Keep in mind that although he writes about our elderly parents (those over age eighty), the principles he puts forward apply equally to a spouse or partner, sibling, or good friend. If you are invested in a loved one’s well-being, please consider reading this book. Bear with me as I provide a lengthy quote that characterizes this physician’s concerns:
Families must come to appreciate that “medicalized” care is very different in nature and cost from the personal health support and hands-on caring so essential for your parent. In reality, our American medical system is best at managing acute crises and supplying excellent specialized elective procedures – joint replacements, organ transplants, eye improvements, cosmetic changes – all modern technological wonders.
As for the more ordinary and common management and support of elders and families dealing with chronic problems of aging and slow-moving diseases, our medical care system has not done so well. Some elderly patients are fruitlessly subjected to what some critics now call “death by intensive care … “
Now let’s put ourselves into the shoes of a vulnerable adult sitting in an examination room waiting for the almighty doctor to walk through the door. Answer this question for me: When was the last time you personally felt rushed during a doctor’s visit for yourself? (Mine occurred last week – but I digress.) Many of us think faster than the vulnerable adult, are able to keep track of what the doctor is saying, and have sufficient cognitive awareness to discern the doctor’s recommendations or treatment options. Dr. McCullough wonders how an elderly person could possibly be treated effectively during a fifteen-minute office appointment by a doctor who peers into a computer screen, barely acknowledging the presence of the patient. How can that physician possibly treat the complexities of an elder’s needs if he/she is not fully engaged in examining the patient? Most often, the elder patient will not volunteer information that is not in direct response to a doctor’s insightful inquiries. They are of a generation that does not question a medical professional – “after all, they have the medical degree, not me.” The elderly patient may exit the exam room having not even discussed his or her medical concerns – simply because the doctor didn’t give her an opportunity to do so.
Dr. McCullough emphasizes how important it is that each vulnerable patient have a “Circle of Concern” – a group of people that provides steady support and insight into the patient’s needs. That group may consist of immediate family members, friends, neighbors – anyone dedicated to providing an “active, extended advocacy partnership” that will not only attend to the patient’s technical needs, but also the emotional and human needs that are perhaps in need of greater attention.
My article, Caregiving: The Ultimate Team Sport, promotes a similar type of caring, using the analogy of a team’s various members, and their collective roles on the team. Each person has a skill that supports the other team members’ skills. The Circle of Concern serves this same purpose.
Perhaps we should all consider how we would like to be treated by others if/when we become dependent upon their contributions to our quality of life. Dr. McCullough offers this snippet of Tibetan wisdom: Make haste slowly.
Not all decisions are emergent ones. Isn’t a person’s quality of life worth stepping back so that appropriate, “guided” decisions can be made? Rushed judgment should not take the place of carefully considered care. As Dr. McCullough states, “Time to begin to ask for more time. Short of a crisis, don’t be rushed.”
The above post is very encouraging – only the title of my re-posting is moribund. My fellow blogger beautifully captures how fleeting life is as he commemorates the two week anniversary of the birth of his son.
Beautifully written.
Exquisitely described.
A welcome respite in my day.
Thank you “The Matticus Kingdom”
From a fellow blogger whose work is primarily focused on the elderly. I wouldn’t have it any other way – it’s what I do – but I always welcome the rays of sunshine that the youngest among us can shed on our lives.
It’s not the critic who counts; it’s not the man who points out how the strong man stumbles; or where the doer of deeds could have done them better.
(Photo credit: Wikipedia)
The credit goes to the man who is actually in the arena, whose face is marred with dust and sweat and blood, who strives valiantly and who errs and fails, and is sometimes victorious. But when he fails, at least he does so daring greatly.
The above is an abbreviated quote from Theodore Roosevelt’s speech, Citizenship in a Republic a/k/a The Man in the Arena, delivered at the Sorbonne in Paris, France, on April 23, 1910.
Brené Brown, PhD, paraphrased the above when appearing on Oprah Winfrey’s show, Super Soul Sunday. I admit – I’m addicted to the types of shows that challenge the way I think, and/or that validate the way I think. This particular show that aired on OWN March 17, 2013, floored me. I needed it because I’m in the arena right now while in the midst of writing my first novel.
What if I don’t get representation by an agent?
What if I secure an agent, but the agency can’t sell it to a publisher?
What if my novel gets published, but it gets panned by book critics everywhere?
I guess if that happens I will need to be glad that I had the confidence to try; to dare to think that I could get published in the very competitive world of writing. The following is what Brené Brown said to herself – and perhaps to others – after she was severely criticized after delivering a speech at a conference a few years ago:
If you’re not in the arena getting your butt kicked, I’m not interested in your feedback.
I like her spunk because with that statement she’s basically telling her critics to suck it if they don’t care for her work – because at least she put herself out there; she showed up; she tried. Ms. Brown says that there is no innovation and creativity without failure. We all must take the risk to fail when we’re doing something that we know without a shadow of a doubt we were meant to be doing.
