that she heads a major international humanitarian agency that delivers emergency relief and support for long-term development projects. This organization is nonsectarian, impartial, and non-governmental. In my estimation, what could be better than that? In the book, Getting There by Gillian Zoe Segal, Ms. Gayle had this to say about effecting social change:
Social change is better achieved by being for something (rather) than against something. Growing up, I was part of a protest generation. We protested the war and stood in support of liberation struggles in Africa. Whenever we saw a problem, we were “against” it.
It’s easy to think that by being against something you’re standing up for a cause, but if you want to have a greater impact, you need to ask yourself, “What do I stand for and what do I want to happen?”
In this world, there exists a me against her/us against them mentality that causes us to lose sight of where our focus should be. Read the rest of this entry »
Definition of sympathy
I am again relying on Dr. Bernie Siegel’s wisdom, found in his book 365 Prescriptions for the Soul, for this post. The older I get, the more I’m faced with opportunities in which to witness tragedy in the lives of those with whom I come in contact. Even after all these years, I have to meditate on what a particular person’s tragic situation may mean to him or her so that when we meet in person or by phone, I’ll do and say the right thing. Here is Dr. Siegel’s take on the matter which I present verbatim:
Sympathy
Sympathy is not about feeling pity for the person who has experienced a significant loss or problem. Being “simpatico” is about being congenial, winsome, and pleasant. To be sympathetic is to connect with the other person so she does not feel isolated by her problem. If you fear experiencing the other person’s pain, then you will not be able to be sympathetic.
Just as sympathy is not about pity, it is not about denial either. It is about accepting and relating to the person. When you do you will experience a fuller life and a feeling of closeness with the other person. In the sharing of sympathy we learn, and so we move up, in a sense, as human beings.
Being a sympathetic person will also attract others to you. They come not to share wounds and complain, but for understanding. When we are alone in our world and questioning life, a sympathetic word or touch can change our experience and help us to survive. To be held in the arms of sympathy is a gift that creates true healing.
Soulution of the Day
Be sympathetic in your words and actions, you never know when you may need some sympathy yourself.
Single ladies, this one’s for you
What do you look for in a man? I did a wee bit of internet research and gleaned some listed qualities from websites such as Ask Men, Men’s Health, and Psychology Today. Here are a few of the qualities listed:
- passionate
- humorous
- faithful
- dependable
- mysterious
- exciting
- kind
- generous
- confident
- good job
All but two of those qualities were on my list when I was looking for a husband. Maybe it’s just me, but a man who’s mysterious seems to cancel out a few of the other list-worthy qualities above. Additionally, I think exciting is completely overrated.
I hit the jackpot when I met my husband.
I don’t wanna brag … who am I kidding, I really wanna brag about my choice in life partners.
Hot and Cold signals
The title of this article refers to a game in which temperatures provide guidance for the searcher to locate a particular item or to guess an answer to a query. This concept can also help us pursue appropriate paths on our life journey.
That concept is spotlighted in Dr. Bernie S. Siegel’s commentary provided below, word for word from his book, 365 Prescriptions for the Soul. Read the rest of this entry »
Getting There – the road to success
This post celebrates my sister, Mary Riesche, of Mary Riesche Studios.
In current society where instant everything is perhaps more coveted than endurance and consistency, it’s a joy to write about success that comes only after many years of hard work and relentless effort.
When you know what turns you on and gives your life purpose, you’ll stop at nothing to fulfill that purpose.
My sister has drawn or painted since she could hold a crayon. She’s just a wee bit older than me so those of you who know how old I am can surmise that my sister has stuck with her artistic endeavors for quite some time.
Perhaps at first, neither Mary nor our parents figured the early talent she exhibited would be more than a passing fancy. (Let’s face it, children change what they want to be when they grow up just about as often as they change their underwear … maybe more frequently.) Once Mary started to dig in, however, and was enrolled in classes at the Honolulu Academy of Arts, it was obvious to all of us that she was in it for the long haul, in it to win it, full speed ahead … you get the idea.
I’m currently reading a fabulous book, Getting There, by Gillian Zoe Segal, that follows the sometimes hard luck but always rewarding success stories of several business and entertainment professionals. Matthew Weiner, Mad Men creator, didn’t become a successful writer with his very first story idea – that would be way too convenient and certainly not a very interesting read. Getting There spotlights the various roads to success on which men and women have traveled, roads that contained many rejection speed bumps along the way. He had this to say about overnight success, and I quote verbatim from the book, Read the rest of this entry »
Valuable acts of kindness
NEVER Underestimate What a Little Kindness Can do.
