Starting Friday, June 21st, the longest day of the year AND The Longest Day as celebrated in honor of those who have Alzheimer’s or other dementia or who have lost their lives to this always fatal disease, several AlzAuthors will be discounting their books so you will want to fill your shelves – virtual or otherwise – with several excellent sources of support.
These authors will generously discount their books for an entire week. Set your calendars so you don’t forget!
The link to these discounted books will be provided soon!
In a recent interview with Oprah Winfrey, New York Times columnist and author, David Brooks, eloquently responded to Oprah’s statement where she said, “I hear that authors write the books they need to read.” Mr. Brooks’ response:
We writers are beggars who tell other beggars where we found bread.
He further explained that statement by saying:
We found it here, we want to share it with you.
That is what the more than 200 AlzAuthors have in common. Each author may describe their quest or mission somewhat differently, but no doubt many of them would agree that the impetus to write about their personal experiences was a call to action they could not ignore.
As a member of the AlzAuthors community, I personally feel that the more mainstream the conversation surrounding the Alzheimer’s and dementia experience becomes, the more the AlzAuthors’ vision will be realized:
Our vision is to lift the silence and stigma of Alzheimer’s and other dementias.
May you find sustenance within the AlzAuthors community.
A New Jersey mom took her son to a skate park on his fifth birthday as recommended by her son’s behavior therapist who is treating the youngster’s autism and ADHD. You will perhaps be surprised by how her son was treated by some older boys who frequented this same skate park. Read all about it here.
Although my novel, based on my own caregiving experiences for my father, focuses on the challenges faced by those caring for someone with Alzheimer’s disease or other dementia, it also benefits Every Caregiver – that universal person who finds her or himself as the primary individual caring for a loved one with a debilitating illness.
My prayer is that Requiem for the status quo helps everyone struggling to balance their own needs with that of their loved one.
Patricia Constance Conroy Desonier: born on May 6th, 1917, she married my father on May 26th, 1947,
and died in her sleep on September 24, 1994.
My mother never complained about how much pain she experienced in her life. Diagnosed with rheumatoid arthritis as a teenager, she lived with this debilitating condition, staying as active as she wanted to be. When I was a young adult, I told Mom how much I respected her for her activity level, knowing each deformed joint in her body never let her forget the disease that got progressively worse as the years wore on. Mom’s response, “If I stay at home and do nothing, I’ll still hurt. I’d much rather be active, doing something I love, and hurt more.” Nothing stopped my mother – absolutely nothing. She took neighborhood walks; she golfed using special clubs with thickened grips; she made all our clothing; she painted the insides of each home I lived in and stripped and restored wood furniture that stayed with the family in various iterations throughout our lives.
Mom encouraged me to write from a very early age. As a four-year-old, she let me pound on her manual typewriter, typing gibberish but encouraging me to read my “stories” to the family at dinner time. My current soft activism can be attributed to both my parents, but especially to my mother. I say “soft” activism, not because I pull punches, but because I learned how to have an impact on others without offense, without judgment, and with a kindness that speaks far louder than words. Like my mother, I won’t stand for injustice; also like my mother, I won’t dish out unjust behavior just so my voice can be louder than the offending voice. I guess the phrase, “Kill ’em with kindness” is applicable in this respect. My mother killed many a person in that manner.
Mom didn’t miss out on seeing all of her grandchildren, including my daughter, Erin, above, but she did miss out on meeting my extraordinary husband, Jerry, and his two daughters, which she would have welcomed as her own granddaughters. Dad had the privilege of getting to know my husband and he met my additional two daughters, and for that, I am truly grateful. I honor Mom today – her birthday – and every day because she deserves the same honor and respect she bestowed on others, including my father with whom she was married for forty-seven years.
I love you Mom and am so pleased you live within me.
AlzAuthors is a community of more than 200 extraordinary authors who have written about Alzheimer’s disease and other dementia. Today I am spotlighting those books written by the community’s supportive management team, of which I am a member. Please take time to visit the six books spotlighted below. I truly believe you will be glad you did. Let AlzAuthors light your way through Alzheimer’s and dementia.
Alzheimer’s Daughter – a memoir by Jean Lee. A poignant accounting of a family’s life after both parents were diagnosed with Alzheimer’s disease on the same day.
Blue Hydrangeas – an Alzheimer’s love story by Marianne Sciucco. A touching account of a couple’s journey into Alzheimer’s and of the love that never succumbed to the disease.
Somebody Stole My Iron: A Family Memoir of Dementia by Vicki Tapia. This engaging memoir offers useful information from experts within the field of Alzheimer’s research, personal lessons the author learned along the way, and ideas and tips for managing the day-to-day ups and downs of dementia.
Weeds in Nana’s Garden by Kathryn Harrison. A heartfelt story of love that helps explain Alzheimer’s disease and other dementias geared toward the children in our lives.
Motherhood: Lost and Found – a memoir by Ann Campanella. A memoir of the ordinary and extraordinary courage of those who endure debilitating and even crushing illness, and those who suffer with them when they do so.
Requiem for the Status Quo by Irene Frances Olson. A novel that explores the delicate balance of families upended by Alzheimer’s disease and how they manage their loved one’s needs with their own.