Endurance in Action
Many of us of a certain age have endured much throughout our lives, both personally and historically. I have had the right to vote in the United States for fifty-two years. Let me tell you, I have witnessed my share of elections that didn’t go my way and somehow my country has managed to survive, which for some election cycles is really saying a lot. On the other hand, some election results pleased me to no end, allowing me to endure periods of time of seeming ease.
Residents of each country reading this post have faced monumental weather anomalies, financial hardships, and devastating illnesses. If you are reading this piece, you have made it through those disasters and perhaps have wondered how you made it! I’ll tell you right now, there are individual days wherein I have questioned my own ability to do so and yet I woke up every day-after able to call myself a survivor.
I will be seventy years old this week and I marvel at the fact that my body has rewarded me with daily breath for close to 25,500 days in a row. Astounding! And what about the heart? Given an average 100 beats per minute – at least at my age – that equates to 3,672,000,000 beats thus far in my lifetime! WHAT???!!! If that isn’t endurance, I don’t know what is! Thank you, precious heart of mine!
Now I will confess to you that I am a habitual catastrophic thinker (for me that means that I assume the worst rather than the best) so the stats I just gave you are vital tidbits of information I can now add to my evidence list that things are better than I might have assumed them to be. And perhaps such evidence will sufficiently encourage you to increase your own hope quotient so you can find the best, instead of the worst, going forward.
If that is the case, I am absolutely thrilled for you, and I’m thrilled for me as I grab my calculator to figure out how many breaths I’ve taken in the past 25,500 days and counting!
Be well. Stay well, y’all.
Aging Is A Privilege
It won’t be long now.
I’ve been waiting 10 years for this event.
I will have more to say next week.
Please come back then.
Our life: an ongoing parade
Here I go again, relying on Dr. Bernie S. Siegel to provide some wisdom for your day, but what can I say, his 365 Prescriptions for the Soul catches my attention more often than not and when it does, I like to share the good stuff I find. The following is provided verbatim:
Parade of Life
Forget past mistakes. Forget failures. Forget everything except what you are going to do now, and do it. – William Durant
Life is a parade. Sometimes we march along and realize we have passed by what we were looking for. What do we do? Stand there and drop out of the parade? March on with regrets? Feel bad about how we looked or that everything we wanted was on the wrong side of the street? It’s passed! Forget it and march on!
Sometimes our parade isn’t so pretty, and the crowd isn’t interested in us. If we drag everything we have passed with us, we will destroy the present. We have no future when we live in the past.
We even talk about past lives. Whether you believe in them or not, the same principle applies. If you are living a past life, you are destroying your present one. In therapy, people come to understand why they are acting the way they are and how the past is affecting them. They learn to let go, move on, and not sit in the same classroom year after year. They graduate and commence a new life.
To conclude, I, Irene Frances Olson, have this to say about Dr. Siegel’s comments:
The good news is that we can learn from our past, both the good and the bad, but if we stay cemented in the past and don’t move on? That parade Dr. Siegel talks about? It’ll pass us by.
I don’t know about you, but I don’t want to get left behind.
My recent post, Caregiving: The Ultimate Team Sport assumes the person providing care for a loved one has a wealth of family members upon which to draw for support. When that is not the case, it can be difficult – but not impossible – to find willing team members to provide that support. This article provides advice to the solo caregiver and his/her friends, business associates, neighbors, and community contacts.
THIS IS NOT AN ALL-ENCOMPASSING INFORMATIONAL POST, BUT IT IS A START.
CAREGIVER: BE BOLD – ASK FOR WHAT YOU NEED.
Those people with whom you have contact probably know that you’re the only one carrying the ball when it comes to caregiving but they can’t possibly understand the degree of difficulty you are experiencing. Assuming that to be the case, your friends, business associates, and neighbors may not feel the need to reach out to you with assistance. Now is the time to be very transparent with them and tell them what you need. Easier said than done, I know, but a challenge worth pursuing. Here’s just one suggestion – one that could provide respite and community support.