How ridiculous of me to be so concerned about what might happen, when I’ve yet to even finish my manuscript. I believe in what I’m doing. I’m proud of my motivation/mission statement for writing my book. Oh my God – I’m writing a book! I don’t know if it will get published but that’s a concern for which I don’t have time right now. I am only half way through writing the manuscript so I guess I’ll just have to keep showing up at my computer and get the darn thing done!
What about you? What brings you to the arena in which you are now standing? Or what prevents you from entering the arena? In the very same second that you decide to enter the arena, it’s okay to be both brave and scared.
Maybe your arena is changing your career path; or getting into – or out of – a relationship. Perhaps your arena is standing up for what you believe in and daring to express those beliefs.
You can’t get to courage without walking through vulnerability. Don’t wallow in regrets – walk into the arena without fearing failure or success.
In January of this year, I provided a workshop for middle school students (8 to 12 years old) during their school’s annual Health Fair. Given my predisposition to focus on the older population during my career, I was asked to bring forth a topic that might resonate with, and educate, the children who attended my workshops; something about old people, a topic about which they supposedly knew very little.
The title of my workshop was Your Grandparents are Cooler than you Think. My goal was to bridge the gap that exists between those aged sixty years and older, with the younger-aged set. My sophisticated, yet relatable, PowerPoint presentation offered many comparison and contrast examples that tended to disprove that any gap exists between such disparate groups. (That was my goal.) One can’t deny that some obvious differences exist, but the similarities with subject matters that really count are quite revealing. First, I offer you a quote from the Atlantic Journal, challenging you to guess when this particular entry was published. I read this same quote to the middle school students.
The world is too big for us. Too much is going on. Too many crimes. Too much violence and excitement. Try as you will, you get behind in the race in spite of yourself. It’s a constant strain to keep peace … and still, you lose ground.
Science empties its discoveries on you so fast that you stagger beneath them in hopeless bewilderment. The political world now changes so rapidly, you’re out of breath trying to keep pace with who’s in and who’s out.
Everything is high pressure. Human nature can’t endure much more!
If you guessed that the above quote was ripped from today’s headlines – or thereabouts – you are incorrect. These vital words were written 180 years ago, published on June 16, 1833. The common sentiments of that time seem almost indistinguishable from what is in the minds of people today. Amazing. I guess we’re not much different from the people living in 1833.
(Photo credit: Wikipedia)
One of the topics these middle schoolers and I discussed was Bullying. The students were divided into eight groups of five each and asked to discuss the similarities, if any, of this globally prevalent problem. Their insights were astounding. Here is my paraphrase of some of their comments:
I think bullying in the olden days was more physical, whereas today, it’s psychological in nature.
Bullying a long time ago was limited to one-on-one interaction. Today, if just one person is bullied, that act is broadcast to thousands just by the push of an “enter” key on ones computer.
I think there is little difference between bullying now, versus then. You see, the motivation is the same; the intent to make someone else feel small; to exert ones power over another. It doesn’t matter what that looks like or when it took place, the motivation remains the same.
I was humbled by these students, but I should not have been surprised by their astute thinking processes. Perhaps the person who learned the most during my workshop was the presenter. I thought I needed to convince them of how similar their elders are to them. I guess the joke was on me.
The inspiration to write this article can be attributed to the driver behind me on my way home from the store today who bullied me by riding my bumper the entire way home. My going the speed limit must have been quite an affront to her sensibilities. (I couldn’t pull over to the side of the road but she had plenty of opportunities to pass me – evidently choosing not to do so.) At almost sixty years of age, I felt threatened, powerless, and humiliated.
Being a mind reader would greatly benefit every parent of a newborn baby, and all caregivers of those with Alzheimer’s or other dementia. The article attached above, by Blogger Kathy Ritchie, is a thoroughly relatable article that is raw in its presentation, but wreaking with truth because of that rawness.
(Photo credit: Wikipedia)
Reading Kathy Ritchie’s article I was instantly reminded of a line from the television series, Up All Night, wherein new parents, played by Will Arnett and Christina Applegate, fail miserably in their efforts to get their infant daughter Amy to fall asleep and stay asleep. They try everything they can think of to address the baby’s distress: diaper changing, giving her a bottle, reading stories, making funny faces – you get the drill. In desperation, Will Arnett finally says to his infant daughter, “We’re on your side!”
When you can’t force understanding on someone you’re taking care of, you wing it or you pull every trick out of every “How To” book written on this task of caregiving. Yet more often than not, even with all the resources available at your fingertips, you make little headway in your attempts to meet the emergent needs your loved one presents to you. Or what works one day (or hour) may not work the next day. Why? Because Alzheimer’s and other dementias are very unpredictable diseases; and people with dementia are unique individuals, equally as unpredictable. There is no one formula for how to respond to any given situation.
