My sister, Mary Riesche, has gone out of her way to follow all of my social media posts – including those relating to my upcoming book publication, Requiem for the Status Quo, which will be published by Black Rose Writing the third week of July.
You might be saying, “Yeah, who cares? What would you expect of a family member – and besides, social media is so easy to follow!”
My sister, an artist in her own right, is one of the most creative people I know. Her entire life has been spent developing her craft and that dedication has paid off with gallery showings in California wherein she earned various juried awards.
But my beautiful sister isn’t a computer-oriented person. This is not news to anyone who knows her, and it’s not news to Mary. But she has gone out of her way to support my publication efforts by boosting my posts and bragging about me to others through those boosts. Mary never goes onto an actual desktop or laptop computer, she only uses her smartphone, and most of her “writing” is via voice control, not typing.
It means so much to me that my sister extends the love she has for me through her social media kindness – regardless of how cumbersome it sometimes is for her. Her acts of kindness warm my heart and make me feel like a valid, almost-published author.
We all have a strong preference that life should be easy, comfortable, and pain-free, but that doesn’t mean there’s something wrong with life when it isn’t those things. It’s just life and it’s not how you would prefer it to be, but that doesn’t mean there’s something wrong with it. – Constance Waverly, WaverlyRadio podcast #132
I imagine we all would prefer to live a life of health, happiness, and success (however success may be defined but certainly not limited to financial prosperity). With those three preferences met, life would be a carefree and joyful experience. Given the complexities of life, however, we are guaranteed a certain degree of physical pain, emotional heartache, want, and for some, absolute devastation.
Even an innocent newborn baby immediately discovers that his existence on this earth is anything but 100% delightful. He can’t define what that means when he’s a minute old, but he certainly feels it.
We tend to wonder why good things “always” seem to happen to bad people – an inaccurate thought, nevertheless it’s one that we entertain from time to time – but those of us who endeavor to do no harm aren’t blessed with easy, comfortable, and pain-free lives.
I don’t have the answer to that question but I do have an answer: our assumptions about others are just make believe because we have no way of knowing what is actually going on in their lives. A person’s outward show of perfection, boundless happiness, and ease is just that: their outward public mask that very well may hide an entirely different one worn in private. Let’s face it, no one can be ecstatically happy and fulfilled 365 days of the year – or even 24 hours a day, or dare I say, a mere 60 seconds at a time – so why is it that we assume others have mastered that very impossibility?
Part of what I’ve learned in my sixty-plus years is that what matters most is how we live in the present, regardless of whether or not that present pleases us. Living in the moment, accepting that moment as our life’s current state of being without pushing back against it can be far more fruitful and enjoyable than the alternative: anger, complaints, and hatred. For example, Ariel and Shya Kane, in their book Practical Enlightenment, point out very clearly that getting angry does nothing toward changing ones current situation. Case in point: you’re running late for work in disastrous traffic. You pound the steering wheel, honk your horn, and yell at the other commuters and what do you know? Your situation hasn’t changed but you’ve become your own worst enemy because your previous misery has been considerably compounded by your fruitless actions.
Traffic doesn’t happen to us, it just happens.
A rent increase wasn’t directed at us personally, it was simply a business decision made by the landlord.
Long lines in the grocery store didn’t occur to inconvenience us; quite simply, like us, other people decided to shop at the same time.
Coming down with the flu a day after a person arrives in Hawaii for the vacation of a lifetime wasn’t preventable; germs are everywhere and will do their thing at any time and any place. Even though it sucks that the germs manifested themselves just as the vacationer was heading to the beach, please know he’s not being punished for trying to have a good time.
All the wishing in the world won’t change our current reality because anything we could have done in the past is over and done with. Anything we could possibly do in the future hasn’t yet happened, so we should give it up and just be where and when we are right now.
Piero Ferrucci had this to say about the illusion of being in control when his preferences weren’t met during a vital point in his life:
The outside world did not adapt to me: More simply and practically, it is I who must adapt to what is happening moment to moment.The Power of Kindness.
No one wants to be a member of a club characterized by a disease that robs a person of their cognitive function and is always fatal. Unfortunately, as of this writing, 5 million Americans (many more million in other countries) are living with Alzheimer’s disease or other dementias. Here are a few more facts extracted from the most current Facts and Figures document published by the Alzheimer’s Association:
In 2016, 15 million Americans provided unpaid care for people with Alzheimer’s or other dementias;
That equates to 18.2 billion hours of care valued at $230 billion;
1 in 3 adults dies with Alzheimer’s or other dementia;
It kills more than breast cancer and prostate cancer combined;
Since the year 2000, deaths from heart disease have decreased by 14% while deaths from Alzheimer’s disease have increased by 89%;
Every 66 seconds, a person develops the disease.
My novel, REQUIEM FOR THE STATUS QUO, (Black Rose Writing publication, July 2017) spotlights one family’s experience in particular – the Quinn family – while also visiting other households affected by Alzheimer’s or other dementias.
Eddie and Katherine, a couple in their 40s. Katherine has a combination Alzheimer’s/Lewy Body dementia, a type of dementia that causes somewhat violent behavior and speech;
Frank and his son, Sean, the latter of whom suffers from a traumatic brain injury (TBI) incurred while on deployment in Afghanistan;
Victoria and George, a couple in their 80s, trying to crawl through the maze of George’s Alzheimer’s disease;
Rose and Sophia, sisters in their 50s, struggling with the effects of Sophia’s vascular dementia;
Donna and Kelly, partners in their 60s, experiencing the devastating effects of Kelly’s Parkinson’s disease and the dementia associated with her disease.
These are characters like you and I. They were living their lives the best they knew how, being good people and doing good for others, yet Alzheimer’s still managed to grab them by the throat and refused to let go.
The storyline is a difficult one but the way in which I have portrayed all of these precious people will touch your heart, and at times, your funny bone. No, there’s nothing humorous about the disease, but people will be people, and when they’re confronted with the impossible, they can find – or create – a bright side onto which they can find redemption and community.
I look forward to introducing you to my characters. Just a few more months before they’ll become a part of your life.
Have world events impacted you in such a way that you feel things are hopeless?
Are you overwhelmed to the point that you say to yourself, What could I possibly do to make a difference?
The answer is:
You can make a difference because kindness trumps all.
