Writing is oftentimes about myself, but always with the intention of making a difference in the lives of those who take the time to read what I put out for public consumption.
This, my 1,173rd blog post, is the briefest post of all time for me; a post that is intended to make you feel noticed, let you know that I care how you’re doing, and to assure you that I sincerely hope you are well. I reside in the United States, in a semi-decent sized town in Washington State, and I’m glad you are following this blog that I started more than ten years ago. It takes time out of your day to read my ramblings, whether those ramblings are about the two novels I’ve written, REQUIEM FOR THE STATUS QUO and A JAGGED JOURNEY, or just my take on life.
THANK YOU FOR READING WHAT I HAVE TO SAY.
BE WELL. STAY WELL.
SEE YOU NEXT WEEK.
Starting Friday, June 21st, the longest day of the year AND The Longest Day as celebrated in honor of those who have Alzheimer’s or other dementia or who have lost their lives to this always fatal disease, several AlzAuthors will be discounting their books so you will want to fill your shelves – virtual or otherwise – with several excellent sources of support.
These authors will generously discount their books for an entire week. Set your calendars so you don’t forget!
The link to these discounted books will be provided soon!
I’m a writer and a published author so when independent bookstores can thrive in this 21st century, Amazonian world, I enjoy celebrating with them. This local bookstore proves you can be small but still make a grand impression. I love this type of good news! And by the way, I recently published the 2nd edition of my novel, Requiem for the status quo, a book I wrote to honor my father’s Alzheimer’s journey. Yes, it’s available on Amazon, but it’s also available at the independent bookstore featured in this week’s edition of Good News!
Although my novel, based on my own caregiving experiences for my father, focuses on the challenges faced by those caring for someone with Alzheimer’s disease or other dementia, it also benefits Every Caregiver – that universal person who finds her or himself as the primary individual caring for a loved one with a debilitating illness.
My prayer is that Requiem for the status quo helps everyone struggling to balance their own needs with that of their loved one.
Patricia Constance Conroy Desonier: born on May 6th, 1917, she married my father on May 26th, 1947,
and died in her sleep on September 24, 1994.
My mother never complained about how much pain she experienced in her life. Diagnosed with rheumatoid arthritis as a teenager, she lived with this debilitating condition, staying as active as she wanted to be. When I was a young adult, I told Mom how much I respected her for her activity level, knowing each deformed joint in her body never let her forget the disease that got progressively worse as the years wore on. Mom’s response, “If I stay at home and do nothing, I’ll still hurt. I’d much rather be active, doing something I love, and hurt more.” Nothing stopped my mother – absolutely nothing. She took neighborhood walks; she golfed using special clubs with thickened grips; she made all our clothing; she painted the insides of each home I lived in and stripped and restored wood furniture that stayed with the family in various iterations throughout our lives.
Mom encouraged me to write from a very early age. As a four-year-old, she let me pound on her manual typewriter, typing gibberish but encouraging me to read my “stories” to the family at dinner time. My current soft activism can be attributed to both my parents, but especially to my mother. I say “soft” activism, not because I pull punches, but because I learned how to have an impact on others without offense, without judgment, and with a kindness that speaks far louder than words. Like my mother, I won’t stand for injustice; also like my mother, I won’t dish out unjust behavior just so my voice can be louder than the offending voice. I guess the phrase, “Kill ’em with kindness” is applicable in this respect. My mother killed many a person in that manner.
Mom didn’t miss out on seeing all of her grandchildren, including my daughter, Erin, above, but she did miss out on meeting my extraordinary husband, Jerry, and his two daughters, which she would have welcomed as her own granddaughters. Dad had the privilege of getting to know my husband and he met my additional two daughters, and for that, I am truly grateful. I honor Mom today – her birthday – and every day because she deserves the same honor and respect she bestowed on others, including my father with whom she was married for forty-seven years.
I love you Mom and am so pleased you live within me.