As Kathy states in her article, “You have to work very hard to find the funny.” I think many of us, given the choice, would settle for finding all the right answers and do without finding the funny – but the funny incidents are a great addition to ones day.
Caregivers of the world – you are not alone and if you need someone to tell you what a great job you’re doing, I’m telling you right now – YOU’RE DOING A GREAT JOB!!!
Your journey is filled with speed bumps and ruts in the road, but you continue on that path anyway because of your commitment to your loved ones. After all, they had no choice in the matter when they ended up with Alzheimer’s or other dementia. You’re both innocent victims.
Read the above article if you’re not convinced that traveling with a loved one who has dementia can be challenging. Or read it if you too have experienced this particular type of stress because you have already ventured into the travel hell that this Blogger describes. I make that statement with no disrespect intended. It doesn’t matter how much you love your co-traveler, it doesn’t matter how wonderful your destination – getting there is not without its mishaps and aggravations for both the caregiver, and the cognitively impaired traveler.
(Photo credit: caribb)
Then there is the other side of the coin: imagine that you are a person with mid-stage Alzheimer’s or other dementia who is not accustomed to staying put – you actually wander constantly when you’re on the ground – and you’ve been put on an airplane by yourself and you have no concept of what is taking place. You don’t have the capacity to understand that this metal tube in which you are sitting is a confined space and trying to “get home” is not an option. If you can’t imagine that scenario read the attached article, Alzheimer’s “exit-seeking” behavior at 35,000 feet, an article I wrote shortly after returning from Bar Harbor, Maine in October 2012.
In my post, President Obama says the “A” word: Alzheimer’s, I provided some Alzheimer’s statistics that focus on those who are predicted to be diagnosed with Alzheimer’s or other dementia in the years to come. I also talked about caregiver statistics.
One statistic that really resonates with me is the following: a new caregiver is set into action every 33 seconds because someone will develop Alzheimer’s every 33 seconds. In actuality, the stats are far greater than that. Caregivers are “created” every second of the day because there are countless diseases requiring the assistance of someone just like you and me – an unpaid caregiver for a loved one. I use the distinction of “unpaid” so as not to be confused with those who work as caregivers in the health care industry.
The following statement is attributed to former First Lady of the United States, Rosalynn Carter:
There are only four kinds of people in the world – those who have been caregivers,
those who are currently caregivers,
those who will be caregivers, and
those who will need caregivers.
I really don’t think there’s any way around it. How about you? Have you dodged the caregiver or being-cared-for bullet yet?
Lest you think that Alzheimer’s has nothing to do with you, look at the following statistics provided by the Alzheimer’s Association:
By the year 2050, nearly one million new cases will be diagnosed each year – that’s one American developing Alzheimer’s every 33 seconds. Taken further, that most likely equates to nearly one and a half million new family caregivers each year – considering that at least one family member will be involved in managing a loved one’s care;
Ten million Baby Boomers will get Alzheimer’s;
On average, 40% of a person’s years with Alzheimer’s are spent in the most severe stage of the disease;
The number of Americans that die each year from Alzheimer’s disease has risen 66% since the year 2000;
Alzheimer’s is the sixth-leading cause of death in the United States;
Today, there are no Alzheimer’s survivors – none.
Please take time to read the article I’ve attached above and consider the following: We are going to pay for Alzheimer’s one way or the other – now, or later.
This is a disease that will affect you, your children, your grandchildren, great-grandchildren, and beyond. Burying our heads in the sand won’t solve anything. Please consider donating to the Alzheimer’s Association as well as contacting your state’s congressional leaders asking for greater federal funding for Alzheimer’s research. Why? Because of this staggering statistic:
According to the National Institute of Health, the federal government currently spends much less money on Alzheimer’s research, prevention, and cure than on other conditions such as cancer, heart disease, and HIV.
The above article recounts the personal feelings of a blogger who experienced his first Valentine’s Day without his wife who died on July 4, 2012. For those of us not experiencing such a loss, we may too readily try to point out that this “holiday” is just a Hallmark greeting card day, or florists and chocolate manufactures making lots of money day. It’s more than that – especially when so many memories are tied to the event. Whenever a “first time without” comes around on the calendar, the dread leading up to that date can be very troublesome, as it was for this blogger.
I recently watched a show in which interior designer, Nate Berkus, said the following about the things we have in our lives:
The truth is – that things matter. They have to because they’re what we live with and touch each and every day.
They represent what we’ve seen, who we’ve loved, and where we hope to go next.
They remind us of the good times and the rough patches and everything in between that’s made us who we are.
Events, celebrations, and the like provide the same type of life-shaping experiences. That’s why today is far more than a commercial and financial windfall for the greeting card, floral, and chocolate industries. Without someone with whom to celebrate the focus of this day, it becomes a non-day from which you can not escape. Thank God for the memories, the photos, even the many things around the house that represent the touch and essence of our Valentine.