I recently wrote Ellen Degeneres to thank her for her ongoing efforts to spread kindness. Sure, at the end of each of her daily shows she says, Be kind to one another, but she puts force behind those words in what she does for others. At the conclusion of my letter to her, I said the following:
We’re not charged with changing the entire world, but we can have an impact on the miniscule portion of the world to which we have access. You’re doing it, and I will continue to do what I can from my corner of the world. If everyone makes a fraction of a difference right from where they are, those fractions will add up to great things.
I’m glad I’m on the same kindness train as you, Ellen, and I’ll keep chugging along until I can’t chug any longer.
I sincerely believe that random acts or words of kindness can make a difference in the world in which we live. There are so many negative and hurtful words being thrust into our universe, can’t we just please try to balance out that hurt with words of encouragement, recognition, and nourishment?
Yes, nourishment. In all our daily interactions – be they via social media or in person – we can nurture the hurt that exists all around us. Our words, our smile, our actions may just change the life of someone forever. Haven’t you been on the receiving end of that type of transformative nourishment? Didn’t it feel good? Didn’t it fill the emptiness within you that hungered and thirsted for confirmation that you matter, that you aren’t a failure, that you have potential?
Let’s revisit how that felt and commit to quenching the thirst of each person with whom we come in contact.
Much has been said about how impersonal – or even cruel – social media can be. That certainly is the case many times over, but social media can also be a way in which to stay connected with those you care about but with whom you are not able to get together as frequently as you would like.
That is the case for me.
I currently have 60 Facebook (FB) friends, most of whom are those who are close friends and family members. I’ve never felt I needed to post ginormous numbers of friends in order to be a valid Facebook user; I’ve just always been thrilled to be able to follow the lives of those with whom I have a history.
When I first opened my FB account I sent friend requests to everyone I could find on the site. One of those was my daughter, Erin, who indicated that she preferred to keep her FB life separate from her mother/daughter life. I totally got that – and still do – so Erin and I aren’t FB friends but we communicate so much, we always know what’s the latest and greatest in each of our lives.
It’s just this year that my FB family has been enlarged; I’m reaching out to my nieces and nephews and other fabulous family members who – when I first started on FB – were quite a bit younger than they are now. And joy of all joys, they’re reaching out to me! Quite frankly, I figured why would the younger set care about what this geezer-in-the-making is doing with herself? Turns out, they do care, and it’s been glorious, and I certainly care about what they’re doing. The added benefit is that when we do get together, I’ll be far better acquainted with them because we’ve stayed connected on an ongoing basis.
Connecting with others – having contact with them – tears down walls that need not exist. I’ll leave you with a quote from The Power of Kindness about what lack of connection can result in:
We can also do the opposite: build walls, as well as find ourselves in front of others’ walls, and decide that this is an easier, more practical way to live . . . Distance may be safer. But our lives are poorer without the nourishment that these people can give – nourishment in the form of stimuli, different points of view, fresh emotions.
The incapacity of being in touch with others can become a tragedy of solitude. We become our own prisoners.
My sister and I as teenagers, and the rest of the familyMy novel, REQUIEM FOR THE STATUS QUO, contains a scene where Patrick Quinn – many years before his Alzheimer’s diagnosis – wakes up his high school aged daughters on April 1st and announces that local public high school students have the day off to honor April Fools’ Day. His daughters attend a parochial school – church based – and when they hear of said day off, they become incensed.
The girls get out of bed – anger seething below the surface of their drowsy bedheads – cross their arms, and they yell, “That’s not fair!”
Patrick agrees, April Fools’ Day is no reason to have a day off from school . . . then he claps his hands together, and barely stifling a laugh, he says, “Gotcha!”
That exact scene happened to my sister and I – thus the reason why I had to include it in my novel. My father had the keenest sense of humor – a funny bone that stayed with him even while the plaques and tangles in his brain leeched the very life out of him. As a family, we were very fortunate that his humor survived until the very end. That is not always the case, as readers will discover when they meet the other characters in my novel whose disease journey is far from cool, calm, and collected.
REQUIEM FOR THE STATUS QUO, release date: July 20 2017.
I’ve read numerous articles regarding what writers of fiction – or non-fiction for that matter – should write about:
You should write about what you know
Expand your horizons, write about what you don’t know and research the heck out of the subject matter
In my case, I did both: I wrote about what I knew very intimately – caring for someone with Alzheimer’s disease – and I performed a great deal of research to augment and supplement the personal knowledge I acquired over my father’s multi-year disease journey.
I enjoyed the research almost as equally as I enjoyed going through my personal journals and my father’s medical records that documented the progress of his fatal disease.
Perhaps “enjoy” isn’t exactly the most appropriate descriptor of the developmental process for my novel, REQUIEM FOR THE STATUS QUO. Perhaps the more appropriate descriptor is that I was fully engaged and committed to accurately tell every nuance of the story.
You see, the greater portion of the story was very personal to me and my family but it was also a story I knew was representative of so many in the world dealing with the same horrific disease onslaught. I took my story-telling responsibility of portraying the reality of the physical and emotional toll on caregiver and patient very seriously, but I also included humorous incidents that crop up from time to time when you least expect it … because as with all things in life, even during the darkest of times, humor can be found if we’re open to its sanity-saving presence.
And those of you in-the-know understand how important it is to nurture the fading remnants of sanity onto which you are holding.
REQUIEM FOR THE STATUS QUO, to be released by Black Rose Writing, July 2017
I met my husband on September 21st, 1996. In the 21 years since that first date, I guarantee my body/looks have changed – as would be expected.
And as is also expected – if you’re me – is you become self-conscious of parts of your body that don’t quite resemble the version from two decades ago. You avoid extensive interaction with a mirror when you step out of the shower, quickly covering up all the body bits that have betrayed you over the years.
Well, not betrayed, just relocated and representing themselves differently than before.
Guess what? My husband compliments me time and again, never pointing out the changes because quite frankly, he doesn’t see them. No, he’s not blind; when I say he doesn’t see them, I mean he doesn’t see them. He sees me, the woman he met in 1996, married in 2000, and who daily recommits himself to me for a lifetime. Love isn’t blind, it’s also not critical. Love is accepting.
My local newspaper, the Seattle Times, has a daily mini-column titled, Rant and Rave. I always read that column, but I’m most interested in the Raves because acts of kindness are spotlighted. As you can see in the attached link, one portion of the column is affirming, the other, not so much.
