Quality of Life
Sorrow Passes and We Remain
I found a letter dated July 28, 1883, written by Henry James to his friend Grace Norton, in a reference book. He wrote a letter of encouragement to her as she was desolate, depressed, and determined not to live. I post portions of it here should anyone out there feel as Grace did, in need of life-saving encouragement.
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You are not isolated, verily, in such states of feeling as this – that is, in the sense that you appear to make all the misery of all mankind your own; only I have a terrible sense that you give all and receive nothing – that there is no reciprocity in your sympathy – that you have all the affliction of it and none of the returns.
I don’t know why we live, but I believe we can go on living for the reason that life is the most valuable thing we know anything about and it is therefore presumptively a great mistake to surrender it while there is any yet left in the cup.
Sorrow comes in great waves, but it rolls over us, and though it may almost smother us it leaves us on the spot and we know that if it (sorrow) is strong, we are stronger, inasmuch as it passes, and we remain.
My dear friend, you are passing through a darkness in which I myself in my ignorance see nothing but that you have been made wretchedly ill by it; but it is only a darkness, it is not an end, or the end.
Don’t think, don’t feel, any more than you can help, don’t conclude or decide – don’t do anything but wait. Everything will pass … and the tenderness of a few good people, and new opportunities, and ever so much of life, in a word, will remain.
You are marked out for success, and you must not fail. You have my tenderest affection and all my confidence.
Kindness Fridays
This week’s kindness spotlights the Women’s Fiction Writers Association (WFWA) a fabulous group for writers of women’s fiction. Most if not all the administrative staff is volunteer – the reason why their kindness is this week’s selection. As a member of this organization, I was given the opportunity to have a podcast recorded for their Hear Me Roar program because I’m a debut author. Although my novel, Requiem for the status quo was released a year ago, it was my debut publishing effort.
This podcast is approximately 30 minutes in length, and although my novel is certainly the focus, much attention was spent on the prevalence of Alzheimer’s and other dementias in the world. Perhaps this podcast will keep you company on your commute in the next few days; although it may seem a bit choppy, I think it’s worth hanging in there to hear my, and the host’s, provocative discussion.
Dynamite storybook for seniors with dementia
I was asked to write a story or two for an anthology of short, short, stories that would be read to seniors with cognitive impairment. I jumped at the opportunity. That anthology, The Mighty Ant, is now available in paperback on Amazon.
I am one of 33 contributors to this collection of short stories for seniors who suffer from dementia and other related memory or cognitive disorders. This book is the culmination of a project from editor and contributor, Jessica Bryan, who is a caregiver and advocate for caregivers. Several years ago she began to notice that her mother, who suffers from Alzheimer’s disease, lost focus and could no longer read lengthy books. Jessica began reading to her mother and found that simple, short stories were easier for her to understand. The Mighty Ant is filled with these kinds of fiction and non-fiction stories.
The proceeds from the sales of the books will be donated to a local Council on Aging. The generous contributions of authors like myself have come from all over the world. The result is a book with different perspectives, reminiscences, and tales that reflect not only local culture, but a variety of customs, ethnicities, and lifestyles.
I am honored to have my two stories titled, A Neighborly Friendship and A Sweetheart of a Story included in this collection. A Sweetheart of a Story was selected as the final story in the book because the editor felt it was the perfect selection to provide a sweet ending to the anthology. Buy a copy or ten or more for yourself and others…perhaps your local memory care community would love to include the reading of this book to their senior activity schedule! Currently only $12 for this 322-page large print storybook.
My sister, Mary
It’s National Sisters Day so naturally, I need to write about my sister, Mary.
Gosh, I wish my sister and I didn’t live 765 miles away from each other; this photo expresses exactly how I feel.
We visit each other, but not often enough, and when we do visit each other, it’s just not the same. If we lived next door to each other we could pop into each other’s homes, take walks together, and talk face to face instead of by telephone.
We’re not getting any younger, nor are our husbands. Having close proximity to each other would guarantee in-person support for when life takes a toll on our bodies and minds, and let’s face it, regardless of how healthy you think you are, life happens when you least expect it. Our mother’s death, while she slept, is proof of that. So is our father’s diagnosis of Alzheimer’s disease that took his life four years later.
My sister, Mary, and I are creatives: she’s an artist (paints and such) who holds gallery events, and I’m a writer and a published author. In so many respects, Mary is just about my most ardent supporter, as I am of her. When we’re neglecting our craft, we remind each other of the passion that brought us to this place, and that what we produce needs to be in the hands of others to benefit them.
Yep, Mary is my best friend and best friends should live closer to each other so they can have a front row seat to what life sends their way. I don’t at all predict my imaginary neighborhood will ever come to pass, but what I can predict is how close Mary and I will remain on this unpredictable and impermanent journey called life.
My novel’s 1st anniversary
Requiem for the status quo‘s anniversary is the perfect opportunity to announce my involvement with a fabulous project focused on Alzheimer’s disease.