The article above, written by blogger Richard Kenny, illustrates his ability to adapt to his mother’s dementia – especially when doing so involves carrying on a conversation with her. I love how Richard has figured out how to get around the frustrations that can exist when “normal” and meaningful conversations are few and far between – and nonsensical ones become the norm.
My dad and I thirteen years ago; and seven years before Alzheimer’s took him away from us.
Going with the flow is the rule of the day, the month, and the year, if you want to avoid stressing out when trying to converse with someone who is not able to enter your reality. The Alzheimer’s Association encourages this mantra: “If you don’t insist, they can’t resist.” Go with it – and you just might enjoy yourself!
When was the last time you just soaked it all in? I’m not talking about soaking in the sun’s rays – hard to find in most places at this time of year anyway. And I’m not referring to settling your weary body down into a relaxing hot bath.
How about today, you decide to soak in all the good that is in your life?
But you say, “I have no time for that because the bad in my life far outweighs the good.” My response to that? Perhaps you need to even out the scales.
Right now, make a concerted effort to write down three things for which you can be grateful; things that encourage a smile on your face; things that make you forget – even for a second – all that weighs you down.
Now celebrate those three things by soaking in the feather light feeling they create. If that sensation is something you’d like to feel again, well – you’re in charge. Set aside time each day to allow the good to displace some of the bad.
If you celebrate even the smallest of good aspects of your life, you may discover that countless mini-parties await you. What have you got to lose?
A very brief blog entry from a fellow blogger. Some of you on your caregiving journey – or those who have recently ended that journey – will understand what is being said here.
In a recent NY Times post, Catherine Rampell writes about how the economy is affecting Baby Boomers; more specifically that it’s not just a matter of postponing retirement, it’s the need to hold down more than one job to meet the daily – and future – essentials of their lives. Ms. Rampell is quick to point out, however, “(I)n the current listless economy, every generation has a claim to have been most injured.” Certainly that seems to be the case as I have heard that Generation X and the Millennials have complained that Baby Boomers are to blame for the state of the economy – present and future.
Crowd gathering on Wall Street after the stock market crash of October 1929. (Photo credit: Wikipedia)
Of this I am certain – each generation before us, and every generation after us, will contribute positively and negatively to the world as we know it. I have to believe that every generation has pointed their fingers at generations other than theirs, and talked about the good, the bad, and the ugly that permeates their times. Let’s look at those generations as posted on CNN, American Generations Through the Years: (figures and personalities provided by the Pew Research Center and CNN)
G.I./Greatest Generation: Pre-1928; Kate Hepburn and George H. W. Bush
Silent Generation: 1925 – 1945; Martin Luther King, Jr. and Tina Turner
Baby Boomers: 1946 – 1964; Oprah Winfrey and Michael Jordan
Generation X: 1965-1980; Jay-Z and Tiger Woods
Millennials: Post 1980; Christina Aguilera and Mark Zuckerberg
We’re all struggling in some way, and we’ll continue to struggle as we mimic the overall consensus felt through all generations. There are carefree times, and then there are all the rest of our days, and we get through them, because we must. We’re better for it, but it doesn’t feel like that while we’re going through it. I have to look to Brendan Marrocco, a twenty-six year old Iraq war veteran who lost all his limbs because of a roadside bomb in 2009. In an Associated Press story, in the Seattle Times, Brendan said he could get by without his legs, but he didn’t like living without arms. “Not having arms takes so much away from you. Even your personality … You talk with your hands. You do everything with your hands, and when you don’t have that, you’re kind of lost for a while.”
The end of January 2013, six weeks after getting a double arm transplant, Brendan said the following at a coming-out press conference about how he’s made it thus far:
Just not to give up hope. You know, life always gets better, and you’re still alive. And be stubborn. There’s a lot of people who will say you can’t do something. Just be stubborn and do it anyway.
Sobering words, and ones that force us to reassess our current situations. I’m not trying to minimize what you might be going through, nor of what’s going on in my life. It’s just that I personally can’t help but focus on Brendan’s plight and then consciously turn my eyes away from my me-ness, and towards other-people-ness. Is Brendan worse off as a Millennial who lost so much but gained a huge dose of intestinal fortitude, defined as strength of character; perseverance? If it were me, I would be wallowing in a very deep pit of self-pity. That doesn’t seem to be Brendan’s current location.
The article above by a fellow blogger who recently lost his wife due to complications of dementia, echos my sentiments about the need to invite others to join you on your caregiving journey. Walking the path alone is not only inadvisable, but in most instances, it’s impossible. With so many unknowns waiting around the corner, every caregiver needs to enlist the help of those who can effectively support him or her, and as a result, provide much needed assistance to the one being cared for.