The eBook and audiobook of Requiem for the status quo will continue to be available on Amazon until the end of 2019. I am going to self-publish the paperback version through my publishing arm, Words Matter Press so as of March 1, 2019, you will not be able to purchase a paperback copy for your bookshelf until Words Matter Press’s Spring 2019 release on Amazon.
In the meantime, the Amazon paperback price for the month of February has been reduced so those who want to add this book to their library can do so at a discounted price before supplies run out. If you are a Prime member, shipping is FREE!
Let these recent reviews encourage you to get your copy today!
Rubies My mother recently died from Alzheimer’s, and I could really relate to everything she wrote about. All her information is very accurate, and I felt like she was on the journey with me.
Boy do I have a book for you. The paperback of Requiem for the status quo is discounted until the end of February. For only $13.95, you can add this book to your To Be Read (TBR) list!
If the Ebook is more to your liking, it is currently just $4.99 or free to Amazon Unlimited subscribers. It will always be available, but the paperback will not be, at least until later this year.
All of the books shown in this graphic are part of the AlzAuthors Caregiver Appreciation week-long sale, starting today, November 7th. You’ll see my novel, Requiem for the status quo, in the upper right corner that is priced at 99 cents from Nov 7th through 13th. To link to all the books you see above, click on the AlzAuthors link here. Simply click on the book’s image and it will take you directly to its page on Amazon, making it extremely easy to purchase as many titles as you please. And don’t forget to gift others with titles as well. It’s so easy to do and the recipients of your gifts will be so pleased that you’ve thought of them.
I have been closely involved in matters regarding Alzheimer’s disease and other dementia for eighteen years now: long-term care (LTC) housing, memory care, Alzheimer’s support group facilitator, and Washington State LTC Ombudsman. But it took me becoming a published author of a novel that focuses on a family’s Alzheimer’s disease experience before I finally found my Alzheimer’s community.
AlzAuthors is a group comprised of over 170 published authors (as of this writing) who have published fiction and non-fiction books reflective of their personal Alzheimer’s experience. The six members of the AlzAuthors Management Team (Team) is the Alzheimer’s community about which I speak.
The Team’s motto says it all:
We can sing a lonely song, or form a choir and create harmony.
Without exception, the authors featured on our site and each member of our Management Team had the experience of struggling with the learn-as-you-go-task of caring for someone with cognitive impairment. We all made mistakes, and we learned from them, but we also had successes, and we celebrated them.
As a recent addition to the AlzAuthors Management Team, I became even more convinced that my personal Alzheimer’s community resides within this group. The support, the kindness, the giving nature reflected within the Team is incomparable in my experience, and we are not just keeping it to ourselves. AlzAuthors is spreading their influence into numerous parts of the world…which is kinda why they asked me to join the team as their Global Outreach Coordinator. The six of us know our presence is evident in more countries than just the United States, but our imagination and passion is boundless so we have set out to become a household word in small and large communities throughout the world.
Why AlzAuthors? Because this 100% volunteer group has brought together some of the best books on Alzheimer’s and other dementia in one central location: our bookstore. We’ve categorized those books to make the personal caregivers’ or professionals’ shopping experiences an easy one with categories such as: Caring for Parents or Grandparents, Caring for Spouses or Partners, Living with Dementia, and Children and Teen books, to name a few. We know a caregiver’s “free” time is limited or non-existent, so we’ve done our best to make their shopping experience an easy one. They simply click on the cover of the book they’re interested in and they are taken directly to Amazon to make the paperback, eBook, or audiobook purchase.
We’re working hard so you don’t have to.
And finally, we understand the journey of unpaid (family & friend) caregivers because:
- We have experienced the loss of a loved one with dementia.
- We know the pain of being forgotten.
- We all have witnessed decline.
- We have provided countless hours of caregiving.
- We know many others have experienced the same and we believe in the power of sharing those stories.
I was asked to write a story or two for an anthology of short, short, stories that would be read to seniors with cognitive impairment. I jumped at the opportunity. That anthology, The Mighty Ant, is now available in paperback on Amazon.