I wrote to the editor of that particular section, asking him to put more focus on the Raves, maybe even excluding the Rants from time to time, because the general public has so many social media venues in which to complain. I haven’t heard back from him yet, but I am hopeful that I eventually will.
I sincerely believe we all have a responsibility to counter balance the negativity that surrounds us, and distributing kindnesses to others is one very easy way of doing so. The yucky things that go on in the world get all the attention; the spotlight shines brightly on those things; the good that occurs barely receives the dying flame from a match.
What happened to the country into which I was born?
What happened to freedom of thought, freedom of the press, and freedom of speech?
Allow me to go back in history for a brief moment: March 1991 saw astonishing violence exhibited toward an African American, Rodney King, resultant from Mr. King’s decision not to pull over during a high-speed chase when pursued by Los Angeles Police Department officers. Officers were tried in a court of law for their excessive use of violence and three of those officers were acquitted, sparking the historical 1992 Los Angeles riots. Mr. King observed said violence and was upset at what transpired during those riots. What follows is a portion of his response to the ensuing actions and his plea for peace:
“I just want to say – you know – can we all get along? Can we, can we get along? … It’s just not right – it’s not right. And it’s not going to change anything. We’ve got to quit – we’ve got to quit. And uh, I mean please, we can, we can get along here. We all can get along – we just gotta, we gotta. I mean, we’re all stuck here for a while, let’s, you know let’s try to work it out, let’s try to beat it, you know, let’s try to work it out.”
There is so much division in our country, division that has polarized families, friends, and neighbors and brought about a renewed and jarring brand of hatred and intolerance. This hatred thrives in both conservative, moderate, and liberal circles. We are all guilty. We are all intolerant.
This growth of intolerance toward those who have an opinion different from our own has got to stop. Even if I am diametrically opposed to the opinions of others, the core of who I am must allow for at least an openness to hear from those whose core speaks differently. Listening doesn’t mean converting; it means allowing others the freedom to believe what they believe but only as long as such beliefs don’t promote actions or words that denigrate and ostracize all of us who are struggling to survive in the very limited time we have on this Earth.
There will never come a time when all individuals on this earth are in 100% agreement, but the need for discourse is emergent.
We all have opinions that lean one way or another, but strong leanings should be just that: a leaning that still allows for flexibility so that jointly we can work toward the betterment – rather than the tearing down – of our fellow man.
“I mean, we’re all stuck here for a while, let’s, you know let’s try to work it out, let’s try to beat it, you know, let’s try to work it out.”
Rejecting hatred and intolerance in all forms begins with you, and it begins with me … every day, for the rest of our lives.
First of all, take a deep breath and shed the mantle of guilt you’re wearing. Now let’s address your dilemma.
When your father was on his deathbed you made a promise to take care of your mother in her old age. Now she is at the point of not being able to care for herself and you realize that you’re absolutely not cut out for – nor are you capable of – taking her under your roof to provide the care that she needs. What’s a dutiful son or daughter to do?
I’m not advocating that you break your promise to your father but I am suggesting that you consider redefining what that promise looks like. You promised your father that you would take care of your mother and that’s exactly what you’re going to do. Taking care of your mother is not solely defined as moving her into your home and taking care of all her basic needs until she dies. Very few people have the ability or the means to provide 24-hour care in their home. You made that promise with the best intentions and you can still honor your promise without dishonoring your father. Keep in mind that loving your mother doesn’t guarantee your success as her caregiver. Even adult children with a fabulous relationship with their parent struggle greatly in their efforts. And if your relationship with your mother is tenuous at best, try picturing the scenario of you as caregiver and her as recipient of that care. What effect will that have on her, you, and the remainder of your household?
Let’s clarify how best to care for your mother.
Why can’t caring for your mother mean that you’re honest enough to admit that you’re not the best caregiving option? Do your best to find the care alternative that will provide her an optimal quality of life, e.g. adult daycare, errand and housekeeping services, assisted living. Do the research and consult the experts to confidently fulfill your promise to your father by securing the best care solution for your mother. If that solution involves selecting an assisted living facility, there are many resources available to you that can make this move a successful one for everyone involved. As her son or daughter you will be able to lovingly help her transition into a residential location with like-minded older adults where she can receive the care that will fulfill the promise you made to your father.
Now imagine the NEW normal that your mother and your family can experience.
Your mother lives nearby in an assisted living residence. She has companions with whom she enjoys spending time. She receives three wholesome meals a day and when she, or you, feel like seeing each other, you’re just a short drive away! The time she spends at your house will be as a pampered visitor – not an inpatient (or impatient) relative. It’s probably difficult right now for you to see this as a viable option, but I think in time, you’ll find that everyone, including your father, will be pleased with the outcome.
I’m reblogging this article I wrote in April of 2013 because it comes up in my blog stats as being extremely popular to many of you out there. I can only conclude that it’s popularity remains high because there are so many caregivers in the world who are tangled up in a daily life that centers around those with Alzheimer’s disease or other dementia. I hope many more will be encouraged – and pleasingly challenged – by what I have to say in this post.
Walk in Their Shoes… Just for a Minute. The attached article contains encouraging advice that caregivers worldwide need to read, and re-read, from time to time.
Those of us who have been caregivers to loved ones with Alzheimer’s or other dementia know very well the frustrations felt when we come to the realization that we’re not sufficiently equipped to handle that which this disease presents us. We’re walking in caregiver shoes, fully incapable of walking in those of the person with dementia. If we could, we would shriek at what we see and experience.
So we get frustrated – understandably so. We raise our voices in anger – and feel guilty immediately thereafter. We complain to others about the one we’re taking care of – because we crave to be heard and understood by someone!
PET scan of a human brain with Alzheimer’s disease (Photo credit: Wikipedia)
Do not ask me to remember is a loaded statement and one which should give us pause. We know the person with dementia is not able to remember the previous five seconds, so why do we ask them to remember where and when they were born? Why do we think that repeating an answer LOUDLY AND WITH EMPHASIS will help the loved one remember this tenth time you’ve answered their same question? Why do we think they will understand our logical explanations about circumstances when their ability to understand anything requiring organization of thought is a function forsaken long ago by the brain that they’ve been stuck with?
Because we’re human – and we want order out of chaos, and we want the one for whom we are providing care to finally “get it.” And we want them to understand that this ain’t no cake walk for me so why aren’t you appreciating all that I do for you?
