Health & Wellness
Focus on Caring: The Spineless Bystander Effect
On July 7, 2014, I wrote an article Spineless inaction: the bystander effect, an article that told the story of a female McDonald’s restaurant employee who was severely beaten by another woman. No one called 911, no one tried to intervene, but everyone within a block of the beating took cell phone video of the attack. That, my friends, is an example of spineless inaction.
I’m going to counter that horrific example with a rewarding one out of Buffalo, New York.
Darnell Barton, a bus driver in Buffalo, New York, was on his multi-trip route over a bridge on the expressway. Ahead of him, he could see a woman standing over the railing on the ledge; the intent of this woman was obvious to anyone who observed her. The entire episode was caught on the bus dashboard camera. Read the rest of this entry »
Focus on Caring: Boundaries that constrain us
How are you defined? What kind of box would you fit into? Here are a few characteristics some might assign to me:
- White American
- Baby Boomer
- Pacific Northwest resident
- Wife
- Mother
- Sister, aunt, niece, cousin, friend
- Seattle Seahawks super fan
All items on that list are correct but if that’s all that people see about me, they’ve greatly reduced the trueness of who I am because my box also contains the following:
- spiritual but definitely not religious person
- free-thinker (is that redundant?)
- writer of things that matter to me
- advocate of the elderly and just about everyone else who crosses my path in life
Setting boundaries between who I am, and who you are, benefits no one.
Leonard Pitts, Jr. spoke at a TEDx event in February of this year. His 20 minute talk, The Boundaries We Choose, is readily available on YouTube so I strongly suggest you seek it out. He suggests, “Our labels shouldn’t define who we are and place us in a strict box.” He then spoke of labels one might put in his box: African American, Christian, Husband, Father, Fan of the LA Lakers. If you’ve read any of Mr. Pitts’ literary pieces in the Miami Herald or any of his books, you already know that he is more than the contents his box may imply. (To be sure, there is a very valid reason why he was named the 2004 Pulitzer Price Winner for Commentary.)
During his February TEDx talk, he provided a fabulous story that illustrates the downside of labels or identifying markers. I’ll let you discover that beautiful and clarifying story by watching his TEDx video, but for the purposes of this blog posting, I will provide you with one of his statements from that video.
Our bonds are more than connecting with certain markers that define people.
Examine, if you will, your way of describing something that happened to you during the course of your day.
When you relay a story about a person taking his or her time in line at the Starbucks store, holding everyone up for far too long a time, do you define the person this way?
This Asian woman in front of me acted like she owned the damn place. She was so selfish, taking her damn time ordering her fancy drink when all I wanted was a damn cup of brewed coffee.
Or did you simply say
This damn person in front of me took so much time ordering a fancy damn cup of coffee that I just about ran out of time to get my plain and simple cup of brewed coffee.
Tuesdays in September: Focus on Caring
Just a brief post to announce that I have designated each Tuesday in September as a day to Focus on Caring.
On September 1st (tomorrow) I’ll introduce the topic by providing extraordinary insight by Leonard Pitts, Jr. and my takeaway from his insight. On subsequent Tuesdays I will provide heartwarming and heart-wrenching stories about ordinary people, doing the ordinary right thing, at an extraordinary time.
In short, I will introduce you to people like you and me who, in my mind, are every day heroes: people who chose to do the right thing in an amazing way.
Alzheimer’s caregiving: The Art of Lying
Alzheimer’s Australia | Therapies and communication approaches. Caregivers have it hard enough without having to crawl through the maze of ethical versus practical when it comes to communication.
The above article provides a clear perspective of the challenges inherent with taking care of someone whose reality doesn’t come close to matching that of the caregiver.
Whether you are an unpaid caregiver – someone who cares for a friend or a loved one – or a paid caregiver providing services for which payment is received, you need to embrace the art of lying for your benefit, and that of the person for whom you provide care.
I feel so strongly about this matter, that over the years I’ve written several articles proposing one engage in the fine art of half truths, omitted truths, and out and out lying to save the day.
Here are two articles I think you will find of interest, articles that might just infuse you with the strength to take the low road from time to time:
Good citizenship starts young
Operation Good Citizen: Teaching Kids to do the Right Thing in 2015.