I am one of 33 contributors to this collection of short stories for seniors who suffer from dementia and other related memory or cognitive disorders. This book is the culmination of a project from editor and contributor, Jessica Bryan, who is a caregiver and advocate for caregivers. Several years ago she began to notice that her mother, who suffers from Alzheimer’s disease, lost focus and could no longer read lengthy books. Jessica began reading to her mother and found that simple, short stories were easier for her to understand. The Mighty Ant is filled with these kinds of fiction and non-fiction stories.
The proceeds from the sales of the books will be donated to a local Council on Aging. The generous contributions of authors like myself have come from all over the world. The result is a book with different perspectives, reminiscences, and tales that reflect not only local culture, but a variety of customs, ethnicities, and lifestyles.
I am honored to have my two stories titled, A Neighborly Friendship and A Sweetheart of a Story included in this collection. A Sweetheart of a Story was selected as the final story in the book because the editor felt it was the perfect selection to provide a sweet ending to the anthology. Buy a copy or ten or more for yourself and others…perhaps your local memory care community would love to include the reading of this book to their senior activity schedule! Currently only $12 for this 322-page large print storybook.
Today I celebrate an author friend who has been so supportive of my writing journey. Jill Weatherholt is a fabulous writer of inspirational romance novels. Second Chance Romance is the first in the Love Inspired series that will grab you from the very first page. The second in the series, A Father for Bella, will be released August 1, 2018, but is available for preorder right now. I already ordered my copy and can hardly wait for the continuation of a series that has warmed my heart and has me wanting more.
This delightful author friend of mine inspires kindness wherever she goes, and she certainly warrants a Kindness Friday spot on my blog today for it is today that Jill posted an essay I wrote that gives readers a peek at my personal caregiving experience with my father. You can view that post, here. I wrote about this personal experience of mine when Jill indicated she wanted to feature me yet again on her author site, and could I please write about a caregiving episode from my past.
It was my pleasure to do so, just as it is my pleasure to give you, my blog followers, a peek into this North Carolina author’s exceptional romance novel series. I certainly hope you will pick up your own copies of Jill’s two books in the Love Inspired series, and that you will perhaps gift others who also might be interested in receiving their very own copies. At the very least, be sure to share this post with your friends so they can have quick and easy access to her novels’ Amazon purchase links.
The best part about my own publishing experience has been the authors I’ve met along the way; what giving and loving individuals they have proven to be. My life is greatly enriched by them. Thank you, Jill, for your friendship.
This week I focus on the kindness of a fellow Black Rose Writing author, R. Bruce Logan. Bruce and I have never met, but through both of our association with the same publisher we developed an online relationship in which I feel I’ve known him for some time. Good news? My husband and I will meet Bruce and his wife late June when they are in the Seattle area. What a delightful lunch date that will be.
Bruce kindly reviewed my novel Requiem for the status quo on his blog The Narrative Arc. That kindness inspired my own exchange of kindness by reviewing his novel Finding Lien and teasing you about its sequel, As the Lotus Blooms.
I am providing my Five Star Amazon review from a year ago, as well as my additional comments:
Finding Lien grabs you from the opening scene. Wow, I really enjoyed this novel. The author has a way of describing scenes so that the reader is transported right there. But it’s not just the scenes that are clear, it’s his description of the characters that comes through loud and clear, without robbing the reader of her or his own impressions of what a specific character might look like.
The action in this novel did not lag. I wanted to find out what happened next and was not satisfied to put the book down until such scenes had played out.
Bruce’s love of and familiarity with Vietnam and the surrounding areas give the reader confidence that what they’re seeing through his descriptions are right on the money. Delightful. Addendum: how could he possibly know so much about Vietnam’s geography and history? He is a retired Army officer who has been giving back to the country in which he served, Vietnam, for many, many years.
Having completed Bruce’s very well written Finding Lien, I jumped at the opportunity to be a beta reader for the sequel. As the Lotus Blooms, with a release date of September 20th, seamlessly carries on from where Lien left off. If I could have read it faster I would have, a paradoxical statement if there ever was one. While wanting to read what came next, I didn’t want the novel to end. I would have done my emotions a favor by reading it as slowly as possible but speed won out, which left me wondering, “Will there be a book three?” I don’t know the answer to that question so nothing you do to bribe me for the answer will benefit your own curiosity.
