Financial help for family caregivers
The longer our lifespan, the more likely each of us will need to be cared for. But one need not be elderly to require such care. Many illnesses strike without thought for a person’s stage in life.
Actor/comedian, Seth Rogen’s mother-in-law was diagnosed with Alzheimer’s in her 50s, an age that many consider to be the prime of life. The successful actor’s finances, plus those of several other family members, supported the care of which his wife’s mother was in need. In time, he, his wife, Lauren, and many others established Hilarity for Charity:
In 2012, Seth and Lauren (along with some amazing friends), created Hilarity for Charity. They later established the Hilarity for Charity Fund as part of the Alzheimer’s Association, through which monies raised are directed to help families struggling with Alzheimer’s care, increase support groups nationwide, and fund cutting edge research. Since its inception, Hilarity for Charity has raised more than $5 million to support these efforts.
One of the ways in which they provide this support is through caregiving grants that provide hours of home care for those struggling to survive the demands of a disease that is always fatal. Could you, or someone you know, benefit from such grants? Please avail yourself of the information provided on the Hilarity for Charity website.
See the following link for further support: Caregiving 101 through 1001
If Alzheimer’s disease isn’t a secret, then why are we whispering?
Alzheimers Research Funding Lags Other Diseases- Dementia – AARP. The January/February 2015 AARP Bulletin focuses on the prevalence of Alzheimer’s disease in America. The cover contains photos of fifteen celebrities who died from the disease. Some of those spotlighted may surprise you because their cause of death was not broadcast to the media.
What a shame.
It’s a shame that the stigma attached to the disease still manages to relegate Alzheimer’s to the closet. Cancer used to be that closeted disease – so much so that many years ago people shied away from even mentioning the word, preferring to call it “The Big C.” Before Alzheimer’s disease, cancer was the whispered disease but now the populous embraces each and every body part afflicted, even those considered of a private nature: breast, ovary, prostate, rectum. Read the rest of this entry »
World-wide epidemic on your doorstep
A May 15, 2014 New York Times article, Alzheimer’s, a Neglected Epidemic by Ginia Bellafante, provides a keen look at a fatal disease that many still assume is one that only other people get. Maybe my coworker a few cubicles away from me or the neighbors down the street will have to deal with some sort of dementia, but not our household – right? You wish. Alzheimer’s is a world-wide epidemic and it’s knocking on your front door.
In 2010, Alzheimer’s was the underlying cause in 500,000 deaths in the United States.
Let’s look at another epidemic with horrific fatality totals. Remember the AIDS crisis? As of the year 2010, in thirty years’ time, AIDS was responsible for 636,000 deaths in the U.S. And yet Alzheimer’s – a very unpopular disease that is erroneously characterized as just an old person’s disease – racked up almost that many deaths in just one year.
Alzheimer’s isn’t just for geezers any more.
That’s the title of one of the chapters in my manuscript – a work of fiction that centers on the lives – patients and their family caregivers – affected by Alzheimer’s or other dementia. A couple of my characters are in their 80s but there are three characters ranging in age from early 40s to mid 60s whose disease journey began when they were no longer considered young – but definitely not considered old.
What will it take to push people out of denial and into activism?
In the New York Times article linked above, AIDS activist, Peter Staley, is quoted as saying, “The hidden blessing of H.I.V was that it hit a community, my community, a community of mostly gay men. We had a base of organizing that came out of Stonewall.” [1969 demonstrations by members of the gay community in response to a police raid at Stonewall Inn, in Greenwich Village.] And then he goes on to say, “Alzheimer’s hits old people. There is no real organized community beyond AARP.”
I’m not happy with Mr. Staley’s characterization of Alzheimer’s as an old person’s disease because it perpetuates a myth that is simply not entirely true. But I fully back his advice to all of us:
How does a large, affected community get the country to care? It means playing a strong inside game: These family members need to organize effectively; they need to find their allies in Congress; they need to show up with sick people in front of key members of health communities.
Alzheimer’s struck my dad in his mid-80s and my sister-in-law in her early 60s – both now deceased.
You? Are you doing your part to shine a spotlight on the hideousness of this fatal disease? At the very least, have you made a monetary donation to the Alzheimer’s Association in your country – a donation from which you will personally benefit? United Kingdom; Alzheimer’s Prevention; Alzheimer’s Society of Canada; Fight Dementia – Australia – to list a few.