A recent article in Parade Magazine spotlighted the efforts of older adults mentoring children on how to be good citizens. Specifically, Veterans and Congressional Medal of Honor recipients volunteer as mentors in schools across the nation.
The article emphasizes the point that parents and other adult family members should be the main source of such teaching – teachers have enough work to do just getting our children educated – but with a little bit of reinforcement at school, the lesson becomes that much more vital to the young learners. Read the rest of this entry »
Single ladies, this one’s for you
What do you look for in a man? I did a wee bit of internet research and gleaned some listed qualities from websites such as Ask Men, Men’s Health, and Psychology Today. Here are a few of the qualities listed:
- passionate
- humorous
- faithful
- dependable
- mysterious
- exciting
- kind
- generous
- confident
- good job
All but two of those qualities were on my list when I was looking for a husband. Maybe it’s just me, but a man who’s mysterious seems to cancel out a few of the other list-worthy qualities above. Additionally, I think exciting is completely overrated.
I hit the jackpot when I met my husband.
I don’t wanna brag … who am I kidding, I really wanna brag about my choice in life partners.
Tree of Life
I’m going to once again look to Dr. Bernie S. Siegel, and quote directly from a page in his book, 365 Prescriptions for the Soul.
Stand tall and proud. Remember your roots! Be content with your natural Beauty. Drink plenty of water. Enjoy the View! – Illan Shamir, Advice from a Tree
If we are busily performing deeds but never stop to reach up for knowledge and wisdom, our tree of life will have no branches and many roots. Without branches, how can it move and respond with the winds of life? Or if we accumulate great knowledge but perform no deeds, then we are like a tree with many branches but no roots, and we will be blown over by the winds of fortune.
We must see that our tree of life contains both wisdom and deeds. Then our branches will spread and our deep roots will provide support and nourishment. We will be able to survive the storms and droughts that life presents us.
Caregivers: take a bow
Applause. Please, please, please read the attached mini-article written by a 30-something year old blogger who is taking care of her mother who has Alzheimer’s.
I’ve written about how important it is to do good things, say nice things, and appreciate the people around you. There’s a group of people out there that could really use some of those good vibes: family caregivers. You encounter them everywhere you go. You may not know they’re caregivers, but believe me, if you build them up, rather than tear them down, you will have done a very good thing. You might be just the person she/he needs to get through a very trying day.
The next time you leave your house, set out to make someone’s day. Don’t rely on some other stranger to do it; it’s up to you.
What are you: a builder-upper or a tearer-downer?
Every day, and every encounter during each day, we have the opportunity to do good, or to do bad; to improve upon someone’s day, or ruin it for them.
Right now, or at the end of this day, think about the opportunities presented to you. Now think of what you allowed to come forth.
Did you let a car get into your lane when a person was trying to get out of a business parking lot on a very busy street while you were in a hurry, and perhaps running late, and therefore had every reason not to stop for five seconds to allow that car into the flow of traffic?
Depending upon how you acted in that situation, the driver of that car felt this way:
or the driver of that vehicle felt this way:
He may even have felt this way:
which would eventually make him feel this way:
How did you fare today?
- Just for today, let go of anger.
- Just for today, let go of worry.
- Just for today, give thanks for your many blessings.
- Just for today, do your work honestly.
- Just for today, be kind to your neighbor and every living thing.
And do it again tomorrow and the next day.
If you don’t wanna walk, how about hip hop?
Canadian high school dance teacher Shirley Clements, performs with her students at a Hip-Hop competition! This amazing woman has inspired countless dancers throughout the years and continues to inspire every day!
60 YEAR OLD KILLS HIP-HOP ROUTINE. I hope you enjoy this fabulous dance routine to Bruno Mars’ song, Up Town Funk You Up. Most likely this woman will never have to walk around any shopping malls if she keeps up this level of activity.
Click on the link, turn up the volume, and enjoy!
Two legs and a good pair of shoes
We should ALL be walking, even people with dementia.
