Writing Updates

Requiem characters’ radio interview

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Craig Boyack, author and author supporter – yes, author supporter – conducted a radio interview of two of the characters from my debut novel, Requiem for the status quo.

Patrick Quinn, father of the protagonist, Colleen Strand, has recently been diagnosed with Alzheimer’s disease and he’s having a difficult time trying to figure out how not to be a burden to his daughter, Colleen. He’s friendly with the radio host, even joking about a part of the male body that withers and needs medicinal support and encouragement from time to time. (Don’t worry, it’s G-Rated, you have to read the context of the interview to fully appreciate the sense of humor this fine, eighty-four year old man exhibits, even in the midst of his disease journey.)

Jonathan Quinn, Patrick’s son, who’s not too keen on what has happened to the father whom he at one time looked up to. Yes, Jonathan is embarrassed by his father’s forgetfulness and seems to think his father’s challenges are all about him, Jonathan, instead of the person who has a front row seat to every twist and turn the plaques and tangles of his diseased brain takes. Jonathan is firmly implanted on the road to denial and sadly, it gets in the way of his relationship with his father.

The interviewer is a fictional character, Lisa Burton, a character in one of Craig Boyak’s novels. The interview takes place on her show, Lisa Burton Radio. This different way of interviewing an author, in this case, me, and spotlighting the author’s novel, is so ingenious, you will be taken aback by how effective Craig’s blogging methods are.

Please, read the interview, and when you’ve done so, I hope you’ll purchase my book from any of the many online and brick and mortar book stores out there, including  Barnes & Noble and Amazon. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will also be available at most online book retailers on, or about, July 27th.

 

 

Dementia caregivers: 21st century heroes

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Those family members who have had, or who currently have, a family member or close friend with Alzheimer’s or other dementia, you are my hero.

You took on the task of showing your love and compassion by signing up to become a family caregiver which at its best is a learn-as-you-go, long-term commitment. Your efforts make a difference in the life of your loved one. They may not be able to express their appreciation for all that you do, but please know that the essence of who they are acknowledges your kindness.

Your name and/or identity may be lost to them, but you are still a vital part of their lives, and your friendly and loving demeanor goes far toward affirming them and making them feel valued and loved.

Thank you for all that you have done, continue to do, and will remain doing in the future. It is an honor to be in your company.

Requiem for the status quo was released by Black Rose Writing on July 20th. You can order Requiem at Barnes & Noble and Amazon as well as all online and brick and mortar chain and independent bookstores. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will be available at most online book retailers on, or about, July 27th.

Release day for Requiem for the status quo

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Today is release day for my debut novel.

My horoscope that day

On December 29, 2012, I first sat down to write that novel.

On the day of the fifth anniversary of my father’s October 13, 2007 death, I decided to write a novel inspired by my caregiving experiences as his Alzheimer’s care manager. I was certain novel writing would be a huge undertaking because up to that point, I had never written fiction. Because of the enormity of said project, I figured I would wait until the beginning of the following year – you know, a fresh start and all.

But the universe had other plans. My December 29, 2012 horoscope was what the universe used as the catalyst to get my attention. More than that, it shocked me into action. The horoscope so alarmed me, I cut it out of the newspaper, typed it out in large font, and after writing my novel’s very first page, I framed all three to memorialize the outstanding coincidence of what my Taurus-scope said. Here, for your enlightenment, is its wording:

Now’s perfect to start a new writing project; no need to wait until next year. Put down your thoughts without worrying about form, one word at a time.

I showed the horoscope to my husband and if it at all possible, he was more shocked than I at the horoscope’s content. He left me alone the remainder of the day, knowing the horoscope meant business, and so did I. I closed the door to my office, sat at my computer and started typing.

I didn’t know what I was doing. As I mentioned earlier, I had never written fiction. At that point, my personal blog, Living: the ultimate team sport was filled with 100s of non-fiction pieces, most of which centered around aging, long-term care, as well as numerous posts about Alzheimer’s disease, other dementia, and the caregiving struggles faced by families. But to write prose – with dialogue!!!!! – was beyond my skill set, and remained to be for quite some time.

The short of the long of it is that Requiem for the status quo was not the first title for the novel, there were many, the first being Have we met? Aren’t you glad I changed it to its current one? Not only were several titles tried on but my magnum opus went through many rewrites, most notably and importantly, the first draft contained a whopping total of 140,000 words. You see, I had a lot to say and I just kept typing until I had nothing more to add.