DINING ALONE IS A DRAG – NOW’S THE TIME TO ASK FOR WHAT YOU WANT
If you are able to leave the house for a meal, there is no shame in inviting yourself to dinner. If these are true friends/acquaintances of yours, they will welcome you into their home. Once you’ve invited yourself a couple times, true friends and valuable neighbors will start to invite you into their dining room on an ongoing basis. Besides, they’ve probably been wondering what they could possibly do to help you out in your situation and you’ve just presented a very easy way for them to do so. Heck – they’re going to cook dinner for themselves anyway; one or two extra people aren’t going to throw a huge wrench into their meal plans.
!!!ATTENTION WELL-MEANING FRIENDS & NEIGHBORS!!!
I think the rule of thumb in these situations is to assume that your solo caregiver friend needs a hand with something, so ask him what he needs. Let’s look at the difference between the following offers of assistance.
- Hey Sam, call me if you ever need some help.
- Hey Sam, could you use a little extra help around the garden? I’m all caught up with my yard work and would like to help you in any way I can.
- Hey Sam, we always cook for a crowd and always have some leftovers. I’d like to give you some leftovers in disposable containers that you can freeze and use any time you don’t feel like cooking for yourself. (Especially needed for the caregiver not at liberty to leave their loved one alone.)
In the 1st example, you’re leaving it up to Sam to feel comfortable enough to inconvenience you (in his mind) with a request for help. I know I’m being somewhat judgmental when I say the following, but I’m gonna say it anyway: The first example of help is an empty offer – an offer that doesn’t carry much weight. Why? It comes across as an expected social comment without any true meat on its bones. You’re basically doing the minimal amount of due diligence while forcing the caregiver to ask for help. In the 2nd and 3rd examples, you’ve given Sam an offer of tangible, definable assistance that shows that you really mean it when you say you’re willing to help out. If neither of those offers fit within Sam’s current needs, you’re still making it easier for him to ask for help with something else: “Wow Larry, thanks so much for your offers but what I could really use is help figuring out the health insurance issues that have kept me awake at night. Can you come over for a cup of coffee, and between the two of us, maybe we can make some sense of this mess in which I find myself.”
Friends, work associates and neighbors – your solo caregiver friend needs help and you could be just the right person with the skill that he needs. Some day you may find yourself in a similar situation and will know first hand how difficult it is to be a solo caregiver. If it takes a village to raise a child, it must take at least that to help someone with the burden of being a solo caregiver.
We all have a strong preference that life should be easy, comfortable, and pain-free, but that doesn’t mean there’s something wrong with life when it isn’t those things. It’s just life and it’s not how you would prefer it to be, but that doesn’t mean there’s something wrong with it. – Constance Waverly, WaverlyRadio podcast #132
I imagine we all would prefer to live a life of health, happiness, and success (however success may be defined but certainly not limited to financial prosperity). With those three preferences met, life would be a carefree and joyful experience. Given the complexities of life, however, we are guaranteed a certain degree of physical pain, emotional heartache, want, and for some, absolute devastation.
Even an innocent newborn baby immediately discovers that his existence on this earth is anything but 100% delightful. He can’t define what that means when he’s a minute old, but he certainly feels it.
We tend to wonder why good things “always” seem to happen to bad people – an inaccurate thought, nevertheless it’s one that we entertain from time to time – but those of us who endeavor to do no harm aren’t blessed with easy, comfortable, and pain-free lives.
I don’t have the answer to that question but I do have an answer: our assumptions about others are just make believe because we have no way of knowing what is actually going on in their lives. A person’s outward show of perfection, boundless happiness, and ease is just that: their outward public mask that very well may hide an entirely different one worn in private. Let’s face it, no one can be ecstatically happy and fulfilled 365 days of the year – or even 24 hours a day, or dare I say, a mere 60 seconds at a time – so why is it that we assume others have mastered that very impossibility?