That’s all you need! Walking is one of the least expensive modes of exercise you’ll ever find. Correction: you need legs, good shoes, and room to walk. The good news is that even if you don’t live in a neighborhood where walking is appropriate, you can walk around the mall; you can walk the perimeter of your apartment or house; you can walk up and down the corridors of your building; you can walk in place … I know, boring, but you get the idea … WALK!
Walking is one of the best weight-bearing exercises us humans can do to protect our bones. At a recent doctor’s appointment, I bragged to my doctor that every week I do Bar Method exercises, yoga, weight lifting, and recumbent bike … and every once in a while I walk. She said, “The only weight-bearing exercise in that list is walking. Get out there and walk!” Read the rest of this entry »
Your positive imprint on mankind
Our perspective of the world and all its needs can be very humbling. Many times we witness the need but can’t do much about it.
The earthquakes in Nepal and the world-wide response to that tragedy is startling and heart-warming at the same time. The massively horrible weather in parts of the United States with its past winter snow and torrential downpours – and the recent spring incursion of hurricanes and tornadoes – almost paralyzes the remainder of us because we have so little to offer in response, other than a monetary donation to a charitable response organization.
Is that really the case? Do we feel that because we can’t offer hands-on assistance in extremely serious and urgent circumstances as outlined above, we have nothing at all to offer a very exigent world?
Why wrinkles are a very good thing
Here’s a direct quote from Dr. Bernie S. Siegel’s 365 Prescriptions for the Soul. I’ll let his, and John Kenneth Galbraith’s words, say it all:
If wrinkles must be written upon our brows, let them not be written upon the heart. The spirit should never grow old. – John Kenneth Galbraith
When you wash something, it can come out wrinkled. That’s life! Just remember, if God puts you through the wringer it’s because you’re worth laundering. If I were given the choice between dying young and developing wrinkles, the answer would be clear to me. I choose life, come what may, regardless of old age and wrinkles. Read the rest of this entry »
Decision making roadblocks
I like what I like. How many times have you been asked to choose between one thing and another, you choose the thing, and then you’re asked, “What made you choose that?” If you’re the mother of Not Quite the Plan‘s author, your answer is, “I like what I like.”
I love the example of this mini-dilemma found in the attached article. The blog author’s mother, I’ll call her Mrs. Mom, cuts to the chase; she doesn’t waste any time deliberating; she simply knows what she likes: she doesn’t like the cat that keeps jumping on her lap, but she does like fudge bars. Mrs. Mom has dementia. Perhaps because of her condition, the decisions she makes are far less complicated than they used to be. Her measuring rod: I like what I like.
Weighing the pros and cons is a very important step in the decision making process, but oftentimes we get hung up on the P & C list and fall into the paralysis by analysis quagmire. The list doesn’t have to be multiple pages long and it doesn’t have to be perfected before we take the first step. What’s the worse that could happen? Let’s look at the possibilities. Read the rest of this entry »
Sexual intimacy in memory care
The attached New York Times article by Pam Belluck addresses the ambiguous loss experienced by men and women whose spouses are still alive, but not fully there. More specifically, it addresses the need for intimacy that still exists for the spouse without cognitive decline, and that can also exist for the spouse with the decline.
It is a well-known fact that advancing age doesn’t mean the end of desire for sexual intimacy. Whether in the privacy of ones home or in a long-term care housing situation, sex is alive and well. Even people with varying degrees of dementia maintain the desire for intimacy. What the above NY Times article so carefully exposes, however, is that sometimes the act of consent for such intimacy can be a subjective one when viewed by a third party. Read the rest of this entry »
Setting aside our perceived limitations
Earlier this year, Richard Glatzer, co-director of the award winning movie, Still Alice, died at the age of 63 after battling ALS for four years. It would have been unfortunate if he had gone with his first reaction when approached to adapt Lisa Genova’s novel into a movie. (Evidently, he almost turned down the project.) Fortunately for us, he did not. One article on this subject indicated that it was Glatzer’s personal connection to independence-robbing illness that gave Still Alice a greater authenticity.