What I can say, however, is that you should mark your calendars for the sequel’s release September 20, 2018, and read Lien in the interim. You will not be disappointed.
Walt came into our lives when we lived in Los Angeles, California. He worked at the same company as my father who was a mentor to the young, up-and-coming new employee at Manufacturers’ Life Insurance Company. When my family moved from LA to Honolulu, Hawaii, Walt kept in touch with us, oftentimes flying through Honolulu on his way to Maui where he vacationed from time to time.
We hadn’t seen Walt in a while, so when my mother died in September of 1994, imagine my delighted surprise when I entered the church for my mother’s funeral service and there stood Walt near the altar, a friend who had flown to Honolulu from Toronto, Canada where he had relocated years prior to work in the head office of my father’s company.
At forty years of age, I ran up the aisle of the church and threw my arms around him, so thrilled to see our family friend and so blessed that he traveled all the way from eastern Canada to honor my mother and our family by his attendance at my mother’s service.
Fast-forward twenty-four years to Monday of this week when eighty-three-year old Walt D. called me from Toronto to congratulate me on my novel, Requiem for the status quo. He had just finished reading it and couldn’t wait to talk to me about my accomplishment. “Irene, there is no reason why your novel shouldn’t be on the New York Times Best Seller List!” I thanked him for his very generous review and we then talked about the book’s subject matter (Alzheimer’s disease and its effect on families) and how he, in his golden years, had witnessed dementia’s hold on many of his friends. Since Walt and I communicate by postal mail several times a year (he does not own or use a computer), I was well-aware of his involvement with the Alzheimer’s Society of Canada where he volunteers and participates in their equivalent of the annual Walk to End Alzheimer’s. Walt visited my father after my Dad’s Alzheimer’s diagnosis, even while my father was in the middle of his Alzheimer’s journey. Walt made a point of keeping in touch with Dad, knowing the window of opportunity would come to a close in time.
I spent nearly a half hour on the phone with Walt this past Monday, feeling so close to this man who had entered our lives way back in the early 1960s, and who had remained a part of our family for almost sixty years. Friendships don’t have to end because of distance and time; when you stoke the flames they can survive and be contributory to one’s quality of life, as Walt’s has been to mine.
Kindness doesn’t recognize the barriers of distance, time, and even age.
Kindness can live on if we make the effort to nourish it.
Happy New Year, and thank you for reading my novel, Requiem for the status quo. By doing so, you have honored my father, Don Patrick Desonier, to whom my novel was dedicated. My family’s story was one that simply needed to be told, and although it was published as fiction, Requiem certainly reflects some of the personal experiences that stood out most during my father’s disease journey.
I waited until five years after my father’s passing to start writing my novel because quite frankly, I needed to lock away – both figuratively and literally – the many journals into which I jotted down notes and difficult sentiments. The mourning period wouldn’t have been complete, however, without sharing the ins and outs of my father’s illness. You don’t go through a family caregiving journey without learning some lessons – both about yourself and the disease that robbed a loved one of a sound mind and body in his later years.
To be sure, I felt that if others could benefit from the mistakes I made and the lessons I learned then by Gawd, I needed to sit down and learn how to become a writer. And that’s what I did. The first version of my novel was 140,000 words which equates to approximately 525 pages in length. Now I knew I was no James Michener, Ken Follett, or Stephen King so over a four year period I sliced and diced it down to 68,000 words – a palatable 206 pages in length.
It was those 206 pages that eventually got published by Black Rose Writing and elicited countless five-star reviews. Reviews are the bread and butter of those who make products, whether that product is the latest electronic gadget or the heartfelt novel of a debut author like me. If you have yet to write a review, I covet a few minutes of your time to do so before another minute goes by. I’ll even make it extraordinarily easy for you. Simply click right here to be immediately taken to the Amazon page where my novel appears.