Part of what I’ve learned in my almost seventy years is that what matters most is how we live in the present, regardless of whether or not that present pleases us. Living in the moment, accepting that moment as our life’s current state of being without pushing back against it can be far more fruitful and enjoyable than the alternative: anger, complaints, and hatred. For example, Ariel and Shya Kane, in their book Practical Enlightenment, point out very clearly that getting angry does nothing toward changing ones current situation. Case in point: you’re running late for work in disastrous traffic. You pound the steering wheel, honk your horn, and yell at the other commuters and what do you know? Your situation hasn’t changed but you’ve become your own worst enemy because your previous misery has been considerably compounded by your fruitless actions.
- Traffic doesn’t happen to us, it just happens.
- A rent increase wasn’t directed at us personally, it was simply a business decision made by the landlord.
- Long lines in the grocery store didn’t occur to inconvenience us; quite simply, like us, other people decided to shop at the same time.
- Coming down with the flu a day after a person arrives in Hawaii for the vacation of a lifetime wasn’t preventable; germs are everywhere and will do their thing at any time and any place. Even though it sucks that the germs manifested themselves just as the vacationer was heading to the beach, please know he’s not being punished for trying to have a good time.
All the wishing in the world won’t change our current reality because anything we could have done in the past is over and done with. Anything we could possibly do in the future hasn’t yet happened, so we should give it up and just be where and when we are right now.
Piero Ferrucci had this to say about the illusion of being in control when his preferences weren’t met during a vital point in his life:
The outside world did not adapt to me: More simply and practically, it is I who must adapt to what is happening moment to moment. The Power of Kindness.
Aging is a Privilege
Last time I checked, the only way to live a long life is to be on board with aging.
Are there downsides to getting older? Sure there are. Here are just a few that might be applicable at any given time:
- the body and/or the mind might not function quite as efficiently as before;
- our peers move on, whether by relocating because of downsizing or illness or relocating to the beyond (you know, heaven or elsewhere);
- our loved ones (spouses, partners) experience advanced illness or pass on; and
- society dismisses us as no longer relevant.
But what about the upsides of aging? Surely positive elements exist that can be celebrated and accentuated the longer we reside on this earth, such as:
- enjoyment of our adult children and growing-up grandchildren, if such a family dynamic exists;
- recognition of what’s truly important in life so that worrying about the small things is a practice not worthy of our time;
- the decision to respectfully let our feelings and beliefs be known, without holding back, and not caring as much about whether someone agrees or disagrees with those feelings; and
- finally having time to do this, that, and the other, because there is no longer such a thing as a weekend, and every day can be filled with whatever activity pleases us.
Regarding that last point, some may argue that because our bodies don’t function as efficiently as before, it doesn’t matter if we have all the time in the world if we can’t do what matters most to us!
That’s a valid point if the only thing that matters to a person is maintaining an Olympic-quality fitness level. Look, my husband and I used to do amazingly difficult hikes as recently as three years ago and although I miss the forests wherein those hikes took place, I don’t miss the actual exercise part of those ventures because I still exercise: yoga, aerobics, weights, (using free online videos for all three options) and taking energetic walks in the neighborhood. I’m not competing with anyone but myself when I perform that smorgasbord of exercises. Regardless of what exercise I do and how I do it, I’m still lapping everyone else on the couch.
And come on, being physically active isn’t the only qualification for contributing to the world around us. I’m not talking about the global stage, but what about the little corner of the world wherein we reside? We have time and we have a lifetime of skill and wisdom that our corner of the universe needs. Whether we find those opportunities through a community organization, senior center, local school system or elsewhere, there is more need than these organizations have solutions!
You are relevant and that relevancy needs to be recognized first by you, and then society will get on board.
The only way to live a long life is to live the life you’ve been given. And as the saying goes, this ain’t no dress rehearsal. And remember, it’s never too late to try something new. If that means letting go of something else in order to start something new, then so be it. Get after it!