I’ve been authoring this blog, Baby Boomers and More, for five and a half years. Perhaps that’s a record for blog ownership, I’m not sure, but what I do know is that I thoroughly enjoy writing about matters of significance. I guess that’s why my blog has survived as long as it has: there are a heck of a lot of things going on in the world that fall into that category.
My website address remains the same: http://www.babyboomersandmore.com, but with a broader emphasis on life as it unfolds for all of us born within a certain year bracket:
iGen (after 2000)
Millennials (1980-2000)
Gen X (1965-1979)
Baby Boomers (1946-1964) and
The Greatest Generation (before the end of WWII).
Yes, there are many differences between the generations but we have one major characteristic in common: although as individuals we are strong in many ways, we still need each other to get to the finish line.
With that change in overall focus comes a new, primary blog identification:
Living: the ultimate team sport
If we consider all the people with whom we come in contact as being members of the same team, we will do all we can to support them. We’ll bolster rather than compete; we’ll pick them up rather than step over them as a means to an end; we’ll exhibit respect for each other’s talents while nurturing our own; we’ll not take advantage of weaknesses in order to falsely boost our own strengths. In short, we’ll stand by our teammates and want only the very best for them.
Another goal of mine: write more succinctly, at least after this particular post. 🙂 I know you’re all busy and have better things to do than read my oftentimes lengthy magnum opuses. I’m newly committed to being as succinct as possible, somewhere along the lines of an article I wrote on December 27, 2016: Don’t go there. Let’s face it, as a writer, I should be able to use an economy of words to get my point across to those who’ve chosen to follow me.
And one last thing: the header images you’ll see at the top of my blog (which will cycle through randomly) are from photos I took during a few of my hikes around the Pacific Northwest. Hiking is my passion, so I’m pleased to provide snapshots of views I have been privileged to see.
With that, I’ll sign off for now, so very glad to be a member of your team.
If I can’t do anything useful, at least I would like to do as little harm as possible. Wherever You Go, There You Are, by John Kabat-Zihn
Lainey Piland photo
Do no harm is a practice found in various aspects of society – including the Hippocratic Oath – and it was the underlying principle of Mahatma Gandhi’s revolution and his personal meditation practice. But what does it mean? Is it really as simple as doing no harm? You tell me.
Do no harm: Don’t do anything while driving that will piss off other drivers.
Do no harm: Don’t speak ill of others behind their back.
Do no harm: Don’t use social media to bully or anger an individual or a group of people.
Do no harm: Don’t ignore the server or courtesy clerk who’s working as hard as he/she can for you. Engage them in conversation; make their day by respecting what they do.
Do no harm: Don’t be unkind to anyone; think of how it felt when someone was unkind to you.
Do no harm: Don’t litter or do anything that harms the environment, regardless of how small.
Do no harm: Don’t put off a kindness such as sending a card to someone for no reason at all – or for every reason you can think of. Your card and message may be just what that person needs that day.
Do no harm: Don’t ignore the impulse to turn around to the person behind you while in line to say, “I’m not in a hurry, why don’t you go before me.” You may not be in a rush and he or she may be; think how your thoughtfulness will impact the remainder of their day.
Do no harm: Don’t keep compliments to yourself. For example, if your spouse or friend looks nice, tell him or her. It doesn’t do the person any good if you keep it to yourself. Your lack of attention may cause harm.
Do no harm: Don’t expect someone else to make a difference; you make a difference in whatever way you can, even if doing so is an inconvenience. Your inconvenience may be just what the world needs at that very moment in time.
Do no harm: What I have provided above barely scratches the surface of how we can do no harm. Please add your input in the comments section below to provide all of us with examples of how we might improve our personal corner of the world.
My wish for you: health, joy, and peace in the New Year.
The longer our lifespan, the more likely each of us will need to be cared for. But one need not be elderly to require such care. Many illnesses strike without thought for a person’s stage in life.
Actor/comedian, Seth Rogen’s mother-in-law was diagnosed with Alzheimer’s in her 50s, an age that many consider to be the prime of life. The successful actor’s finances, plus those of several other family members, supported the care of which his wife’s mother was in need. In time, he, his wife, Lauren, and many others established Hilarity for Charity:
In 2012, Seth and Lauren (along with some amazing friends), created Hilarity for Charity. They later established the Hilarity for Charity Fund as part of the Alzheimer’s Association, through which monies raised are directed to help families struggling with Alzheimer’s care, increase support groups nationwide, and fund cutting edge research. Since its inception, Hilarity for Charity has raised more than $5 million to support these efforts.
One of the ways in which they provide this support is through caregiving grants that provide hours of home care for those struggling to survive the demands of a disease that is always fatal. Could you, or someone you know, benefit from such grants? Please avail yourself of the information provided on the Hilarity for Charity website.
For the next few Fridays, I am going to re-blog articles I’ve written over the years that address being a positive influence on the world around us. My about-face, (see my post Good Starts with Me) got me thinking about whether or not I’ve sufficiently addressed topics that provide encouragement to all of us, to live a life centered around acts of kindness for others.
Turns out I’ve written 216 posts on this subject. But have no fear, I won’t post all of them, but I will select a few to offer you on a weekly basis for awhile. I hope you enjoy them.
Helene Gayle, Care USA President and CEO, learned early on in her adult life that giving to others was a necessary part of her participation in this world. It makes sense, then, that she heads a major international humanitarian agency that delivers emergency relief and support for long-term development projects. This organization is nonsectarian, impartial, and non-governmental. In my estimation, what could be better than that? In the book, Getting There by Gillian Zoe Segal, Ms. Gayle had this to say about effecting social change:
Social change is better achieved by being for something (rather) than against something. Growing up, I was part of a protest generation. We protested the war and stood in support of liberation struggles in Africa. Whenever we saw a problem, we were “against” it.
It’s easy to think that by being against something you’re standing up for a cause, but if you want to have…
Even at my age, I live by the school year calendar. When a new school year approaches, I oftentimes find myself reassessing where I am, and where I’m going – not unlike what so many of us do the first of every new year. This post flows from that assessment and has been ruminating in my mind for some time now.
Maybe it’s my advancing age, or maybe it’s the wisdom that has come with my advancing age, but I’m constantly reminded how important it is to live NOW; in the present. We have limited time on this earth. Time is a luxury we can not afford to waste, and yet so much of our time falls into that wasteful category.
