Alzheimer’s caregiver support group facilitator
Having completed my second novel, currently titled BRIDGED BY BETRAYAL, I packed up all the research I used for my first novel, REQUIEM FOR THE STATUS QUO.
REQUIEM spotlights a family that struggles with the tangible and emotional elements inherent when battling a disease that is always fatal; a disease that gives you daily – if not hourly – reminders of its devastating effects.
I could not write about the fictional family’s journey without incorporating some of my own stories from my years as Dad’s caregiver. I also included other people’s stories as told to me through my work as an Alzheimer’s caregiver support group facilitator, and as a Washington State certified Long-Term Care Ombudsman. (Names and facts altered to protect those directly involved.)
The research materials I packed away this past weekend consisted primarily of the caregiving journals I kept while being my father’s primary long-distance caregiver while he endured Alzheimer’s disease.
That research also included reams of paper I organized into multi-tabbed folders containing the various doctor’s reports and findings from the seven years of dad’s disease journey.
I was not prepared for the emotion with which I was blanketed when I pulled out the large waterproof chest that had resided in my writing space the past three years. Placing my research in the chest, shutting it, and returning it to its original under-the-stairs location was extremely difficult for me.
In a certain sense, I felt I had betrayed Dad because I wasn’t just packing up some paper, I was putting away the physical evidence of his seven year battle of brain function loss. Read the rest of this entry »