That’s an excellent way to get thoughts down on paper, but the first draft is by no means the final product that is pitched to agents and publishers. My now published novel is less than 68,000 words. Yes, lots of cutting and slashing took place over the years, to the point where not only am I proud of the finished product, but a publisher is also proud of it, Black Rose Writing.

I will close this post by providing glimpses of my father to you over the years. I hope you enjoy this montage that includes, from top left: My mother and father’s wedding day, 1947; my wedding day 2000 (my favorite photo of my dad and I); and the Desonier family circa 1971.

Reader discoveries

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To celebrate my novel’s release, I held a giveaway on a Facebook readers group, A Novel Bee, and made some extraordinary reader discoveries.

I gave the members of that group 24 hours to leave a comment on my giveaway announcement if they wanted to be entered into my contest to pick one lucky (hopefully lucky) reader to receive a complimentary copy of my novel, Requiem for the status quo.

I received 37 entries, and a considerable percentage of those readers’ entries made mention of their own personal Alzheimer’s/dementia caregiving journey. Here are just a few of those comments:

  • I am a geriatric care manager, can’t wait to read it!
  • My friend just had to put her mom into a caregiving rest home because she could no longer handle her. She was becoming quite violent. It is a horrendous disease.
  • I love that you are writing inspiring stories! Many of us are or were caregivers and the hopelessness we feel when we dont see them getting better can be overwhelming. Your compassion is so sweet and much needed in todays world. Im really excited to find a new author I can enjoy!
  • I would be honored to read this book, my father had Alzheimer’s disease. I want to tell you that the cover is totally amazing !!!!!
  • I would love to win. My husband has Alzheimer’s/ dementia so it is if special interest to me.

Even as familiar as I am with the statistics for this disease – 44 million diagnosed worldwide as of this writing – it still astounds me to hear the personal stories associated with it. Like every terminal disease known to man, Alzheimer’s and other dementia are very personal diseases. The brain – the very essence of a person’s being – is the initial body part affected. What we say, how we behave, and who we are resides in the various, vital parts of our brain. Our brain is the grand traffic director of all things me.

It’s no wonder the very long goodbye associated with this disease is so devastating to the one diagnosed, as well as for the one caring for her or him. It’s very personal, isn’t it?

I am of the belief that family dementia caregivers are 21st century heroes. Additionally, all caregivers, not just those on a dementia caregiving journey are the best of the best. They are:

Ordinary people, doing the ordinary right thing, at an extraordinary time.

I am honored to be in your company.

Requiem for the status quo will be released by Black Rose Writing on July 20th. You can order Requiem at Barnes & Noble and Amazon as well as all online and brick and mortar chain and independent bookstores. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will be available at most online book retailers on, or about, July 27th.

 

Author Celebration: Books about Alzheimer’s disease

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To celebrate my own book’s July 20th release, a book that’s about Alzheimer’s disease and other dementia, I am tooting the horn of other authors who have done the same, a few of whom I know personally.

There’s a high degree of sadness surrounding this list because almost without fail, those authors who have written memoirs, story collections, fiction, and non-fiction books have done so because of their own personal Alzheimer’s journey.

Ann Hedreen, Her Beautiful Brain – A Memoir. Ann lives in Seattle, Washington, and has provided valuable support to me through my own publication journey. To quote Amazon.com:

Her Beautiful Brain is Ann Hedreen’s story of what it was like to become a mom just as her beautiful, brainy mother began to lose her mind to an unforgiving disease.

I can not imagine the struggle Ann endured while being a new mother whose time and energy was already spread so thin when life happened to her and her household, in a manner hardly believable to so many of us.

Collin Tong, Seattle journalist, Into the Storm – Journeys with Alzheimer’s, a compilation of true stories that starts with the very personal story of Collin’s caregiving journey with his wife, Linda. Collin’s support of my project, telling me not to give up when so many agents and publishers wouldn’t give me the time of day, inspired me to keep on keepin’ on. His story collection is amazing. Again, quoting Amazon:

In his compelling new anthology, Into the Storm: Journeys with Alzheimer’s, twenty-three writers, journalists, educators, health practitioners, social workers, clergy and other family caregivers from across the United States share their intimate stories of caring for loved ones with Alzheimer’s disease and dementia.