You don’t have to be super creative in your review, just write how you felt about the characters I chose to include in an attempt to further people’s general knowledge of how dementia affects the patient and their loved ones. You didn’t even have to fall in love with my writing style – I know I’m not an experienced writer with dozens of published books to my name. But if you benefited at all from what Requiem had to offer, I sure would love to hear from you via your review on Amazon.com.
I hope 2018 treats you well. My wish for you is that you be clothed in health, wholeness, and happiness and that you spread the same to others you encounter.
Those of you familiar with Goodreads know that authors give away tons of books on that site all year round. I figured, I’m an author, and I’m pretty generous, so I think I’ll give away some paperback books as well!
Go to Goodreads (you’ll have to be a registered user to participate) and enter my 6-book giveaway that starts today, December 1st, and runs through December 8th. It’s easy to register on Goodreads, you don’t even have to create a new user persona; you can register using your Facebook, Twitter, Google, or Amazon log-in information.
Once you’re a registered user, follow these steps:
- go to the Browse drop-down menu
- click on Giveaways
- towards right-hand side, click on Recently Listed
- filter by Print Giveaways – as opposed to Kindle Giveaways or All Giveaways
- and search for my novel, Requiem for the status quo.
Be certain to read the description of the giveaway that I’ve created. I want you to be clear on what it is I’m offering for free.
Goodreads does all the work in acquiring names and shipping information, they’ll notify me of the six randomly selected Giveaway winners, then I’ll send out a copy of my novel to six lucky winners within a week’s time.
You’ve got nothing to lose…what are you waiting for?
September is World Alzheimer’s Month. READ THIS ARTICLE CAREFULLY TO DISCOVER HOW YOU CAN WIN A FREE COPY OF MY NOVEL, Requiem for the status quo.
Several of the AlzAuthors group of writers who have written fiction or non-fiction books on the subject of Alzheimer’s or other dementia are offering special, discounted offers to those who would like to get ahold of a select group of books being offered September 27 – 30, 2017.
I am a member of this group of writers and am offering a total of eight free copies of my novel, Requiem for the status quo: four (4) free Kindle eBooks and four (4) free paperback books (the latter available to residents of the United States only). All you need to do is Like/Follow my author Facebook page, then write a comment in the AlzAuthor post that appears on that page.
In order to get in the drawing for a free Kindle eBook or free paperback copy, you must indicate in the comment section which format you would prefer: Kindle eBook or paperback. Please don’t say you don’t care which format you receive; for accounting and distribution purposes I will only put your name in one of the drawings so be sure to specify your preference.
All those Liking my page and posting a comment indicating their format preference will have their names entered into a drawing that will take place at Noon, Pacific Standard Time, on Saturday, September 30th. I will Messenger the winners through FB to request either your e-mail address (for eBook sending) or postal delivery address (for paperback book shipment) so that I can send out your complimentary book copies the first week of October.
But I am not the only author offering great deals on books – all the books contained within the graphic on this post are discounted during the September 27 – 30th timeframe. Be sure to go to the AlzAuthors website, click on the Bookstore tab, locate the author and their book being offered at a discounted price, click on the photo of their book and you will be directed to the site where their discounted book can be purchased. Since I am personally offering free copies of my novel – as opposed to doing so through an Amazon.com promotion – you will not find Requiem for the status quo in the AlzAuthors bookstore during this promotion.
I am reblogging the attached article about Christina Britton Conroy’s book that truly appears to be one all of us Baby Boomers need to add to our bookshelves. Personally, it has been a delight to be one of the AlzAuthors’ newest members. I am in such good company. Coming December 20th, you’ll be able to view my introduction as a member of this enriching group of authors.
My father was the inspiration for my novel Requiem for the status quo.
I have held three author events since my novel’s release back in July and I have more planned before the end of the year. At the senior centers and independent bookstores where my events are hosted, each person attending is certainly there in support of my efforts, but more importantly, I believe their presence honors my father’s story, a story without a happy ending.