If you were diagnosed with a terminal illness, wouldn’t you do all you could to squeeze every last drop out of your life? I know I would because I would have no choice in the matter.
But those of us who have not been given a medical death sentence do have a choice. We can be engaged in this only life we’ve been given, or we can waste it.
We can wile away the hours of each day lamenting what isn’t and complaining about what is, or we can live in the present and accept what we can’t change and do something about that which we can.
The truth of the matter is, we all have restrictors strapped to our lives. They may be physical or medical restrictors; financial or situational restrictors. No one escapes what life dishes out, but we all have a choice about what we do with what we’ve been served.
That’s a very heady responsibility we’ve been given.
I mean, wow, it’s my life, I get to choose how I live it. I can choose to remain as I am, or I can do something this very day to make things better.
Waiting even one more day means that’s one more day I will have wasted.
I’m not willing to do that, I mean . . . what if tomorrow brings about that death sentence I thought I had avoided?
Don and Pat Desaulniers (who later changed the spelling of their surname to Desonier to make it easier for Americans to pronounce…it didn’t, they still slaughtered the pronunciation) and Donald and Mary Desaulniers moved to Philadelphia, PA from Canada and eventually relocated to Los Angeles, CA.
Not me. I was born in Pasadena, CA shortly after my family moved to the west coast. Does it get any more American than that?
You see, way back when, my father was a hard working employee of Manufacturer’s Life Insurance Company, an international company based out of Toronto, CANADA, and he was offered a position in !AMERICA! that he felt he couldn’t refuse because he loved his wife and young family and was given the opportunity to move up in the company’s employee ranks and by God he jumped at the opportunity. My father retired from Manulife after 50 years of service with them.
Such a cutie, that brother of mine
My parents felt strongly about being an involved, integral part of American society so they let go of their Canadian citizenships and became American citizens along with my brother and sister, and of course since I was born in America, I was instantaneously a citizen. Lucky me.
My fabulous immigrant sister
I’m quite certain most people reading this post can trace their ancestry to other countries, and many of you don’t have to go very far back – just as I only needed to go back to the early 40s with my immediate family to find the start of my ancestry’s foray from a foreign country into the United States.
Other than Dad, no additional members of his family of six moved to the United States but four of six adult children in my mother’s family of eight are immigrants. Counting my siblings, aunts and uncles, and numerous cousins, close to 68% of my immediate Desaulniers/Conroy family members made the move to the United States and I assure you, they were welcomed, and as far as I know, the United States still treats its Canadian immigrants as they did my parents so many years ago. Or maybe I missed current headlines declaring that Canadians weren’t welcome and that a wall should be built between our northern border with Canada…
Did I miss something?
Why aren’t American citizens up in arms about the influx of immigrants from non-Muslim countries and those from countries that aren’t Mexico who’ve made the United States their home: Canadians, Eastern Europeans, the French, Italians, Australians, New Zealanders and Germans to name just a few? Americans’ arms are spread wide for those who aren’t a part of America’s “no-entry” list, and I applaud their generous gesture.
Answer me this: do intelligent Americans actually believe that if you’re coming into our country from a primarily Muslim country, you’re a terrorist? Seriously? And do those same Americans believe that immigrants from Mexico are murderers and rapists and have taken away the jobs in which they, the Americans, are most interested?
I believe as my parents did, that when you’re living in a country and benefiting from its resources you should give back to the country, which sometimes means becoming a citizen but not always. What about those legal immigrants who – having families just like mine – want to do all they can to create a safe, healthy, and financially secure existence for their loved ones by working in America, getting involved in commerce (aka buying stuff in America), volunteering in their communities, and being good neighbors? They are an integral part of the melting pot that we so proudly boast as being what a well-rounded and diverse society should look like.
I don’t know, maybe we should just scrape the inscription off the Statue of Liberty if indeed Americans are no longer willing to welcome those whom we’ve graciously invited to our very shores for so many years. If the invitation is no longer being extended – or if it’s being ruthlessly discriminatory – don’t tease the huddled masses from afar, and don’t pretend to be the extraordinary country I’ve called my home since 1953.
“Give me your tired, your poor, your huddled masses yearning to breathe free, the wretched refuse of your teeming shore. Send these, the homeless, tempest-tossed to me, I lift my lamp beside the golden door!”
I don’t know about you, but I’ve left something in my car and later regretted doing so. One item in particular that I REALLY regretted leaving in the trunk of my car was a can of frozen orange juice. I guess I didn’t forget it, it slipped out of my shopping bag and after awhile, once it had melted, it turned bad…real bad and stunk up my car. Fortunately the smell alerted me to the neglected juice can so I could retrieve it and thoroughly clean out my trunk to eliminate the stench of rotted, putrid, orange juice.
Okay, true confession time. Let me be totally honest with you, there have been other items I’ve left in my car, the fact that they existed having completely slipped my mind:
Cell phone
Water bottle
Briefcase
Umbrella
Jacket
Bag of snacks
iPod
So yes, I can readily be accused of forgetting something in my car that should have been brought into the house.
But I never left my child in my car.
I never forgot I had a daughter and then “slap myself on the forehead” ran out to retrieve her to bring her inside the house.
What’s going on these days that some parents now go about their day, fully oblivious to the fact that earlier in the day they had placed a child in his or her carseat in the heat of the day, and that if the child isn’t in the house when you enter the house, there must be some place where he or she may be located?
Or when you go to work, having placed a child in the carseat earlier in the day, you somehow work your shift and then return to your car, drive home, and then remember you and your spouse gave birth to this little bundle of dehydrated flesh some x-years ago?
Are we so distracted that a living, human being slips our minds?
How can one explain this extraordinary occurrence of parents forgetting their children in their vehicles?
Hell, I didn’t even leave my child unattended in my vehicle just because my store errand would only be 5 minutes! No, too many things could have happened during that five minutes and I wasn’t about to chance any of those from occurring to the little girl I carried in the warmth and protection of my womb. I would rather be inconvenienced having to unstrap her from the carseat – even if she had fallen asleep and desperately needed some Zzzz time – and carry a crying child into the store for my five minute errand than risk anything happening to my most cherished possession.
The fact that car manufacturers are now developing alarm systems in vehicles to alert a parent to the existence of their flesh and blood seems rather alarming in itself…doesn’t it?