Of Barnacles and Candy…Oh My!
Definition of a barnacle: A marine crustacean with an external shell that attaches itself to a variety of surfaces. One of those surfaces that non-marine barnacles attach to is aging human skin. There, I’ve said it, aging human skin! Mine to be exact! So said my dermatologist at my most recent annual skin cancer screening appointment. But wait, lest you think the only aging attribute one can look forward to is crusty, discolored skin, let me introduce you to one of the sweetest parts of aging in which one can luxuriate: the candy bowl.
My husband and I have put out an easily accessible candy bowl filled with mini chocolates of numerous varieties for the past seven years – there is no mini-sized chocolate we have not tasted. When purchasing provisions at the grocery store the other day, I told the store clerk and bagger, “We’re just trying to keep alive the stigma of old people eating candy. Doing our part to support one of the oldest clichés of our generation.”
I will say, however, that if my husband and I didn’t have the gift of willpower regarding sweets, we would have never started this 365 days of the year tradition. If each of us ate 3 mini-treats a day, I would be surprised. When it comes to candy, we really don’t have a problem stopping at one or two. (Probably can’t say the same for glasses of wine, however.)
Am I thrilled that my skin is old enough to have barnacles? No, but I am thrilled and grateful that I am a woman of a certain age who can boast about barnacles and eating candy in one, celebratory post.
And may I conclude by saying:
I hope to live long enough to keep spotlighting – and celebrating – aging matters for many years to come.
This Week’s Good News!
TODAY IS WORLD COMPASSION DAY. LET’S SPREAD THE GOOD NEWS!
This story is a grand way of illustrating how being in the right place at the right time can mean the difference between life and death.
This Week’s Good News!
This story out of Ashton, Maryland is sure to pull at your heartstrings. A pound dog was saved just in time to become a very welcome resident of a senior living residence. So much joy abounds in this story – I thought it would be the perfect Good News to close out the month of October.
This Week’s Good News!
Angels exist everywhere, and if you’ve ever been touched by one, you’ll agree. This story out of Milford, OH will touch you like none other. I certainly hope each of us meets an angel like the one portrayed in this brief story. If you’re having a not so great day or week, this angel is sure to improve your outlook.
12 years ago seems like yesterday
Twelve years ago today, my father died from complications of Alzheimer’s disease. That morning I had received a call from the memory care unit where Dad had lived for several years. The nursing manager of that unit said if I wanted to see my father again before he died, I should come as soon as possible. (I had spent a week with him the month before and knew that his prostate cancer would most likely hasten his death.) I first called my husband at work to let him know I would find a flight from Seattle, WA to Medford, OR and be gone…for how long? I didn’t know. Then while on the phone with my brother and sister, I booked my flight online with a tentative return, threw the very minimum of clothing in an overnight bag, and headed to SeaTac International Airport.
If you have read my novel, Requiem for the Status Quo, you’ve pretty much read the account of what transpired for me at my father’s bedside; some of the happenings that day/evening were altered, but the gist of what transpired are contained in Chapters 41 & 42.
Upon my return to Seattle, my energy level was depleted yet still on alert. When you have a loved one with a debilitating disease, a state of alertness is the norm – the status quo of constantly being in a state of emergency, if you will. You keep waiting for the phone to ring with the latest development – such as it did for the last time on October 13, 2007 – but that phone number’s appearance on my Caller ID had ceased.
What hadn’t ceased was the business of dying – all the financial and estate matters one cannot ignore – but because of my father’s diligence and organization leading up to his Alzheimer’s diagnosis, much of what I needed to do on behalf of his estate and us survivors, was readily dispatched in the months that followed my father’s death.
But the “now what?” of life post-caregiving was front and center for me. Initially, I wanted absolutely nothing to do with anything having to do with dementia. I continued to financially support my local Alzheimer’s Association and participated in one more Walk to End Alzheimer’s, but that was it. Then my heart called and I became an Alzheimer’s Association caregiver support group facilitator and shortly thereafter, I entered the world of long-term care advocacy by becoming a Washington State LTC ombudsman, both of which I did for five years.