I am one of over 150 authors from around the world who will be represented at the Alzheimer’s Association – Western Carolina Chapter’s Dementia Education conference in Charlotte, N.C., this August. I, and over 25 other AlzAuthors, have donated copies of their books, which will be given away in a raffle to conference attendees.
I wanted to support this cause because during my caregiving experience in the early 2000s, I most definitely could have used more fiction about Alzheimer’s to normalize my day-to-day stresses, and some up-to-date non-fiction to help my learn-as-you-go caregiving experience. Something else from which I surely could have benefited is the non-profit, AlzAuthors. AlzAuthors.com is a nonprofit website that shares information on books and blogs about Alzheimer’s and dementia. I am proud to say that I, too, am a member of this fine organization. Had it been available prior to my father’s death from Alzheimer’s disease, I no doubt would have tapped into its resources.
AlzAuthors started in 2015, when Founders Jean Lee from Ohio, Vicki Tapia from Montana and Marianne Sciucco from New York, who had also written books about Alzheimer’s, met in cyberspace. They discussed the growing need for resources about dementia. A year later, after Shannon Wierbitzky joined the team, the group started a website and published posts from 60 authors. In 2017, Canadian Kathryn Harrison and Ann Campanella from North Carolina joined the administrative team.
Since that time AlzAuthors has published weekly posts, sharing resources about books and blogs that focus on Alzheimer’s and other dementias. The site has grown to include over 150 AlzAuthors from around the world and has a bookstore with a vast collection of top books for individuals, doctor’s offices, assisted living facilities and other eldercare services. AlzAuthors also has a thriving presence on Facebook, Twitter, Instagram, and Pinterest. AlzAuthors Jean Lee and Ann Campanella, whose memoirs were recently named to Book Authority’s Best Alzheimer’s Books of All Time List, will share “The Story Behind the Stories” of AlzAuthors at the Alzheimer’s Association conference.
“Together We Can,” the Dementia Education Conference held by the Alzheimer’s Association – Western Carolina Chapter, will take place on Wednesday, Aug. 29, from 8:00 a.m. to 4:00 p.m.at the Friendship Missionary Baptist Church, 3400 Beatties Ford Road in Charlotte, N.C. The event is geared for healthcare professionals, caregivers, people living with Alzheimer’s or related dementia and members of the general public. Attendees will learn more about research, caregiving practices and tools to assist in the journey with Alzheimer’s. For more information, visit ALZ.org/NorthCarolina or call 800-272-3900.
For more information about AlzAuthors. visit their website: https://alzauthors.com/.
Kindness Fridays
Hiking always makes me feel good to be alive, even though my joints and muscles complain more often than not at the completion of each hike.
There’s so much goodness found in the mountains, streams, lakes, and forests of the Pacific Northwest. Along with that goodness is the kindness that oozes out of every beautiful sight we behold:
- the sweet and varied songs of the birds that are hidden from sight, but not by hearing;
- the welcome shade provided by trees that have been around longer than my timespan on this earth and that will remain long after I’m gone;
- the flowers and berries, both common and unique, that serve to add color to the landscape, thus softening the feel of the dirt, rocks, and rooty trails that receive our eager feet;
- the top of the mountain vistas – what my husband and I call the payoff – that await our sweaty, achy, bodies, making us forget the out of breath effort it took to get there; and
- the people we meet along the way who love hiking as much as we do.
At yesterday’s vista view, we met a young man who with his wife, moved to Seattle from Utah. Just three weeks into his Washington State experience Matt is in love with what our state has to offer. His wife’s job is what prompted their move: she is in her medical residency at Seattle Children’s Hospital. She has the overnight shift so Matt is taking advantage of her daytime sleep schedule to explore the new place in which he lives.
Matt is a microbiologist who is putting off looking for a job for a few weeks while he acquaints himself with his new home. We recommended he enjoy the best weather the Seattle area has to offer before getting anywhere near a laboratory. We also told him we felt certain he would have no problem finding work in his field given the renowned medical community in the area. We had a simply delightful conversation with this man who, after I mentioned my family’s history with Alzheimer’s, offered the promising breakthrough just discovered regarding a virus that might contribute to the disease.
Whether Baby Boomers like ourselves, young children, or everyone in between, the hiking community just seems to give off kindness vibes – a kindness that provides lasting benefits for these late-in-life hike enthusiasts. I know this has been a far different Kindness Fridays to which you may be accustomed, but I hope you enjoyed it nonetheless.
Kindness Fridays
Today I celebrate an author friend who has been so supportive of my writing journey. Jill Weatherholt is a fabulous writer of inspirational romance novels. Second Chance Romance is the first in the Love Inspired series that will grab you from the very first page. The second in the series, A Father for Bella, will be released August 1, 2018, but is available for preorder right now. I already ordered my copy and can hardly wait for the continuation of a series that has warmed my heart and has me wanting more.
This delightful author friend of mine inspires kindness wherever she goes, and she certainly warrants a Kindness Friday spot on my blog today for it is today that Jill posted an essay I wrote that gives readers a peek at my personal caregiving experience with my father. You can view that post, here. I wrote about this personal experience of mine when Jill indicated she wanted to feature me yet again on her author site, and could I please write about a caregiving episode from my past.