(Photo credit: Wikipedia)
I’m a firm believer of team support, as I stated in my article: Caregiving: The Ultimate Team Sport. Another article, Solo Caregiving, provides encouraging ways in which to recruit team members when there are no family members on which to rely.
Taking care of yourself is not selfish. Developing a team of caregiver-helpers goes a long way towards taking care of numero uno – YOU!
I’ve attached, above, a link to a fellow blogger’s site. The message is short and instructional.
What resonated with me about the statement provided in the link, is that each of us has experienced the after effects of walking in the midst of someone’s bad day and we inadvertently become the recipient of that bad day’s vibes. And sometimes the shoe is on the other foot. It’s unavoidable. I guess that’s why the words of wisdom provided in the link, are words that we all need to take to heart.
The above link, from a December 2012 NBC News report, addresses the conversations that many of us – well, many of you anyway – still need to have with your parents. (My mother died in 1994, my father in 2007 – those conversations have long since taken place.) In many respects, my brother and sister and I were fortunate because in our family, the topic of sickness and death seemed no different from discussing that night’s dinner menu – perhaps even easier. That’s just how it was in our household growing up. But I’m aware that universally, that is not the case.
GIFTS. Who doesn’t like receiving gifts? Most of us get a kick out of being handed a package with a fully wrapped surprise within and told to “open it!” “What, for me?” Yes – for you. Perhaps the gift is something we didn’t expect, or we’ve sufficiently hinted our exact wishes and finally someone gifted us with that long sought after item. Fun, isn’t it? Someone cared enough to gift you with something you’ve always wanted or you receive something that you didn’t know you wanted, but it turns out, you do!!!
THE GIFT THAT KEEPS ON GIVING. A few years ago, I succeeded in convincing my wonderful hubby that we needed to put together our “last wishes” which of course includes a Will, but more importantly, an Advanced Health Care Directive. My husband is one of those who isn’t exactly comfortable sitting around the dinner table – or any table for that matter – talking about death. I get that – I really do. So I couched this discussion by talking about what a gift my parents, and his parents, gave their families by specifically outlining what to do when it came time to do something.
When your loved one is heading towards the great beyond, it’s comforting to already have his or her wishes on paper and ready to execute – no pun intended. I’ll use my father as an example. My father died at the age of 89 on October 13, 2007. Official cause of death was prostate cancer but advanced Alzheimer’s was a huge factor in his death. There is no way my father would have a) survived cancer surgery; and b) even wanted cancer surgery at that stage of his dying. His Advanced Health Care Directive very clearly stated his wishes and us three siblings had copies of that document and respectfully went along with his wishes. Dad saved us the stress of making an extremely difficult guesstimate of what he would have wanted in the midst of that situation. His dying was already an emotional experience so I can’t imagine having some sort of discussion about when to stop treating his illnesses.
The legal document, drafted years earlier, was drafted for this specific time. Even if dad had been conscious – and he was not – his dementia would have prevented him from making a well-informed decision. If ever there was a time when dad’s gift was ready to be presented – this was it. That gift allowed us to spend our last hours with him simply loving him; singing to him; and telling him how grateful we were to have him as our dad. Beautiful.
You don’t have to wait until you are 50 years or older to put your wishes in print. Old people aren’t the only ones dying who require some sort of affirmative decision-making. Someone in their thirties could be in a horrific vehicle accident and end up lingering on the precipice of death. A forty-year old person could have a stroke and be on that same precipice. It’s never too early to do something about your exit from this world as we know it. You can always change your mind later – you decide that you do, or do not, want hydration, so you revise the document. That’s the beauty of word processing – it’s changeable, and once you get that revised version documented by witnesses, you’re good to go! Literally.
If you choose to use an attorney, you can go through the local Bar Association for referrals or you can attempt the same outcome by doing it yourself. Many office supply stores have boiler plate legal documents you can readily purchase – but be certain to purchase the forms that contain the required legal verbiage for your state or territory. Additionally, organizations such as Compassion and Choices provides forms that you can download from their website, even a form that has a Dementia Provision. Who woulda thunk? Not me.
The Holidays may be over, but the season of gift-giving is not. Won’t you consider giving your loved ones one more gift this year?
Attention one and all! There’s a new website out that will be addressing the challenges of being a caregiver. The author/owner of this website, Don Desonier, is coming from the perspective of someone who very recently lost his spouse as a result of dementia complications.
Don’s five-year journey as a caregiver provided him with heart-rending experiences from which he garnered exceptional insight and wisdom. I personally look forward to his article postings – so much so, that I became his first blog follower. At the very least – why don’t you check out the website and visit from time to time. I feel confident that you’ll walk away feeling renewed with the realization that you’re not alone, and somehow or another – there’s a way through this difficult journey that you’re on.
I commend this Blogger, and I love him. Don is my brother and he was an extraordinary caregiver to his wife of almost twenty-five years.