While waiting for an appointment the other day, I picked up the May 2016 issue of O Magazine and read a brief article by author Elizabeth Gilbert, of Eat, Pray, Love fame in which she relayed her experience riding a cross town bus in New York City – a bus filled with sweaty, disgruntled, rude, and combative passengers. It was the end of the business day for most and from Ms. Gilbert’s perspective, it appeared that every one of them – her included – had had a shitty day. Add to that, the weather was less than accommodating.
The bus driver got on the intercom and announced (I’m paraphrasing here):
I know you’ve all had a lousy day for one reason or another. You’re either upset about something that happened to you today or by what’s currently going on in your lives.
This is what I’d like you to do. When it comes to your bus stop, I’ll hold out my hand and I want all of you to drop your troubles in my hand as you exit the bus. When I get to the Brooklyn Bridge, I’m going to toss all of your troubles out my window.
Will you do that for me?
You can imagine the mixture of mumbling and giggling that ensued after that announcement but at the very first stop, the disembarking passengers symbolically dropped their troubles into the driver’s out-stretched hand.
And then every passenger did the same at each stop along the route.
What a wonderful gift that driver gave to all the perfect strangers that rode his bus that afternoon, a gift that cost him nothing but benefitted so many.
Every day, in so many ways, you and I have the ability to lighten another person’s load.
Dedicated to unappreciated care partners worldwide. Thank you for all you do. Dear random person who sees my care partner from time to time and feels the need to point out s/he has bruises all over her/his body that look frightening and s/he has really declined a lot since the last time you saw her/him and…
Through comments by someone I follow on Twitter, I stumbled on the key to living in – and thriving on – the present. Authors Ariel and Shya Kane [@ArielandShya] went through trial and error during their early adult lives in their attempt to find fulfillment.
If you read even one of their books, you’ll discover that they admit their journey took them to many places and venues, under varying conditions, spending great and small amounts of money, only to find the answer to their quest in their every day experiences.
If we’re aware and focusing on the present we’ll find life lessons everywhere we look.
We can be deaf and blind to those lessons, but it doesn’t take a trip to India, a luxury spa, or even a therapist’s office, to practice the art of thriving exactly where we are.
The painful yet honest truth is that we excel at complaining and stressing about situations in which we find ourselves: traffic, long lines at the TSA security checkpoint, our job or lack thereof, boredom, illness, and so on. But if we’re honest with ourselves – and lately I’ve been painfully honest with myself – we’ll conclude that complaining and stressing out over such situations does nothing toward changing them. But changing the way we view those situations does alter how we react to them and therefore how we feel about that moment of time in which we’re inconvenienced because what we would have preferred to happen, did not.
When did your complaining about a lengthy red light – when you were endeavoring to get to an appointment on time – actually make the green light come quicker?
My husband is retiring the end of April at the age of 59, the same age as did my father. I can’t recall the reason why Dad chose 59 as his retirement age. Maybe he felt the same way my husband does:
It was time.
Yes, it’s time, and my husband and I have been very diligent throughout our marriage – and before – making prudent financial decisions that will enable a somewhat early retirement compared to others. But did Jerry and I ever feel we robbed ourselves of enjoyment while being frugal? Not at all.
Between us, we financially assisted three daughters through college, still managing to travel to Hawaii every few years and other low-budget trips in-between. We’ve had our fair share of vehicles, not fancy ones, but safe metal encasements with four wheels each. 🙂
But this post isn’t about that, it’s about marking “lasts” while remembering the “firsts.” Here are some of the lasts that have already occurred and that are yet to occur:
Voting one last time for – or against – the SPEEA engineering union contract that comes up for negotiation every few years. Done;
Last at-work employee Holiday potluck. Done;
Last Boeing Holiday break that gives employees a week or so off during Christmas/New Years (who needs it when every day during retirement is a break from work?) Done;
Last employee performance review. Done;
Jerry’s last Boeing paycheck will be received in May of this year. The first one was in June 1978;
On Thursday, April 28th: he’ll shut off the last 3:45 am wake-up alarm, he’ll drive the last commute to/from Everett, when he walks through the door later that day, I’ll say my last, “Yay, you!” which I have said to him pretty much every day he comes home from work.
My last post of 2015 talked about making resolutions you can actually fulfill.
This first post of 2016 proposes that every day be treated as one does a New Year.
I’ll borrow sentiments from Dr. Bernie S. Siegel again, providing you with wisdom that might help you get a good start on 2016, and every day you’ve been given. Direct quotes will appear indented in this post.
How can you have a new year? You are the same person, and the world doesn’t start again with a clean slate. Your troubles don’t disappear. People don’t forgive you for what you did the year before…
Your life is anything but new when you awaken on the first day of the year. It is simply a way of measuring the passage of time. Why make such a fuss over it?
We like new starts, don’t we? There’s something refreshing about having the opportunity to start all over again. Not unlike second chances, I treat the commencement of a new year as an opportunity to do better. Unless you’re perfect, you too like the idea of a fresh start.
The truth lies in our desire to be reborn, to start again, to make resolutions and changes we can live up to. Then why wait for a certain date to start a new year? Why can’t tomorrow be New Year’s Day?
Maybe it is!
Wow, instead of waiting 365 days to do better, I can do better in the next minute. I don’t even have to wait until tomorrow. Right now, I can do better. I can think of and speak more kindly towards others and myself. I can promote a healthier lifestyle and make plans to construct a better me and a better world. Why wait?
I see it every day in my role as a physician; people learn they have a limited time to live, and they start their New Year behavior. They move, change jobs, spend more time with those they love, stop worrying about what everyone else thinks of them, and start to celebrate their life.
Whoa, why wait until it’s too late? Quite literally, when you’ve been given a death sentence, it is too late. I’m not going to rely on receiving such a prognosis to get things right, I’m going to make every effort to do better for myself and others, right now.
I have the chance to live my best life now, and so do you.
When every evening is New Year’s Eve and every day you awaken to is New Year’s Day, you are living life as it was intended.
I had the privilege of facilitating an Alzheimer’s caregiver support group meeting this afternoon. For several years I facilitated my own caregiver support meeting but retired from doing so in 2013. Earlier this year I was the substitute facilitator for this same meeting and was so very impressed with the group of ladies I met then, a few of whom were in the meeting again today.