Then my heart spoke to me again, this time it said, “How about writing about your experience as Dad’s caregiver?” I ignored that thought until I no longer could – it wouldn’t leave me alone! I dragged out all of Dad’s records and my numerous journals, sat at my dining table, and over many months’ time, outlined how I would honor my father’s journey and my family’s experience within the pages of a book that might benefit others.
That was five years after my father’s death. My book was published five years later.
Now twelve years after the end of my father’s Alzheimer’s journey,
my book still manages to make its way into the hands of those who need it.
If you, or someone you know, needs encouragement and a renewed sense of hope,
please make your way to your favorite bookstore, or find it right here.
Blessings to you today, and always.
This Week’s Good News!
I’m returning to 35,000 feet for this story of a retiring pilot’s glorious send-off by passengers. You will be wonderfully entertained by what you hear.
This Week’s Good News!
Last week’s good news spotlighted a couple in their 100s who got married to live happily ever after in their remaining years. This week’s post spotlights the wedding industry again but shines the light on an unexpected flower girl who nailed her flowery performance!
This Week’s Good News!
This story warmed my heart in a very big way. The newly married bride is 103 and her groom is 100. Between the two of them, they have four spouses whom they loved dearly before they departed this earth. It looks like these two love birds hold the secret to happily ever after. Wait until you read about their Ohio-based love!
Status Quo or Same-O Same-O
How often have you felt defeated because your day-to-day existence is somewhat routine and boring?
The life of a family caregiver, attending to a loved one with a disease or malady that is all-encompassing, is never Same-O Same-O. Any semblance of status quo flies out the window shortly after taking on this learn-as-you-go caregiver role. The boring life about which the family caregiver used to complain no longer exists as she or he memorializes that long-abandoned way of living. My memorial to status quo existed while attending to my father during his Alzheimer’s journey.
Requiem for the Status Quo speaks of that memorial to things that once were.
This Week’s Good News!
The following good news comes from the town in which I live, Redmond, Washington. This story proves you’re never too old to have a grand ol’ time.
This Week’s Good News!
Last week I posted an article that focused on the impact children can have on adult lives. This week’s article shines a spotlight on the doggies in our lives.
Sustenance for the family caregiver
In a recent interview with Oprah Winfrey, New York Times columnist and author, David Brooks, eloquently responded to Oprah’s statement where she said, “I hear that authors write the books they need to read.” Mr. Brooks’ response:
We writers are beggars who tell other beggars where we found bread.
He further explained that statement by saying:
We found it here, we want to share it with you.
That is what the more than 200 AlzAuthors have in common. Each author may describe their quest or mission somewhat differently, but no doubt many of them would agree that the impetus to write about their personal experiences was a call to action they could not ignore.
As a member of the AlzAuthors community, I personally feel that the more mainstream the conversation surrounding the Alzheimer’s and dementia experience becomes, the more the AlzAuthors’ vision will be realized:
Our vision is to lift the silence and stigma of Alzheimer’s and other dementias.
May you find sustenance within the AlzAuthors community.
This Week’s Good News!
A subscription-only magazine, The Week, provides this week’s good news:
Bill Waldschmidt used to work on classic cars, but now he’s fixing a different mode of transportation. The retired Minnesota engineer contracted polio at age 4 and spent most of his childhood on crutches. He regained enough strength to walk as an adult, but 10 years ago, post-polio syndrome put him in a wheelchair.
With a new sense of purpose, he removed the vintage cars from his garage and began buying and refurbishing power wheelchairs, which he then gifts to people who can’t afford them. “He’s the kindest man on the planet,” said Don Johnson, a disabled Vietnam vet, and owner of Waldschmidt’s chairs.
Thank you, Bill, for contributing so much to so many!
This Week’s Good News!