From what I understand, Mr. Glatzer used one finger – using a text-to-speech app – to communicate every directive. I don’t have to know anything about film directing to understand that doing so with his “limitations” would have been extraordinarily clumsy and time consuming. I wonder if his decision to accept the project was made in part because he believed he was the best person for the job. Did you see the movie? Wouldn’t you agree?
Yet all of us are faced with far less daunting struggles than those experienced by Mr. Glatzer and we cave in to our well-honed ability to find every reason not to pursue a task that requires exceptional action on our part.
I’m ashamed of all the excuses I’ve come up with to postpone – or to avoid entirely – new ventures that required more of me than I was willing to give. Ugh – I grieve those lost opportunities when I think of the benefit to me and others such ventures would have provided. But crying over spilled milk won’t undo the past.
Going forward I can commit to seizing new opportunities and disregarding the emotional and physical hurdles in my path.
I can, but will I?
Will you?
App-licable to retirees
Some of us have owned smartphones for quite some time now. Others have finally joined the 21st century, just recently retiring their Motorola flip phone. (Love you Honey!)
Sure, the latest and greatest phones are used to make calls – oddly enough not as frequently as we send texts – but they can also help us through our day-to-day schedules. Jonah Bromwich, New York Times columnist, provides retirees with information on apps we might find quite useful. Read the rest of this entry »
Renaissance – Baby Boomer style
Abby Ellin, New York Times, writes about the late-life renaissances that many Baby Boomers experience when they re-decide what they want to be when they grow up.
When we were younger, many of us drifted into college studies and post-college careers that may or may not have been our first choice but at least paid the bills. As we near retirement, or even years before retirement, we wonder, “Is this all there is?” And when we wonder like that, we get dissatisfied, and when we get dissatisfied – if we’re gutsy – we’ll do what it takes to become satisfied. If we don’t attain our desired level of satisfaction, we’ll languish: lose vitality, grow weak, and become feeble. My oh my, is that what you want? Read the rest of this entry »
Neurological hell
NFL players are choosing early retirement. Is the future of football under scrutiny?
http://wapo.st/1xvFq9p
I LOVE football. Actually, I love the Seattle Seahawks, but I cringe each time a player gets pummeled in the head.
The above Washington Post article suggests American football may some day fall away as a sport, similar to what happened to boxing. Many years ago, I remember boxing being the sport that people gathered around their televisions to watch, whether at home or in the bars. I can understand why nowadays most of us would rather not watch two people bash each other in the head; a head with virtually no protection in the boxing ring. But even with all the sophisticated helmet and body gear covering football players on the field, players are still sustaining concussions that could sooner or later place them in neurological hell. Read the rest of this entry »
My Heroines: International Women’s Day
International Women’s Day: My Heroines. My heroines may look different from those posted in the attached article, and they certainly will look different from those you may consider as your heroines. That’s a very good thing because we all have different takes on the subject but the outcome is the same: heroines we admire that made a difference in their world, and in ours.
My mother: Patricia Constance Conroy Desonier was born in 1917 and died in 1994. Mom was a fair disciplinarian to us three kids and a fabulous confidant as an adult. To lose her when I was forty years old was a devastating loss for me. My biggest disappointment is that she didn’t live long enough to meet my current husband, an extraordinary man whom I met – almost exactly to the date – two years after mom died. Words to describe my mother (in addition to the above): talented musician, seamstress, faithful and supportive wife, involved parent, community activist, volunteer extraordinaire. Read the rest of this entry »
Requiem for the status quo
Allow me to reintroduce myself:
My name is Irene. I am the author of the upcoming novel Requiem for the status quo.
Some of you know me as a family member, friend, or casual acquaintance. Others are familiar with me as the author of this blog, a writer who has posted hundreds of articles over the past several years. Still others know me because of my professional connections as a volunteer advocate for vulnerable adults living in long-term care (LTC) facilities, or because of my years as an Alzheimer’s Association support group facilitator.
I’m here to announce that in addition to being the family member/friend/acquaintance/volunteer/co-employee of the past and present, I am also the novelist who has something to say.
“Oh my gosh Irene, I didn’t realize your book was already published!”
It’s not, but I’m actively pursuing agent representation by contacting several agents per day until I no longer need to.