In Washington State, there are currently 150,000 people diagnosed with Alzheimer’s Disease. In the rest of the Nation, more than 5 million have Alzheimer’s disease. That number will jump to 16 million by the year 2050. Most of us envision an elderly person with some sort of dementia. We might even expect it to occur in those 85 or older. Listen to me Baby Boomers – young and not-so-young – the number of people diagnosed before the age of 65 – known as early-onset Alzheimer’s – is more common than you think. In the United States alone, those with early-onset disease currently number 200,000.
That number decreased by one when my exceptional sister-in-law died on July 4, 2012 at the age of 69. Just about the time that Baby Boomers should be anxiously making their final retirement plans – such as was the case with my brother and his wife – they are instead dealing with the challenges of managing a disease for which there is no cure.
Sixty-four year old Lon Cole, a resident of Puyallup, Washington, is one of the 200,000. The local NBC affiliate, King5 in Seattle, Washington, ran a touching story about this gentleman. I hope you will take the time to look at this news article: Alive and Thankful: Living with early-onset Alzheimer’s. Those who have managed, or are currently managing, the care of a loved one with early-onset disease, will be touched by this family’s story.
I have been asked to hold workshops at two different Middle School/Junior High Schools in the next few weeks in an attempt to show that the gap between us Baby Boomers and the pre-teen/young teen population isn’t as big as one might think.
Photo by KF. (Photo credit: Wikipedia)
The age group of this audience is not one with which I have ever worked but I absolutely love stretching my skill set so I’m very excited to take on this task. I hope to deliver a workshop that engages the younger age group and leaves them with the tools needed to be more comfortable connecting with people in older age groups.
Description of the workshop, submitted to the schools: There is so much to be shared between generations, but we often miss out because we feel as though we speak different languages – and sometimes we do. For example, when you say that something’s “filthy,” your grandparents might have said it was “boss.” Believe it or not, your grandparents, and your great grandparents, were your age once so you do have that in common, and while it’s true that there is a lot to learn from older generations, they can learn a lot from you, too.
That’s where you come in. We all know that there are obvious differences between the two generations, given the advancement of technology and the like, but I think a closer look at those differences brings about the realization that many similarities exist but they are just dressed differently.
I covet your input so please feel free to leave some suggestions and/or comments below.
In the article linked above, a fellow blogger provides an exquisite sampling of the types of circumstances some life journeyers may be going through resultant from losses that have placed them in a difficult transitionary time in their lives.
Chances are all of us will experience more than one of the transitions that Don frames in this article that so delicately – and movingly – touches on the topic of grief and loss that occur when “first” occasions without someone come around on the calendar.
May all of you receive the comfort you need during the “first” times on your grief journey.
It’s happening again. Churches are being encouraged to get involved in politics by using their worship space as the venue in which worshipers can sign petitions that speak out for, or against, certain governmental policies.
In April 2012, prior to November’s General Election, the Roman Catholic Church in Washington State, and other statewide mainline Christian denominations, held petition signings during their worship services in an attempt to shoot down Referendum 74 which was drafted to acknowledge marriage equality between men and women who chose to marry someone of their own gender. Politics invaded that worship space, thus blurring or obliterating the line that separates spiritual church practices from government policy.
(Photo credit: Wikipedia)
Earlier this week, a local Seattle area church capped off their worship service by offering Letters to the President for church members to sign supporting restrictions regarding gun control. Today, President Obama announced the formation of a commission on gun control and encouraged the American people to help change the current gun laws in an effort to reign in gun violence, and to focus on improving access to mental health services. You’ll hear no argument from me on that effort – I might sign any worthwhile and well-thought out petition that is not being promoted by any religious leader and not being made available in any church organization’s worship space. In today’s statement, however, the President asked for the help of mothers, fathers, sisters, and brothers, Pastors, and the like, to be a part of this effort because he can not do it by himself. It is my hope, however, that these efforts will not be cloaked in the trappings of religious beliefs or precepts. Standing at the pulpit trying to persuade church attendees to support more rigorous gun control measures – or to not support such measures – is an abuse of the pulpit.
Surely there are other non-pastoral men and women who can provide the same well-thought out petition signing opportunities centered around gun control and mental health issues in more public and civic settings.
(Photo credit: Wikipedia)
Retail locations, libraries, city and county government offices, and – dare I say it – school campuses – come to mind as more appropriate locations for such efforts. Those close to me know that I am a well-read, spiritually sensitive, and globally aware human being. I’m outspoken and painstakingly fair in what I believe and in what I support, but on this issue I can not back down: anything politically motivated must be separate from all that is housed within the walls of ones worship space. You don’t have to believe as I do, that’s your right. I am simply, yet passionately, proposing that any efforts such as were introduced today, not be cloaked in the vestments of religion.
Grief – when one experiences a loss, there is no way around this emotion. It has no clearly defined end. It manifests itself differently for every individual. The writer of the above article shares the personal side of how this emotion presented itself in his own life in this continuation of his series of articles on grief.