Here’s an excerpt from my novel that speaks of my fictional characters’ dilemma, but it also mirrors that which occurred in my real life experience with Alzheimer’s.
If it’s true that cancer is no respecter of persons, it is equally true that Alzheimer’s disease exhibits the same lack of respect. This disease is a murderer and I’m troubled by the millions of crimes it has gotten away with.
Alzheimer’s is also a robber, not only because it robs a person of his or her memories and future, but also because it exacts an emotional price that few can afford. To be sure, monetary costs are a challenging force to be reckoned with, but many family caregivers and their loved ones would no doubt conclude that the emotional toll on a person far surpasses even the costliest of care fees paid.
Until the person with Alzheimer’s or other dementia becomes blissfully unaware of the disease that is murdering him, he has a front row seat to all that is happening. My dad was the first to know when his senior moments became more than a quirk of the aging process. It grieves me to imagine what he went through when he was alone with his thoughts, witnessing first hand where those thoughts were taking him.
Yes, my father had a front row seat to the effects of a disease that is always fatal. Until he eventually became blissfully unaware, he lived with that fact every single day. If the caregiver thinks she or he has been dealt a bad hand in relation to Alzheimer’s, imagine if you possibly can how that hand plays out with the person diagnosed with the disease. I don’t know about you, but my imagination in such matters paints a picture I’d rather not see.
My very real reward for writing my novel is that my father is honored as a result of my efforts. Additionally, it is my sincere hope that those reading my novel and attending my author events manage to discover that they have a cheerleader in their corner…me.
- Each time you open a book and read it, a tree smiles knowing there’s life after death.
- I’m not addicted to reading. I can quit as soon as I finish one more chapter.
- Friend: “Why read when you can just watch the movie?” Me: “Why breathe when you’re just gonna die anyway?”
- Never judge a book by its movie.
- When something goes wrong in your life, just shout, “Plot twist!” and move on.
- I’m a bookaholic on the road to recovery…just kidding, I’m on the road to the bookstore.
- You know you’re a bookworm when your ultimate goal in life is to have your own special library in your house.
- Be careful about reading health books, you may die of a misprint.
- The great American novel has not only already been written, it has already been rejected.
I had to add that last bit of humor because it’s more realistic to an author than anything else on this Earth.
Saturday, August 26th, 3 pm
I am excited about my next author event which will take place at Book Tree in Kirkland, Washington.
Book Tree is a fabulous, quaint, neighborhood bookstore that truly excels at bringing the community together.
Here’s the content of their website’s About section:
BookTree is a vibrant gathering place for the exchange of ideas, and discussion of books and the literary arts. It is a place where all are welcome to continue their journey, expand their knowledge, feed their interests and further their education through books and literature. It is a place for families to find and enjoy the best of current literature. A place where our customers can hear local and traveling writers, authors and poets present their work.
BookTree is one of the few remaining independent bookstores on the Eastside that will be an important part of our city’s identity. It will be successful because of the generous support of our community who values a stand-alone retail bookstore.
BookTree is owned by 2 people who are passionate about the inherent value of books, reading, writing, listening and sharing diverse ideas, and viewpoints.
I hope to see you on the 26th!
Another author, Rebecca Howie, who interviewed me on July 16th, provides this wonderful peek into the world that Matthew Brockmeyer has created in his novel. I hope you’ll investigate what he’s up to!
My debut novel is ranked #1 in all free books available in the Alzheimer’s disease category. Just a few hours remain to get my novel Requiem for the status quo for free as a Kindle book. Giveaway ends at the end of the day, August 12th. Look closely, the cost is $0.00.
Free Booksy is sponsoring this giveaway. Even when my book is purchased for free, it has a positive impact on my book’s ranking on Amazon.
What are you waiting for?
Just one week from today, I will hold my first author reading event and you can be front and center to witness it!
I hope those of you who live in the greater Puget Sound region of Washington State will be able to wend your way to Third Place Books in Lake Forest Park for my 7 pm event. It’s really, really close to Bothell and Kenmore, and not at all far from Redmond, Kirkland, and Bellevue.