Wow! Talk about making lemonade out of lemons! Joe Bahr suffered the loss of his brother, Marty, to Alzheimer’s disease. Joe and Marty made a deal before Marty passed on. Check out here what that deal entailed. What a legacy Marty left for the rest of us!
This Week’s Good News
Guess what the currency of media is? OUR ATTENTION.
Don’t invest in bad news, invest only in the good!
Ron Robert doesn’t believe in giving up even after being diagnosed with Alzheimer’s disease. He was a retired man who was extremely bored with his life and when he received the diagnosis so many of us fear, he enrolled in University to get off his butt and once again get involved in life. Read this astounding article that contains some of the best news about Alzheimer’s I’ve heard in quite some time.
BREAKING NEWS: Goodness abounds!
Goodness abounds, yes, it does.
We don’t hear or read about it enough but trust me, hatred and evil have got nothing on goodness and kindness in our world.
It has been said that it is the horrific stories that make headlines and quite frankly, that is true. Newspapers, magazines, television and social media news outlets clamber after Breaking News in their attempts to be the first to offer their take on ongoing incidents. Clamber means to “climb, move, or get in or out of something in an awkward and laborious way.” Can’t you visualize hungry journalists doing just that: pushing others out of the way, pulling yet others down in their singular effort to be first?
I am all for free journalism; without it I would not be writing this 990th post, so bring it on in all its raging color…however, wouldn’t it be rewarding to have our day interrupted by Breaking News that reports on the good and kind incidents that occur as well?
All right, I’ll do just that. Allow me to introduce you to two wonderful souls who have brought light into the darkness. This is Breaking News of the very best kind.
Sophie Andrews is a person who learned the hard way – one of the hardest – that The best way to help is often just to listen. Sophie was on death’s door – you have to listen to the 14-minute TED talk to learn of the details when a volunteer at UK’s Samaritan helpline picked up the phone and changed 14-year old Sophie’s life forever. Years later, Sophie gave back and paid it forward by starting a helpline for some of the most vulnerable human beings in society who are lonely and without access or means for socialization. Her Silver Line fields more than 1500 calls a day, making the lives of more than 550,000 UK senior citizens brighter, fuller and healthier each year.
Dixon Chibanda, one of 12 psychiatrists in the entire country of Zimbabwe – a country of 16 million people – created a program to treat individuals in need of psychiatric or psychological counseling: The friendship bench program – or why I train grandmothers to treat depression. This program was birthed when a desperate young woman didn’t have the minimal bus fare needed to commute the 15 kilometers to meet with him in person and who suffered the tragic consequences. Dr. Chibanda created a program that brings care and hope to those in need powered by a limitless resource: grandmothers. Sitting on a bench, talking to someone who listens without judgment serves to make a difference in the mental health of thousands across his country and other countries as well – including the United States where a similar program has been started. Please take 12 additional minutes out of your day and listen to the TED talk I have linked above.
Listening – a free resource that is oftentimes not employed when needed the most; listening that actively tunes into the person speaking.
If you are someone who sets resolutions or intentions for the new year, perhaps practicing the art of listening might be at the top of your 2019 list.
I know it is on mine.
Your link to highly discounted eBooks about Alzheimer’s!
All of the books shown in this graphic are part of the AlzAuthors Caregiver Appreciation week-long sale, starting today, November 7th. You’ll see my novel, Requiem for the status quo, in the upper right corner that is priced at 99 cents from Nov 7th through 13th. To link to all the books you see above, click on the AlzAuthors link here. Simply click on the book’s image and it will take you directly to its page on Amazon, making it extremely easy to purchase as many titles as you please. And don’t forget to gift others with titles as well. It’s so easy to do and the recipients of your gifts will be so pleased that you’ve thought of them.
Grandma and Grandpa pods
I wrote this article five years ago and I’m posting it again today because it is one of the most viewed posts on my blog. Financial figures are five years old so current, 2018/2019 figures will be considerably higher.