I’ve said this before and I’ll say it again: every act of kindness we extend to others; every bit of care we provide others, is extremely valuable.
My post Do Little Rather than Nothing suggests that we have the ability to change someone else’s life, 365 days of the year. The attached article at the top of this post reveals how important one person’s generous act was to someone whose life was about to change forever.
Why do we wait until we can do something grandiose to exert a positive imprint on mankind? Why do we ignore the multitude of small opportunities presented to us in which we can impact a person’s life for the better? Whether that opportunity requires we spend 30 cents or 3 minutes on someone in need, we always have a choice of whether or not to allow a momentary inconvenience to be a part of our day – a miniscule inconvenience that nonetheless greatly benefits others. Read the rest of this entry »
A cure for the workaholic
There just aren’t enough hours in the day.
Your To-Do list seems to grow longer with every passing day.
Your daily or weekly “free” time gets shorter and shorter.
You juggle so many tasks and responsibilities, you’re starting to lose track of the important things in your life.
Take the following test to determine if you’re a workaholic. Does this scenario, or a scenario like it, sound all too familiar?
If it frustrates you that they don’t allow laptops on a Ferris wheel, you may be a workaholic. – Dr. Donald E. Wetmore
How’d you do?
Caregivers: take a bow
Applause. Please, please, please read the attached mini-article written by a 30-something year old blogger who is taking care of her mother who has Alzheimer’s.
I’ve written about how important it is to do good things, say nice things, and appreciate the people around you. There’s a group of people out there that could really use some of those good vibes: family caregivers. You encounter them everywhere you go. You may not know they’re caregivers, but believe me, if you build them up, rather than tear them down, you will have done a very good thing. You might be just the person she/he needs to get through a very trying day.
The next time you leave your house, set out to make someone’s day. Don’t rely on some other stranger to do it; it’s up to you.
What are you: a builder-upper or a tearer-downer?
Every day, and every encounter during each day, we have the opportunity to do good, or to do bad; to improve upon someone’s day, or ruin it for them.
Right now, or at the end of this day, think about the opportunities presented to you. Now think of what you allowed to come forth.
Did you let a car get into your lane when a person was trying to get out of a business parking lot on a very busy street while you were in a hurry, and perhaps running late, and therefore had every reason not to stop for five seconds to allow that car into the flow of traffic?
Depending upon how you acted in that situation, the driver of that car felt this way:
or the driver of that vehicle felt this way:
He may even have felt this way:
which would eventually make him feel this way:
How did you fare today?
- Just for today, let go of anger.
- Just for today, let go of worry.
- Just for today, give thanks for your many blessings.
- Just for today, do your work honestly.
- Just for today, be kind to your neighbor and every living thing.
And do it again tomorrow and the next day.
Two legs and a good pair of shoes
We should ALL be walking, even people with dementia.
That’s all you need! Walking is one of the least expensive modes of exercise you’ll ever find. Correction: you need legs, good shoes, and room to walk. The good news is that even if you don’t live in a neighborhood where walking is appropriate, you can walk around the mall; you can walk the perimeter of your apartment or house; you can walk up and down the corridors of your building; you can walk in place … I know, boring, but you get the idea … WALK!
Walking is one of the best weight-bearing exercises us humans can do to protect our bones. At a recent doctor’s appointment, I bragged to my doctor that every week I do Bar Method exercises, yoga, weight lifting, and recumbent bike … and every once in a while I walk. She said, “The only weight-bearing exercise in that list is walking. Get out there and walk!” Read the rest of this entry »
Do little, rather than nothing
I’ve written about this topic before: Positive community activism; Spineless inaction: the bystander effect; Your positive imprint on mankind.
And I’m writing about it again, but I’m going to let Dr. Bernie S. Siegel be my mouthpiece on this one because he addresses the importance of making a difference in the lives of others in this excerpt from: 365 Prescriptions for the Soul. Here’s the selection verbatim: Read the rest of this entry »
Your positive imprint on mankind
Our perspective of the world and all its needs can be very humbling. Many times we witness the need but can’t do much about it.
The earthquakes in Nepal and the world-wide response to that tragedy is startling and heart-warming at the same time. The massively horrible weather in parts of the United States with its past winter snow and torrential downpours – and the recent spring incursion of hurricanes and tornadoes – almost paralyzes the remainder of us because we have so little to offer in response, other than a monetary donation to a charitable response organization.
Is that really the case? Do we feel that because we can’t offer hands-on assistance in extremely serious and urgent circumstances as outlined above, we have nothing at all to offer a very exigent world?