“Why should people be interested in your book?”
Because I have an engaging way of writing about Alzheimer’s disease – a disease that will affect each and every one of you because until a cure or vaccine is developed to eradicate it, this disease is here to stay. Whether a person’s diagnosis falls into the actual Alzheimer’s category, or into one of several other dementia such as: vascular, lewy body, frontal temporal, Parkinson’s, or dementia resultant from a traumatic brain injury (TBI), there’s no escaping its effect on the unpaid caregiver (that’s you and me) and the person being cared for (spouse, partner, mother, father, brother or sister).
And here’s a fact of which some of you may not be aware: Alzheimer’s is not just an older person’s disease; an increasing number of people are being diagnosed well-before the age of 60.
“Say it isn’t so, Irene.”
I can’t do that. What I can do, however, is tell you a wee bit about my book: Read the rest of this entry »
A loved one’s move into memory care
An Alzheimer’s Love Story: The First Day of the Rest of My Life.
I hope you’ll watch the attached 4 minute video that chronicles a husband’s experience of moving his wife into a memory care facility.
This is not a decision that comes easily to anyone.
Think about it. You’ve spent decades living with the love of your life. Your days are structured around each other; the ebb and flow of all those hours are what you crave and enjoy.
You are faced with what will most certainly be an irreversible decision to leave your wife in the hands of others. You feel guilty, regardless of how well-informed and appropriate the decision. Read the rest of this entry »
Respect the crabby old lady
When I’m an old lady and end up in a care facility, I sincerely hope my personality and attitudes don’t relegate me to the category of “that crabby old lady in Room 210.” Have you visited someone in a nursing home or hospital and had the distinct feeling that the patients were treated like numbers or medical cases? You know what I mean: “the urinary tract infection in 4A” or “the decubitis in South 6.” Wow, that’s a horrible thing to consider for myself: the history of all my years on this earth being characterized as a medical condition or an intolerable behavior resulting from that condition.
What about my history of being a pretty darn good mother/wife/business person/neighbor/community volunteer/friend? Doesn’t that person still exist within the body occupying that bed?
Let’s all take the time to read this poem that depicts such a scene. Gender-wise, this could be about a crabby old man as well. Read the rest of this entry »
When being a control freak is a very good thing
Think of a very uncomfortable subject that you don’t like to talk or even think about.
By any chance was that subject death?
If it is, you’re not alone. Given the option of getting a root canal or talking about our eventual demise, many would leap into the dental chair. Why? What’s so yucky about death? It’s an inevitable outcome of our life experience here on earth. To my knowledge, no one has successfully hidden from the grim reaper when it came knocking at their door. So what’s the big deal? I’ll tell you what’s the big deal.
Entering the arena of vulnerability
Now that my novel is finished, I decided to re-post an article I wrote about daring greatly. Everything we do requires a certain amount of risk: walking across the street, going on a 1st date, changing careers. But if we don’t take a calculated risk, we’ll never see the inside of the arena; we’ll never know what we missed.
I hope you enjoy reading this article that served to remind me that as I start to look for agent representation for my first novel, I should do so with the confidence that my vulnerability will one day pay off.
It’s not the critic who counts; it’s not the man who points out how the strong man stumbles; or where the doer of deeds could have done them better.
(Photo credit: Wikipedia)
The credit goes to the man who is actually in the arena, whose face is marred with dust and sweat and blood, who strives valiantly and who errs and fails, and is sometimes victorious. But when he fails, at least he does so daring greatly.
The above is an abbreviated quote from Theodore Roosevelt’s speech, Citizenship in a Republic a/k/a The Man in the Arena, delivered at the Sorbonne in Paris, France, on April 23, 1910.
Brené Brown, PhD, paraphrased the above when appearing on Oprah Winfrey’s show, Super Soul Sunday. I admit – I’m addicted to the types of shows that challenge the way I think, and/or that validate the way I think. This particular show that…
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A Super Bowl loss is not a matter of life or death
It may feel like that, but it’s really not. Win, Lose or Draw, it’s (only) a Game – Not a Matter of Life or Death – by Dietrich Gruen (Hospice Chaplain).