It does, but to potential readers, no reviews may equate to a risky purchase. Let’s face it, you can hardly purchase a bag of cotton balls online without having dozens – if not hundreds – of reviews to peruse prior to consider pushing that all important BUY button.
The same goes for books, but even more than that, an author’s literary credibility is tied in with author and sales rankings and reviews are part of what feeds those rankings. Authors aren’t getting rich on their craft, and that is certainly not my goal. What is my goal, however, is that many people read my novel and at its end, they feel they’re better off having done so.
If you have read REQUIEM FOR THE STATUS QUO, won’t you please post a review on three of the sites for which said reviews are very important? Here’s the link for Amazon, and for Barnes & Noble, and for Goodreads. But fear not; you do not need to write a unique review for each of those sites, simply write a review on Amazon, for example, then copy and paste it into the review sections for the other sites. Easy peasy. And many, many thank you to those who have already posted your reviews. You have fed my soul and made my day.
AND IF YOU’RE ONLY GOING TO POST A REVIEW ON ONE SITE, PLEASE MAKE IT AMAZON.
If you have yet to purchase my novel…please consider doing so. And if you have a copy but have yet to read it, please remember my shameless begging in this post and submit a review once you have. Please, no mention of your relationship to me…absolutely not necessary and it’s advisable, from Amazon standards, that you don’t.
My plea for reviews isn’t my attempt at stroking my flaccid ego, no, it’s merely my efforts at making my novel more attractive to the person looking for a book on the subject, and when they purchase and read it, and they are impacted in a positive way by my words and my experience, then all that has lead up to this time will have been worth it.
I discovered something shocking during the weeks that followed my novel’s release:
Alzheimer’s disease is still a secret.
I know; we’ve all certainly read about it, especially when a celebrity is diagnosed with the disease. Every once and awhile there might be an Alzheimer’s Association commercial on television…that is assuming we don’t fast forward through it or walk out of the room. Another reason we’re familiar with the disease is that it is happening to so many people with whom we are acquainted – whether intimately or tangentially.
But it’s still a secret. The very definition of the word speaks to its intent: adj. not known or seen or not meant to be known or seen by others; n. something not properly understood; a mystery. from the Concise Oxford English Dictionary
In many of my promotional posts and boasts for my novel Requiem for the status quo, I’ve indicated that my book tour would probably look more like a senior center tour than what is normally the route for authors: readings and signings in major and independent bookstores. That’s the tact I took, approaching numerous senior centers in Western Washington. 25% of those I approached booked my author event on their activity calendars. But when I approached a major senior housing community foundation to get on their speakers’ calendar, I was told the residents pushed back at the foundation’s previous efforts to enlighten and inform when they hosted those who spoke to the reality of Alzheimer’s disease and other dementia.
Okay, today’s Kindness Friday is going to look a lot like another shameless effort on my part to promote by novel, Requiem for the status quo, and it is, but there’s lots of kindness wrapped up in it.
My very first author event will take place at Third Place Books in Lake Forest Park, WA on August 17, 2017. I dropped off my promotional poster that they’ll be using prior to and day of, and lo’ and behold, did I receive a welcome surprise when I walked into the store.
ALSO, on a kiosk just inside the door are announcements for every author in the month of August who will be holding a reading. And whose book do you think was found on that kiosk just waiting for someone to notice and purchase it?
If that isn’t kindness, I don’t know what is.
And just in case you’re wondering, my novel is available where all fine books are sold, including Amazon (who now offers it in eBook version) and Barnes and Noble. Other eRetailers will be offering eBook format in the weeks ahead.
Craig Boyack, author and author supporter – yes, author supporter – conducted a radio interview of two of the characters from my debut novel, Requiem for the status quo.
Patrick Quinn, father of the protagonist, Colleen Strand, has recently been diagnosed with Alzheimer’s disease and he’s having a difficult time trying to figure out how not to be a burden to his daughter, Colleen. He’s friendly with the radio host, even joking about a part of the male body that withers and needs medicinal support and encouragement from time to time. (Don’t worry, it’s G-Rated, you have to read the context of the interview to fully appreciate the sense of humor this fine, eighty-four year old man exhibits, even in the midst of his disease journey.)