Why wrinkles are a very good thing
Here’s a direct quote from Dr. Bernie S. Siegel’s 365 Prescriptions for the Soul. I’ll let his, and John Kenneth Galbraith’s words, say it all:
If wrinkles must be written upon our brows, let them not be written upon the heart. The spirit should never grow old. – John Kenneth Galbraith
When you wash something, it can come out wrinkled. That’s life! Just remember, if God puts you through the wringer it’s because you’re worth laundering. If I were given the choice between dying young and developing wrinkles, the answer would be clear to me. I choose life, come what may, regardless of old age and wrinkles. Read the rest of this entry »
Decision making roadblocks
I like what I like. How many times have you been asked to choose between one thing and another, you choose the thing, and then you’re asked, “What made you choose that?” If you’re the mother of Not Quite the Plan‘s author, your answer is, “I like what I like.”
I love the example of this mini-dilemma found in the attached article. The blog author’s mother, I’ll call her Mrs. Mom, cuts to the chase; she doesn’t waste any time deliberating; she simply knows what she likes: she doesn’t like the cat that keeps jumping on her lap, but she does like fudge bars. Mrs. Mom has dementia. Perhaps because of her condition, the decisions she makes are far less complicated than they used to be. Her measuring rod: I like what I like.
Weighing the pros and cons is a very important step in the decision making process, but oftentimes we get hung up on the P & C list and fall into the paralysis by analysis quagmire. The list doesn’t have to be multiple pages long and it doesn’t have to be perfected before we take the first step. What’s the worse that could happen? Let’s look at the possibilities. Read the rest of this entry »
Sexual intimacy in memory care
The attached New York Times article by Pam Belluck addresses the ambiguous loss experienced by men and women whose spouses are still alive, but not fully there. More specifically, it addresses the need for intimacy that still exists for the spouse without cognitive decline, and that can also exist for the spouse with the decline.
It is a well-known fact that advancing age doesn’t mean the end of desire for sexual intimacy. Whether in the privacy of ones home or in a long-term care housing situation, sex is alive and well. Even people with varying degrees of dementia maintain the desire for intimacy. What the above NY Times article so carefully exposes, however, is that sometimes the act of consent for such intimacy can be a subjective one when viewed by a third party. Read the rest of this entry »
Rejection: part and parcel of the writing craft
Getting Out of the Labyrinth: Part 6 – Submission. The attached article on the submission process of trying to secure a literary agent, was written – and experienced – by now successful author, Kate McIntyre. This exceptional article is Part 6 of a series that so painstakingly and accurately describes the writing journey of a debut author.
God help my withering writer’s soul and those of other struggling writers that perish in publishing purgatory.
Renaissance – Baby Boomer style
Abby Ellin, New York Times, writes about the late-life renaissances that many Baby Boomers experience when they re-decide what they want to be when they grow up.
When we were younger, many of us drifted into college studies and post-college careers that may or may not have been our first choice but at least paid the bills. As we near retirement, or even years before retirement, we wonder, “Is this all there is?” And when we wonder like that, we get dissatisfied, and when we get dissatisfied – if we’re gutsy – we’ll do what it takes to become satisfied. If we don’t attain our desired level of satisfaction, we’ll languish: lose vitality, grow weak, and become feeble. My oh my, is that what you want? Read the rest of this entry »
Rejection is a passing fantasy
Have you ever been rejected? Read the attached NY Times article: Accepted? Rejected? Relax You’ll see that the article was retitled since it first appeared so when you click on the link, you’ll see the subject matter as being about college admissions.
Rejection affects all of us: it’s not just about college admission policies.
I’m a writer; I should know.
I’ve only been looking for an agent for 30 days, therefore the 15 rejections – or what I like to call not interesteds – I’ve received out of 60 submissions sent is only 25% of the total so far. Wow, 75% of the agents haven’t turned me down yet! Read the rest of this entry »
I write because I have to
On my Facebook page a couple weeks ago, I said it didn’t bother me that I had sent out a handful of queries in my effort to secure an agent and had received one or two not interesteds.
As of today, I’ve queried 50 agents, received 11 not interesteds, which leaves 39 agents unaccounted for, from whom I may not receive a response because although agencies usually indicate their expected response time, oftentimes they only respond when they’re interested. That leaves this Land of Limbo for agents on my spreadsheet who may have exceeded their indicated response time. Do I delete them from my spreadsheet? Do I give them another week/month before writing them off?