One of the gals, Georgina (not her real name) lost her husband to Alzheimer’s in January. She told the group that while her husband was still alive, the two of them were always invited to a Holiday gathering of friends – all married couples – to celebrate the Christmas season. She found out recently that she was not invited to this year’s event.
Quite frankly, she hadn’t yet thought about the Holiday party, thinking the invitation might be forthcoming but certainly wasn’t stressing out about it. Quite innocently, one of her friends mentioned the party in passing, saying, “Looking forward to seeing you at the annual Christmas celebration” not realizing that the host of the party had not included Georgina on this year’s guest list.
Oftentimes we’re told that we should forget about the past. Sure, it’s okay to learn from past bad decisions, but sometimes those years are better left alone.
The other day, I went back twenty-one years to uncover the basis for a mystery that has haunted me since September 24th, 1994. Twenty one years of fear and uncertainty came to an end in just ten minutes time.
My mother died on September 24th, 1994 in my parents’ home in Honolulu, Hawaii. She was 77 years old and she died in her sleep. Although she had some chronic health-related issues with which to contend, no one could have predicted her sudden death because she lived a vital and active life.
Dad didn’t want an autopsy performed on my mother which – at the time – I was okay with; it was his decision to make; he didn’t want her body assaulted just to find out why her life ended on that particular day.
The latest AARP Magazine had a fabulous article providing helpful ways in which to make a caregiver’s life just a wee bit – or quite a bit – better. Here are a few tips for you to adopt in your life.
Bring her a low-maintenance houseplant
Take in his mail
Do yard upkeep, whether raking leaves, mowing the lawn, shoveling snow
When you’re heading out to buy groceries, ask him if you can pick some things up for him
Take her kids or grandkids to the park or to a movie
Stop by with a board game or a movie to watch – a perfect way to get his mind off things
Visit her with a pet that has a sweet disposition
Take his dog on a walk – maybe on a daily or weekly basis
Do some light housework or repairs: dishes, vacuuming, dusting, ironing, smoke alarm battery and light bulb changing, fixing a leaky faucet
Return her library books
Volunteer to stay at home to wait for the cable technician, repairman, etc. while he attends to other more pressing needs
Bring him a week’s worth of meals in freezable containers
Send her a greeting card on an ongoing basis. Who doesn’t love to receive real postal mail?
When visiting, let the person vent, without passing verbal judgment on what they may say
Do an item or two on her To-Do list – I promise you, her list is extraordinarily long
Offer to make a photo album with him, using photos that mean a lot to him and the rest of the family
Give him a gift card to a restaurant he may enjoy, or better yet, take him out to dinner
Help him decorate for the holidays
Drop off or pick up a prescription
Keep in touch with her, even after her loved one passes. Too often, the grieving one has more attention than she can handle immediately after someone dies, then when she could really use some TLC, no one can be found.
I’ve written several articles over the years about the importance of assembling a caregiving team when caring for a loved one – a team that doesn’t necessarily rely on family because not everyone has a participatory family when it comes to these matters. Of all the life-changes we encounter during our journey, caregiving is one of – if not the most difficult – speed bump to get over.
Caregiving: the ultimate team sport suggests how one might use the strengths of each team/family member to handle the varied needs during the caregiving journey.
Family dynamics that hamper caregiving success exposes the need to let go of stereotypes or childhood roles that don’t serve siblings well as adults. If ever there was a time to work together for the greater good – taking care of a family member with dementia or other terminal illness – this ranks right up there at the top.
Solo caregiving addresses the needs of the person who appears to be strapped with fulfilling all the roles needed for a successful caregiving venture. As the sole caregiver, you need not settle into those roles, not without the help of other, well-meaning individuals. Certainly, much relies on the neighbor, coworker, even casual acquaintance, but said entities are a resource from which much assistance can be found.
And here are several more articles for the caregivers out there – and those acquainted with a caregiver – to provide some wisdom and encouragement through the tough times: Read the rest of this entry »
Okay, my life isn’t always crappy, quite frankly, it’s rarely crappy. I’ve had a great life and I certainly can’t complain too loudly. But I’ve learned many things in my umpteen years of life, one of which is that there are teaching moments – and teachers – all around us and if we’re diligent students, we’ll learn something new now and then.
Dr. Bernie S. Siegel in his book 365 Subscriptions for the Soul, brings up this topic in one of his daily meditations. He starts out by offering the following Taoist quote:
Sure, it’s convenient and very utilitarian for our every-day use. As a writer, I benefit greatly from an online Thesaurus to use alternate words. Case in point, there’s gotta be a better way to say, “Colleen got angry (irked, vexed, indignant, apoplectic, choleric) when traffic made her late for her hair appointment.”
And among the many other reasons for which I use the internet, I count on it for quick access to a recipe for an I’m too exhausted to be creative meal on a Monday night or in the alternative, a restaurant that’s not too far away from home and can seat us at the last minute. Bottom line, I take full advantage of what the inter-web has to offer.
But the biggest reason I love the internet is that it reaches anyone who has access to any type of computer device – especially those in need of some sort of assistance when sorting out the difficulties of life. My need for a dining alternative pales in comparison to someone searching for help when caring for someone with a debilitating illness.
One of the blogs I follow: My Dementia Experience, is written by a woman, NorCalMom, who takes care of her mother-in-law. This delightful caregiver also has five children of her own. But NorCalMom jumped into caregiving with both feet in 2013 when Marie, her mother-in-law, moved in with her and the rest of her household because of Marie’s advancing dementia. Reading just one of this blogger’s posts will show an outsider what types of challenges NorCalMom faces on an ongoing basis.
As caregivers, and I’ve been one as well, we oftentimes “wing it” when it comes to handling the day-to-day, and shockingly acute, issues that occur during our caregiving journey. The unpredictable nature of Alzheimer’s or other dementia makes even the most mundane activities frustratingly impossible to handle with only a layman’s knowledge of providing care. For example, how does one communicate with a person who can no longer understand what is said to her and who can no longer respond cogently to questions proferred by their primary care person?