Dietrich Gruen, the author of the attached article, is a Green Bay Packers fan. My team, the Seattle Seahawks, beat his team in the game he references in his attached article. When I’m on the receiving end of a victory, I’m always cognizant of the fact that when I’m celebrating a win, there are those who are bemoaning a loss.
Well, let me tell you, the football field is a great equalizer, as was evident yesterday when the Seahawks lost the Super Bowl to the New England Patriots. It was a devastating loss, but it was not life-changing.
Sure, it may change some aspects of some of the Seattle team members’ lives, but it won’t alter what is truly valuable: life itself. With several hours separation between Seattle’s shocking loss and now, I’m able to re-categorize that loss as a speed bump. Read the rest of this entry »
Caregiving and the Super Bowl
This is NOT an article about football. Anyone who has a loved one for whom they provide care – whether hands-on or peripheral – knows all too well how unpredictable life can be with that 24/7 responsibility. We’d all like to think that special occasions and events are immune from medical emergencies and other disasters, but all too often that is not the case.
Welcome to the life of a caregiver.
I honestly didn’t think I had another football article in me but the unfortunate circumstances in my best friend’s life have proven otherwise. Read the rest of this entry »
Why I Volunteer For Research, Part II
This 2nd part in Ann Hedreen’s series about being an Alzheimer’s research subject will both make you cringe – ugh, lumbar puncture – and will make you proud to know that someone such as Ms. Hedreen exists in this oftentimes self-centered world in which we live. As someone whose father died from Alzheimer’s complications, I am most appreciative of her efforts. Although monetary donations are greatly needed, for me I find it far easier to open my wallet than to offer my spine for research. Not only did Ann offer her spine, she did it more than once.
by Ann Hedreen
Continued from last week…
Although being a control subject in Alzheimer’s research studies involves plenty of memory tests, there are neurological tests too. I was tickled with feathers, tapped on the elbows and knees, peered at with a penlight in my eyes. And there were psychological questions: On a scale of one to ten, do you usually feel life is worth living?
I was weighed and measured. I gave blood. I peed in a cup. My family tree was drawn, with special attention to anything that might be relevant: Grandma Cere’s Parkinson’s disease; Great Aunt Eine’s Alzheimer’s disease, which started in her seventies. I was approved for a lumbar puncture, more commonly known as a spinal tap, and a week later, I came back and curled up in a ball while two tablespoons of fluid were extracted from my spine with a long quivery needle: two…
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Throw a victory party, not a pity party, for yourself
Start the new year by celebrating your successes | Health | The Seattle Times. Dr. Tony Hacker’s article in the January 18, 2015 Seattle Times newspaper mirrors my thoughts: celebrate even the smallest of victories in your life.
Some of us feel our lives should be characterized by humility rather than pride. Sounds admirable but can lead to self-deprecation and result in drawing more attention to ourselves than not. One of the ways in which we practice this brand of humility is by being critical of ourselves when we don’t measure up to our great expectations. “…(I)f we set our standards too high we never feel that what we do is good enough.” What an unfair bar we set for ourselves. Read the rest of this entry »
Why I Volunteer for Research, Part I
In this particular instance, the thought of being a human guinea pig feels very, very comforting. Being able to help find a cure for Alzheimer’s that goes beyond monetary contributions sets up a legacy for many as a result of Ms. Hedreen’s extraordinary efforts. Ann Hedreen’s book is available on Amazon and at most retailers.
by Ann Hedreen
Here are two of the many things that scare me: having to change a tire all by myself (because I’ve never done it) and camping in bear country (because I have). Here are two of the few things that don’t scare me: taking pop quizzes and getting poked with needles. These slim categories of fearlessness make me a natural volunteer for Alzheimer’s research.
My mother grew up in Montana and nothing much scared her. She not only changed tires, she put chains on tires by herself, tying them together with shoelaces if they didn’t fit right, lying under the car in a snow storm. As for camping, after a twenty-year hiatus, she decided to try it again—solo, with four children in tow. We didn’t see any bears. The worst thing that happened was that we forgot spoons for our cereal. The best thing was being with Mom…
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Living: the ultimate team sport 