You see, searching for an agent is like looking for a job. The writer’s query letter is like the cover letter to ones resume. The resume is the writer’s manuscript. If the agent likes what they read in the query/if the employer likes what they read in the cover letter, they want to look further. Read the rest of this entry »
My Heroines: International Women’s Day
International Women’s Day: My Heroines. My heroines may look different from those posted in the attached article, and they certainly will look different from those you may consider as your heroines. That’s a very good thing because we all have different takes on the subject but the outcome is the same: heroines we admire that made a difference in their world, and in ours.
My mother: Patricia Constance Conroy Desonier was born in 1917 and died in 1994. Mom was a fair disciplinarian to us three kids and a fabulous confidant as an adult. To lose her when I was forty years old was a devastating loss for me. My biggest disappointment is that she didn’t live long enough to meet my current husband, an extraordinary man whom I met – almost exactly to the date – two years after mom died. Words to describe my mother (in addition to the above): talented musician, seamstress, faithful and supportive wife, involved parent, community activist, volunteer extraordinaire. Read the rest of this entry »
Requiem for the status quo
Allow me to reintroduce myself:
My name is Irene. I am the author of the upcoming novel Requiem for the status quo.
Some of you know me as a family member, friend, or casual acquaintance. Others are familiar with me as the author of this blog, a writer who has posted hundreds of articles over the past several years. Still others know me because of my professional connections as a volunteer advocate for vulnerable adults living in long-term care (LTC) facilities, or because of my years as an Alzheimer’s Association support group facilitator.
I’m here to announce that in addition to being the family member/friend/acquaintance/volunteer/co-employee of the past and present, I am also the novelist who has something to say.
“Oh my gosh Irene, I didn’t realize your book was already published!”
It’s not, but I’m actively pursuing agent representation by contacting several agents per day until I no longer need to.
“Why should people be interested in your book?”
Because I have an engaging way of writing about Alzheimer’s disease – a disease that will affect each and every one of you because until a cure or vaccine is developed to eradicate it, this disease is here to stay. Whether a person’s diagnosis falls into the actual Alzheimer’s category, or into one of several other dementia such as: vascular, lewy body, frontal temporal, Parkinson’s, or dementia resultant from a traumatic brain injury (TBI), there’s no escaping its effect on the unpaid caregiver (that’s you and me) and the person being cared for (spouse, partner, mother, father, brother or sister).
And here’s a fact of which some of you may not be aware: Alzheimer’s is not just an older person’s disease; an increasing number of people are being diagnosed well-before the age of 60.
“Say it isn’t so, Irene.”
I can’t do that. What I can do, however, is tell you a wee bit about my book: Read the rest of this entry »
A loved one’s move into memory care
An Alzheimer’s Love Story: The First Day of the Rest of My Life.
I hope you’ll watch the attached 4 minute video that chronicles a husband’s experience of moving his wife into a memory care facility.
This is not a decision that comes easily to anyone.
Think about it. You’ve spent decades living with the love of your life. Your days are structured around each other; the ebb and flow of all those hours are what you crave and enjoy.
You are faced with what will most certainly be an irreversible decision to leave your wife in the hands of others. You feel guilty, regardless of how well-informed and appropriate the decision. Read the rest of this entry »
Respect the crabby old lady
When I’m an old lady and end up in a care facility, I sincerely hope my personality and attitudes don’t relegate me to the category of “that crabby old lady in Room 210.” Have you visited someone in a nursing home or hospital and had the distinct feeling that the patients were treated like numbers or medical cases? You know what I mean: “the urinary tract infection in 4A” or “the decubitis in South 6.” Wow, that’s a horrible thing to consider for myself: the history of all my years on this earth being characterized as a medical condition or an intolerable behavior resulting from that condition.
What about my history of being a pretty darn good mother/wife/business person/neighbor/community volunteer/friend? Doesn’t that person still exist within the body occupying that bed?
Let’s all take the time to read this poem that depicts such a scene. Gender-wise, this could be about a crabby old man as well. Read the rest of this entry »
The first Valentine’s Day without your loved one
The first Valentine’s Day without your loved one..
I’m re-posting this article I wrote back in 2012 that discusses one of the many “first times” survivors go through after the death of a loved one.
My article contains a link to another blogger’s article in which he discusses the experience of his first Valentine’s Day without his wife. On a personal note, that blogger is my brother, a man who came through that period of his life a survivor. Although he still misses his wife who died of early-onset Alzheimer’s disease at the age of 69, he can now look back and relive the memories of the numerous happy celebrations they both shared throughout their almost 25-year marriage with gratitude and hope for the future.
Living: the ultimate team sport 