My sister, Mary Riesche, has gone out of her way to follow all of my social media posts – including those relating to my upcoming book publication, Requiem for the Status Quo, which will be published by Black Rose Writing the third week of July.We all have a strong preference that life should be easy, comfortable, and pain-free, but that doesn’t mean there’s something wrong with life when it isn’t those things. It’s just life and it’s not how you would prefer it to be, but that doesn’t mean there’s something wrong with it. – Constance Waverly, WaverlyRadio podcast #132
I don’t have the answer to that question but I do have an answer: our assumptions about others are just make believe because we have no way of knowing what is actually going on in their lives. A person’s outward show of perfection, boundless happiness, and ease is just that: their outward public mask that very well may hide an entirely different one worn in private. Let’s face it, no one can be ecstatically happy and fulfilled 365 days of the year – or even 24 hours a day, or dare I say, a mere 60 seconds at a time – so why is it that we assume others have mastered that very impossibility?
No one wants to be a member of a club characterized by a disease that robs a person of their cognitive function and is always fatal. Unfortunately, as of this writing, 5 million Americans (many more million in other countries) are living with Alzheimer’s disease or other dementias. Here are a few more facts extracted from the most current Facts and Figures document published by the Alzheimer’s Association:
Yes, nourishment. In all our daily interactions – be they via social media or in person – we can nurture the hurt that exists all around us. Our words, our smile, our actions may just change the life of someone forever. Haven’t you been on the receiving end of that type of transformative nourishment? Didn’t it feel good? Didn’t it fill the emptiness within you that hungered and thirsted for confirmation that you matter, that you aren’t a failure, that you have potential?
Much has been said about how impersonal – or even cruel – social media can be. That certainly is the case many times over, but social media can also be a way in which to stay connected with those you care about but with whom you are not able to get together as frequently as you would like.
Allow me to go back in history for a brief moment: March 1991 saw astonishing violence exhibited toward an African American, Rodney King, resultant from Mr. King’s decision not to pull over during a high-speed chase when pursued by Los Angeles Police Department officers. Officers were tried in a court of law for their excessive use of violence and three of those officers were acquitted, sparking the historical 1992 Los Angeles riots. Mr. King observed said violence and was upset at what transpired during those riots. What follows is a portion of his response to the ensuing actions and his plea for peace:
This growth of intolerance toward those who have an opinion different from our own has got to stop. Even if I am diametrically opposed to the opinions of others, the core of who I am must allow for at least an openness to hear from those whose core speaks differently. Listening doesn’t mean converting; it means allowing others the freedom to believe what they believe but only as long as such beliefs don’t promote actions or words that denigrate and ostracize all of us who are struggling to survive in the very limited time we have on this Earth.
I’m reblogging this article I wrote in April of 2013 because it comes up in my blog stats as being extremely popular to many of you out there. I can only conclude that it’s popularity remains high because there are so many caregivers in the world who are tangled up in a daily life that centers around those with Alzheimer’s disease or other dementia. I hope many more will be encouraged – and pleasingly challenged – by what I have to say in this post.
I’ve been authoring this blog, Baby Boomers and More, for five and a half years. Perhaps that’s a record for blog ownership, I’m not sure, but what I do know is that I thoroughly enjoy writing about matters of significance. I guess that’s why my blog has survived as long as it has: there are a heck of a lot of things going on in the world that fall into that category.
If we consider all the people with whom we come in contact as being members of the same team, we will do all we can to support them. We’ll bolster rather than compete; we’ll pick them up rather than step over them as a means to an end; we’ll exhibit respect for each other’s talents while nurturing our own; we’ll not take advantage of weaknesses in order to falsely boost our own strengths. In short, we’ll stand by our teammates and want only the very best for them.
The longer our lifespan, the more likely each of us will need to be cared for. But one need not be elderly to require such care. Many illnesses strike without thought for a person’s stage in life.
The truth of the matter is, we all have restrictors strapped to our lives. They may be physical or medical restrictors; financial or situational restrictors. No one escapes what life dishes out, but we all have a choice about what we do with what we’ve been served.
I don’t know about you, but I’ve left something in my car and later regretted doing so. One item in particular that I REALLY regretted leaving in the trunk of my car was a can of frozen orange juice. I guess I didn’t forget it, it slipped out of my shopping bag and after awhile, once it had melted, it turned bad…real bad and stunk up my car. Fortunately the smell alerted me to the neglected juice can so I could retrieve it and thoroughly clean out my trunk to eliminate the stench of rotted, putrid, orange juice.
But I never left my child in my car.
While waiting for an appointment the other day, I picked up the May 2016 issue of O Magazine and read a brief article by author Elizabeth Gilbert, of Eat, Pray, Love fame in which she relayed her experience riding a cross town bus in New York City – a bus filled with sweaty, disgruntled, rude, and combative passengers. It was the end of the business day for most and from Ms. Gilbert’s perspective, it appeared that every one of them – her included – had had a shitty day. Add to that, the weather was less than accommodating.
The bus driver got on the intercom and announced (I’m paraphrasing here):
Through comments by someone I follow on Twitter, I stumbled on the key to living in – and thriving on – the present. Authors Ariel and Shya Kane [@ArielandShya] went through trial and error during their early adult lives in their attempt to find fulfillment.
My husband is retiring the end of April at the age of 59, the same age as did my father. I can’t recall the reason why Dad chose 59 as his retirement age. Maybe he felt the same way my husband does:
My last post of 2015 talked about making resolutions you can actually fulfill.
One of the gals, Georgina (not her real name) lost her husband to Alzheimer’s in January. She told the group that while her husband was still alive, the two of them were always invited to a Holiday gathering of friends – all married couples – to celebrate the Christmas season. She found out recently that she was not invited to this year’s event.
The other day, I went back twenty-one years to uncover the basis for a mystery that has haunted me since September 24th, 1994. Twenty one years of fear and uncertainty came to an end in just ten minutes time.
The latest AARP Magazine had a fabulous article providing helpful ways in which to make a caregiver’s life just a wee bit – or quite a bit – better. Here are a few tips for you to adopt in your life.
I’ve written several articles over the years about the importance of assembling a caregiving team when caring for a loved one – a team that doesn’t necessarily rely on family because not everyone has a participatory family when it comes to these matters. Of all the life-changes we encounter during our journey, caregiving is one of – if not the most difficult – speed bump to get over.
Sure, it’s convenient and very utilitarian for our every-day use. As a writer, I benefit greatly from an online Thesaurus to use alternate words. Case in point, there’s gotta be a better way to say, “Colleen got angry (irked, vexed, indignant, apoplectic, choleric) when traffic made her late for her hair appointment.”
Living: the ultimate team sport 