This “personal snapshot” is a follow up to his first article in the series that addressed an event in ones life for which everyone’s grieving experience takes on a slightly different character. I hope you’ll read the article attached above, and his previous article – also available on his website.
The attached article, written by a fellow blogger, needs no introduction other than for me to tell you that Margo beautifully describes a perfect evening with her hubby who was diagnosed with Alzheimer’s several years ago.
One evening, a family brought their frail, elderly mother to a nursing home and left her, knowing that after all the research they did to find a great place, she would be well cared for.
The next morning, the nurses bathed her, fed her a tasty breakfast of an omelet, sausages, and pancakes, and set her in a chair at a window overlooking a lovely flower garden.
She seemed okay, but after a while, she slowly started to lean over sideways in her chair. Two very attentive nurses immediately rushed to her side to catch her and straighten her up. Again, she seemed okay but after a while, she started to tilt to the other side. The nurses rushed back, and once more moved her upright. This went on all morning.
Later the family arrived to see how their mother was adjusting to her new home.
“So Ma, how is it here? Are they treating you alright?”
“It’s pretty nice here,” she replied, “except they won’t let me fart!”
In all of my busyness, I was not aware of this gentleman’s response, contained in the link above, to Ann Coulter’s usage of a word that evolved people no longer use when describing those with Down Syndrome or other learning disabilities. During the most recent U.S. Presidential Election, I watched the interview in which Ms. Coulter used the R-word. She made no apologies, and she even scoffed at the idea of having to be politically correct all the time. I was horrified, but I didn’t do anything about it.
John Franklin Stephens did something about it – and did so quite eloquently. You are a hero to me Mr. Stephens, and you are a hero to the rest of us who have a heart of compassion towards others. A great definition of compassion is as follows:
Compassion isn’t a sign of weakness, but of civilization. – Nicholas Kristoff, Seattle Times columnist.
I think that as a society most of us are trying to be more civilized, rather than less. That doesn’t appear to be the case with Ms. Coulter.
Sally Abrahms’ article linked above does a fantastic job of addressing some common emotions felt by the family caregiving community – those who provide free caregiving services to their loved ones. Let’s look at the three emotions she mentions and also look at the struggles many caregivers experience at their place of employment.
Grief. We grieve the loss of the person who is still with us. “When someone dies, it is an overwhelming and horrible experience, but it is the end of something,” says Suzanne Mintz, cofounder of the National Family Caregivers Association. “But with a caregiver, the grief is perpetual; it goes on and on and on.” Until you’ve experienced the ambiguous loss of your loved one, you can not say that you understand that particular type of grief. This ambiguous loss may result from a loved one’s dementia, debilitating disease, or other conditions that rob the patient of their physical or cognitive abilities. Ms. Mintz states that when one person receives a diagnosis, you both receive the diagnosis. You both experience the gradual loss of the life you once had and you know it won’t be coming back. That is a grief that keeps on giving because as time goes on, more and more of one’s previous abilities disappear right before your eyes.
Guilt. “I wish this would all be over so I can get my life back.” Oh my gosh, did I just say that? Many of you have felt that way and then struggled to rid yourself of the ensuing guilt. But guilt is constant – whether it manifests itself in believing that you are not doing enough for your loved one, not doing enough for your family, feeling negative towards the one receiving your care – it is constant. And it is normal. These negative feelings don’t make you a bad person. Rather, they are proof that you are a sensitive, aware and evolving being who hasn’t yet perfected the art of living.
(Photo credit: TNLNYC)
Exhaustion. Physical, emotional, and spiritual exhaustion sneak up on you and if not attended to early enough, they are killers. In my article, Caregiver: put on your oxygen mask first, I address the need to place yourself as more important than the person for whom you are providing care. “Gee, that’s pretty darn selfish!” Not at all. If you get what I’m talking about, you’ll agree that your loved one’s care is fully reliant on your ability to provide it. You can’t do so if you are on the brink of exhaustion, or worse, you die before your loved one, which is more common than you would like to think. You need a caregiving team. That team may consist of other family members and/or neighbors and acquaintances. You can’t do it all by yourself. If you’re a solo caregiver, check out the article, Solo Caregiving. This article provides tips on how to get the help that you need from those around you.
Discrimination. According to the recent report, Protecting Family Caregivers From Employment Discrimination, “roughly 42% of U.S. workers have provided unpaid elder care in the past five years” and that number is expected to rise to about 49% by the year 2017. With so many family caregivers out there, especially with the incidences of Alzheimer’s and other dementia on the rise, we all hope that employers will be more inclined to help their employees. But discrimination does occur in the workplace in the form of: limited schedule flexibility, denied leave or time off, and even dismissal from ones job.