I read a fabulous article in the “Home” section of today’s Seattle Times newspaper. It’s a throwaway section that I always read before I toss it into the recycle basket.
All of us are getting older – there’s no cure for that other than not growing older by leaving this earth before you’re ready – so where are all of us going to live – especially Granny and Pappy who can no longer safely live on their own?
Long-term care (LTC) facilities have priced themselves out of most households’ bank accounts and the alternative solution of having grandparent sitters is cumbersome and expensive in itself. What’s an adult child to do? If you have space on your property to have a guest house newly built or better yet, if you’re willing to turn your sunporch or guesthouse into accommodations for mom and dad, the original outlay of funds will pay for itself because you will have avoided the need for a facility’s ultra-expensive long-term care services.
One company that makes the pods spotlighted in the Seattle Times’ article is called Home Care Suites. Disclaimer: I am not advocating for this company’s product. I am merely pulling information out of the article and presenting it to the reader so you can do research that applies to your situation and your budget.
The pods made by this company range in size from 256 to 588 square feet with prices ranging from $42,000 to $83,000. This is no drop in the bucket but let’s consider the cost of facility care. Genworth (who sells long-term care insurance) states that the average monthly fee for assisted-living (AL) was $3,300 in 2012. I think that’s a very naive figure based on my experience of having worked in the LTC housing industry. Maybe Genworth’s lower number is just the cost for monthly rent – but what about care services? Cha-ching!!! Now you’re looking at double that amount and the cost will only go higher as care needs increase. But even at only $3,300 per month, that amounts to $158,400 for a four-year period. See how do-able the pod concept seems now?
Many of the AL service needs are simple monitoring of a resident – tasks that you can do for your loved one: waking them up, helping them get dressed, a certain amount of medication assistance, meal provision. Many seniors living in AL facilities don’t need the massive hands-on care of bathing assistance, toileting services, physical therapy, etc. I know for a fact that if a family member has the time – and a little patience – they can provide these lower acuity services on their own for quite some time before securing hands-on medical care for the elder member of their household.
Skipping ahead to after Grandma and Grandpa/Mom and Dad have passed on, you now are left with an added structure on your property which you can transform back into the porch or game room of its earlier existence, or simply leave as is as a guest room that may accommodate someone else in your family. I have to believe that your initial investment in constructing a pod is an investment that you won’t regret. And don’t forget – the costs for such a project aren’t necessarily out of your own pocket. Perhaps Grandma or Grandpa are willing to pull some of their savings out from underneath their mattress and contribute to the cost of this alternative living arrangement that would certainly be more attractive to them than a lengthy stint at an AL facility or nursing home. Just saying.
The Alzheimer’s Community
I have been closely involved in matters regarding Alzheimer’s disease and other dementia for eighteen years now: long-term care (LTC) housing, memory care, Alzheimer’s support group facilitator, and Washington State LTC Ombudsman. But it took me becoming a published author of a novel that focuses on a family’s Alzheimer’s disease experience before I finally found my Alzheimer’s community.
AlzAuthors is a group comprised of over 170 published authors (as of this writing) who have published fiction and non-fiction books reflective of their personal Alzheimer’s experience. The six members of the AlzAuthors Management Team (Team) is the Alzheimer’s community about which I speak.
The Team’s motto says it all:
We can sing a lonely song, or form a choir and create harmony.
Without exception, the authors featured on our site and each member of our Management Team had the experience of struggling with the learn-as-you-go-task of caring for someone with cognitive impairment. We all made mistakes, and we learned from them, but we also had successes, and we celebrated them.
As a recent addition to the AlzAuthors Management Team, I became even more convinced that my personal Alzheimer’s community resides within this group. The support, the kindness, the giving nature reflected within the Team is incomparable in my experience, and we are not just keeping it to ourselves. AlzAuthors is spreading their influence into numerous parts of the world…which is kinda why they asked me to join the team as their Global Outreach Coordinator. The six of us know our presence is evident in more countries than just the United States, but our imagination and passion is boundless so we have set out to become a household word in small and large communities throughout the world.