Jonathan Quinn, Patrick’s son, who’s not too keen on what has happened to the father whom he at one time looked up to. Yes, Jonathan is embarrassed by his father’s forgetfulness and seems to think his father’s challenges are all about him, Jonathan, instead of the person who has a front row seat to every twist and turn the plaques and tangles of his diseased brain takes. Jonathan is firmly implanted on the road to denial and sadly, it gets in the way of his relationship with his father.
The interviewer is a fictional character, Lisa Burton, a character in one of Craig Boyak’s novels. The interview takes place on her show, Lisa Burton Radio. This different way of interviewing an author, in this case, me, and spotlighting the author’s novel, is so ingenious, you will be taken aback by how effective Craig’s blogging methods are.
Please, read the interview, and when you’ve done so, I hope you’ll purchase my book from any of the many online and brick and mortar book stores out there, including Barnes & Noble and Amazon. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will also be available at most online book retailers on, or about, July 27th.
Those family members who have had, or who currently have, a family member or close friend with Alzheimer’s or other dementia, you are my hero.
You took on the task of showing your love and compassion by signing up to become a family caregiver which at its best is a learn-as-you-go, long-term commitment. Your efforts make a difference in the life of your loved one. They may not be able to express their appreciation for all that you do, but please know that the essence of who they are acknowledges your kindness.
Your name and/or identity may be lost to them, but you are still a vital part of their lives, and your friendly and loving demeanor goes far toward affirming them and making them feel valued and loved.
Thank you for all that you have done, continue to do, and will remain doing in the future. It is an honor to be in your company.
Requiem for the status quo was released by Black Rose Writing on July 20th. You can order Requiem at Barnes & Noble and Amazon as well as all online and brick and mortar chain and independent bookstores. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will be available at most online book retailers on, or about, July 27th.
I gave the members of that group 24 hours to leave a comment on my giveaway announcement if they wanted to be entered into my contest to pick one lucky (hopefully lucky) reader to receive a complimentary copy of my novel, Requiem for the status quo.
I received 37 entries, and a considerable percentage of those readers’ entries made mention of their own personal Alzheimer’s/dementia caregiving journey. Here are just a few of those comments:
- I am a geriatric care manager, can’t wait to read it!
- My friend just had to put her mom into a caregiving rest home because she could no longer handle her. She was becoming quite violent. It is a horrendous disease.
I love that you are writing inspiring stories! Many of us are or were caregivers and the hopelessness we feel when we dont see them getting better can be overwhelming. Your compassion is so sweet and much needed in todays world. Im really excited to find a new author I can enjoy!
- I would be honored to read this book, my father had Alzheimer’s disease. I want to tell you that the cover is totally amazing !!!!!
- I would love to win. My husband has Alzheimer’s/ dementia so it is if special interest to me.
Even as familiar as I am with the statistics for this disease – 44 million diagnosed worldwide as of this writing – it still astounds me to hear the personal stories associated with it. Like every terminal disease known to man, Alzheimer’s and other dementia are very personal diseases. The brain – the very essence of a person’s being – is the initial body part affected. What we say, how we behave, and who we are resides in the various, vital parts of our brain. Our brain is the grand traffic director of all things me.
It’s no wonder the very long goodbye associated with this disease is so devastating to the one diagnosed, as well as for the one caring for her or him. It’s very personal, isn’t it?
I am of the belief that family dementia caregivers are 21st century heroes. Additionally, all caregivers, not just those on a dementia caregiving journey are the best of the best. They are:
Ordinary people, doing the ordinary right thing, at an extraordinary time.
I am honored to be in your company.
Requiem for the status quo will be released by Black Rose Writing on July 20th. You can order Requiem at Barnes & Noble and Amazon as well as all online and brick and mortar chain and independent bookstores. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will be available at most online book retailers on, or about, July 27th.