The Family Medical Leave Act (FMLA) protects some caregivers but is an imperfect protection that is not required of employers with fewer than 50 employees. Additionally, of those employers required to adhere to FMLA guidelines, the employee must have been with their company for at least twelve months and have worked at least 1,250 hours during the previous year. With no FMLA protection, your job is at risk – especially in an economy when so many other workers would be glad to put in the hours that you’re not able to fulfill.
A word to employers. I know that it’s hard to maintain success while some employees just aren’t pulling their weight. But I think you’ll agree that some of you need to be more sensitive to the struggles experienced by your caregiver employees – employees who have never let you down prior to this difficult time in their lives. These exhausted souls can’t tread water fast enough – won’t you help them? Please do what you can to make reasonable accommodations that will lessen this temporary turn of events in your employees’ lives.
Sit down some day and take the time to write down as many experiences of loss that you can recall during your lifetime. Quite naturally, you will list times of grief resultant from a death in the family, grave illness, and the like. But there are other losses that we experience that can have just as much of an impact on our lives. The end of a marriage is one of those.
(Photo credit: Wikipedia)
The article linked above does a great job at shining the spotlight on the loss that is experienced when a marriage ends through divorce. Even if both parties to the marriage come to a mutual decision on the matter, the parties oftentimes enter a period of mourning. Understandably they feel a certain sense of relief at the conclusion of the divorce process, but a feeling of loss becomes a very unexpected part of their lives going forward.
My thanks to this Blogger for giving couples permission to acknowledge the loss they are feeling at the dissolution of their marriage – even one for which they were both on board.
The brief article, above, is one of admonishment and encouragement. Thank you my fellow blogger in Singapore for your extraordinary insight.
I think many of us can dredge up similar instances when someone responsible for the care of our loved ones dropped the ball. In my case, I flew down from Seattle, Washington to visit my father at a hospital in Oregon where he had been admitted because of a medical condition that had became acute in light of his Alzheimer’s disease.
I entered his room and saw him sitting up in his hospital bed, frantically rubbing his back on the stack of pillows behind him. “Dad, you look really uncomfortable. What’s going on?” “I don’t know,” he said, “but my back feels hot.” One look at my father’s back was enough to raise my blood pressure, and it takes a lot to do that since my BP is usually around 100/65. My father’s back was raw with welts. What he was feeling when he said that his back was hot was extreme itching.
(Photo credit: Ralf Heß)
I summoned a nurse – no small feat since it appeared that an old person with dementia in a hospital room was not as important as the other patients on the hospital floor. The nurse told me, “Oh, he must be experiencing an allergic reaction to the solution we used for his bath in bed. It’s the type of cleanser you don’t have to rinse off.” “Well, evidently, you do have to rinse it off! Look at the welts on my father’s back. He’s in misery! You have to get this dried soapy solution off him in order to relieve the itching!”
The nurse left the room, only to return a couple minutes later with a stack of washcloths. “Here, use these.” Then she walked out.
Left to my own devices, I drenched several of the washcloths in cold water, opened the back of my father’s hospital gown and proceeded to clean off, and cool off, his back. “Dad, this is going to feel real cold but it will make you feel better.” And it did. Ministering to my father in this way was a gift. I still wasn’t happy with the hospital staff, but I began to appreciate what turned out to be one of the final personal acts of caregiving for my father.
A month later I again flew down to Oregon, but this time, the cold washcloths I applied to my father were employed to bring down his temperature as he spent the last hours of his life in his assisted living bedroom dying. My father’s cancer – inoperable at that stage of his body’s vulnerability – had placed him in a stage of unconsciousness. As the staff alleviated the discomfort of his cancer with morphine, I lowered the fever brought about by the shutting down of his body’s organs.
A month earlier, what good would have come about if I had read the riot act to the nursing staff at the hospital? None whatsoever. Instead, I can be thankful for the gift of hands-on caregiving and comfort that I was able to provide my father while he was still alert and able to express his relief at having a cool, itch-free body.
I’m sad thinking about these incidents that occurred in the Fall of 2007, but I’m also delighted with having had the opportunity to minister so personally to my extraordinary father during the last weeks of his life.
This Blogger, Richard Kenny, really has a way with words as he describes the challenges – and sometimes the joys – of his caregiving role as a son to his mother who has Alzheimer’s and to his father who struggles to be the spouse of a wife with Alzheimer’s.
Very much worth the read – and I don’t just mean this one article. Many of Richard Kenny’s observations and musings so clearly reflect his day-t0-day frustrations as well as his somewhat new found ability to adapt to every unforeseen circumstance.
Chances are all of us will experience more than one of the transitions that Don frames in this article that so delicately – and movingly – touches on the topic of grief and loss that occur when “first” occasions without someone come around on the calendar.
One evening, a family brought their frail, elderly mother to a nursing home and left her, knowing that after all the research they did to find a great place, she would be well cared for.
Living: the ultimate team sport 