Why AlzAuthors? Because this 100% volunteer group has brought together some of the best books on Alzheimer’s and other dementia in one central location: our bookstore. We’ve categorized those books to make the personal caregivers’ or professionals’ shopping experiences an easy one with categories such as: Caring for Parents or Grandparents, Caring for Spouses or Partners, Living with Dementia, and Children and Teen books, to name a few. We know a caregiver’s “free” time is limited or non-existent, so we’ve done our best to make their shopping experience an easy one. They simply click on the cover of the book they’re interested in and they are taken directly to Amazon to make the paperback, eBook, or audiobook purchase.
We’re working hard so you don’t have to.
And finally, we understand the journey of unpaid (family & friend) caregivers because:
- We have experienced the loss of a loved one with dementia.
- We know the pain of being forgotten.
- We all have witnessed decline.
- We have provided countless hours of caregiving.
- We know many others have experienced the same and we believe in the power of sharing those stories.
Sorrow Passes and We Remain
I found a letter dated July 28, 1883, written by Henry James to his friend Grace Norton, in a reference book. He wrote a letter of encouragement to her as she was desolate, depressed, and determined not to live. I post portions of it here should anyone out there feel as Grace did, in need of life-saving encouragement.
You are not isolated, verily, in such states of feeling as this – that is, in the sense that you appear to make all the misery of all mankind your own; only I have a terrible sense that you give all and receive nothing – that there is no reciprocity in your sympathy – that you have all the affliction of it and none of the returns.
I don’t know why we live, but I believe we can go on living for the reason that life is the most valuable thing we know anything about and it is therefore presumptively a great mistake to surrender it while there is any yet left in the cup.
Sorrow comes in great waves, but it rolls over us, and though it may almost smother us it leaves us on the spot and we know that if it (sorrow) is strong, we are stronger, inasmuch as it passes, and we remain.
My dear friend, you are passing through a darkness in which I myself in my ignorance see nothing but that you have been made wretchedly ill by it; but it is only a darkness, it is not an end, or the end.
Don’t think, don’t feel, any more than you can help, don’t conclude or decide – don’t do anything but wait. Everything will pass … and the tenderness of a few good people, and new opportunities, and ever so much of life, in a word, will remain.
You are marked out for success, and you must not fail. You have my tenderest affection and all my confidence.
This week’s kindness spotlights the Women’s Fiction Writers Association (WFWA) a fabulous group for writers of women’s fiction. Most if not all the administrative staff is volunteer – the reason why their kindness is this week’s selection. As a member of this organization, I was given the opportunity to have a podcast recorded for their Hear Me Roar program because I’m a debut author. Although my novel, Requiem for the status quo was released a year ago, it was my debut publishing effort.
This podcast is approximately 30 minutes in length, and although my novel is certainly the focus, much attention was spent on the prevalence of Alzheimer’s and other dementias in the world. Perhaps this podcast will keep you company on your commute in the next few days; although it may seem a bit choppy, I think it’s worth hanging in there to hear my, and the host’s, provocative discussion.
Lighten up Mondays
- I don’t make enough money to go on vacation so I’m just going to get drunk until I don’t know where I am.
- “How was your vacation?” “I’m analyzing it now. I only got eight likes but one of them was from someone really influential.”
- I don’t need a vacation, I’d be happy with a trip to the bathroom by myself…said every mother of young children.
- Being on vacation with my family has brought me so much closer to my iPad.
- I don’t need a vacation, I just want time to sit, read, snack, and take a nap. Basically, I want to be in kindergarten.
- I’m sorry your post-vacation workload has negated all the benefits of your vacation.
- Honey, pack your fat pants, we’re going on a cruise!
- There should be sympathy cards for having to go back to work after vacation.
- If you answer “Awesome” to the question, “How are you?” you are either a) drunk; b) practicing your sarcasm; or c) on your last day before vacation or retirement.