Each of the twenty-three stories are gems that you do not want to miss. I know you will be as impressed as I was by each and every one of them.

The next entry contains numerous authors and their books, found in one central location: AlzAuthors. The purpose for their site states:

We are AlzAuthors. In some way, each of us who have come together on this site have been affected by Alzheimer’s Disease/dementia. We share our experiences to bring knowledge, comfort, and understanding to others on this journey.

Click on this link to the AlzAuthors Bookstore to discover a wealth of informational and engaging books that will meet the needs of those who are caring for parents or grandparents, spouses or partners, those living with Alzheimer’s and dementia, fiction books, books for children and teens, and those offerings that provide helpful information for one and all.

3rd Act Magazine, not a book, but a publication addressing the third act of one’s life, usually heavy on those of us who are Baby Boomers. This publication has so much to offer its readers. I, for one, am pleased that the subtitle of their magazine reads, Aging with Confidence. You got that right! You’re not done with us yet; we have so much to offer the world that is spread out before us.

And yes, all of the above-mentioned projects prove that a lifetime of experience – the good and the not so terribly good – equates to having something to say, and not being afraid to say it. Which brings me to my part in that effort:

Requiem for the status quo is currently available at just about any bookstore you can walk into or find online. If a particular store doesn’t currently stock my novel, simply request that they order one for you and you should be able to get your hands on it in short order. You can order Requiem at Barnes & Noble and Amazon. Be sure to shop around for the best price, you won’t be sorry you did. And for those of you with eReaders, the eBook will be available at most online book retailers on, or about, July 27th. Additionally, would you like your local library to carry my novel? Simply ask them; quite often they are quite willing to accommodate individual requests.

Requiem for the status quo is dedicated to my father, Don Patrick Desonier, who wore his disease with the dignity it did not deserve.

I love you Dad.

 

 

 

 

The family caregiver’s hope quotient

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Each person reading this post has experienced a time when their hope quotient was at an all time low.

The definition of hopeless: 1) feeling or causing despair about something; 2) inadequate, incompetent.

When life happens, as it always does regardless of our preferences, we’re bound to find ourselves unable to manufacture even a modicum of hope to get us through the circumstances in which we find ourselves:

  • The loss of a job and the financial repercussions resultant from that loss.
  • Crimes against our body or our property.
  • Relationship disruptions.
  • The devastating diagnosis of a debilitating disease: cancer, ALS, Alzheimer’s disease.

Hope isn’t what a person feels when the rug has been yanked out from underneath them and their very existence as they knew it, maybe even just five minutes earlier, takes an irreversible turn.To be sure, that’s how quickly hope can take a nosedive. Equally as quick, we can not imagine we will ever feel happy again, nor can we imagine not being overwhelmed with how life has showed up. In an instant, our level of hope took a nosedive. Read the rest of this entry »

Lighten up Mondays

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My novel, Requiem for the Status Quowill be released on Thursday, July 20th (although it’s currently available for preorder on Amazon and Barnes & Noble). Here are a few jokes about the craft and those who attempt the craft.

*****

A writer died and was given the option of going to heaven or hell.

She decided to check out each place first. As the writer descended into the fiery pits, she saw row upon row of writers chained to their desks in a steaming sweatshop. As they worked, they were repeatedly whipped with thorny lashes.

“Oh my,” said the writer. “Let me see heaven now.”

A few moments later, as she ascended into heaven, she saw rows of writers, chained to their desks in a steaming sweatshop. As they worked, they, too, were whipped with thorny lashes.

“Wait a minute,” said the writer. “This is just as bad as hell!”

“Oh no, it’s not,” replied an unseen voice. “Here, your work gets published.”

*****

A linguistics professor was lecturing to his English class one day. “In English,” he said, “a double negative forms a positive. In some languages, though, such as Russian, a double negative is still a negative. However, there is no language wherein a double positive can form a negative.”

A voice from the back of the room piped up, “Yeah, right.”

*****

A writer comes home to a burned down house. His sobbing and slightly-singed wife is standing outside. “What happened, honey?” the man asks.

“Oh, John, it was terrible,” she weeps. “I was cooking, the phone rang. It was your agent. Because I was on the phone, I didn’t notice the stove was on fire. It went up in a second. Everything is gone. I nearly didn’t make it out of the house. Poor Fluffy is–”

“Wait, wait. Back up a minute,” The man says. “My agent called?”