It was my pleasure to do so, just as it is my pleasure to give you, my blog followers, a peek into this North Carolina author’s exceptional romance novel series. I certainly hope you will pick up your own copies of Jill’s two books in the Love Inspired series, and that you will perhaps gift others who also might be interested in receiving their very own copies. At the very least, be sure to share this post with your friends so they can have quick and easy access to her novels’ Amazon purchase links.
The best part about my own publishing experience has been the authors I’ve met along the way; what giving and loving individuals they have proven to be. My life is greatly enriched by them. Thank you, Jill, for your friendship.
Kindness Fridays
Long distance relationships don’t always work out but the relationship I have with an Adelaide, Australia online magazine works to perfection. I’ve never wanted to be the selfish one in this relationship, but I feel I’ve received far more from it than they have.
A wee bit of history: I’ve been writing for this magazine off and on for some time and then late last year, Grandparents Day Magazine offered me my own column; my own byline. Now I’m guaranteed a page in every publication.
Then, just a couple weeks ago, the editors/founders of the magazine reached out to me wanting to promote a writers’ group to which I belong: AlzAuthors. AlzAuthors is made up of a compendium of authors who share their personal experiences with Alzheimer’s disease and other dementias to benefit others. Their motto is: To make a difference. One can sing a lonely song, but we chose to form a choir and create harmony.
So today’s celebration of kindness is two-fold: one, Grandparents Day Magazine generously reached out to me and the author group to which I belong; and two, AlzAuthors members chose to share their difficult Alzheimer’s disease journeys so that others could benefit from their vast experience – much of it learn-as-you-go. As a member of the AlzAuthors group, I can testify to the fact that once I had been through a family caregiving experience – for me it was for my father – I hoped it wasn’t for naught. Being able to share my experience with others through my novel’s publication just seemed right. The same can be said for the more than 150 books written by the AlzAuthors members.
And that, my friends, is my Kindness Fridays for this week.
Kindness Fridays
Over the years I’ve discovered that when we are part of a community of people, our quality of life increases. The support of others can’t be beat. For me, community is like-minded people with a common thread through their lives that provide meaning and purpose for one’s day to day existence.
I found community in a writer’s group called AlzAuthors, a compendium of authors who have all been affected by Alzheimer’s disease and other dementia. All of us authors share our experiences through our non-fiction and fiction works to bring knowledge, comfort, and understanding to those on a similar journey to the one we have already completed. Trust me, we all wish such a group were not necessary; that the common thread we share didn’t involve the always fatal disease of Alzheimer’s and related dementia; but it is necessary and we’re filling a need that as of this writing doesn’t show any chance of abating.
I’ve never met any of these authors – I live in Washington State and the rest of the authors represent just about every state in our nation – but because of our common journeys, we are members of a community. Are we all politically aligned identically to each other? Probably not. What about religious practices, do we follow the same spiritual practices as every member of the group? Hardly, but it doesn’t matter. What we have in common does matter: we are dedicated to encouraging and helping families and individuals whose lives have been interrupted by Alzheimer’s disease. Speaking for myself, I am so glad that my novel, Requiem for the status quo, can reflect the good and the bad decisions I made and other individuals made, so that those who are still on the Alzheimer’s journey might do better because they know better. I hope you’ll get to know us AlzAuthors through our website and that you’ll become an AlzAuthors Reader Community once you’ve browsed through our bookstore. Click here to go directly to the AlzAuthors Bookstore to find a library of books – more than 140 as of today – that link directly to Amazon or other purchase outlets.
So that’s it. This week I celebrate the kindness I have found in the AlzAuthors Community. Sure beats going it alone.
Kindness Fridays
The man with whom I chose to spend the rest of my life on our wedding day, February 10, 2000, is the subject of this week’s Kindness post.
My husband says he’s not blind, but sometimes I’m not so sure. I mean, if he has perfect vision, albeit corrected by glasses, how can he not see what I see?
- No makeup whatsoever during the day unless I’m going somewhere or someone’s coming to our house. My face is multi-colored due to rosacea and sun damage. Without wearing liquid foundation, I’m a pretty scary sight to see. Apparently, the rose-colored glasses he wears don’t see those flaws.
- When my absolutely fabulous hair stylist cuts my hair a wee bit too short because Molly and I got to talking and I lost track of the time and how much hair she cut off, I return home with something just short of a buzz cut. I walk in the door apologizing before I can even say, “Hello, honey, I’m home!” Jerry takes one look at me and says, “I see you got your hairs cut and you got your money’s worth. It looks nice.”
- When I went through a period of very low body weight because of a medical condition, I focused on trying to gain weight because my clothes just hung on my bones. He said, “You are always beautiful to me, but I’d rather you be healthy and overweight than skinny and not well.”
- A year ago, I had some nasty skin cancer removed from my right shin/calf area. One year later, the scar is still horrendous in my eyes and I’d venture to say, in most peoples’ eyes. The other day we were shopping at Target and as we passed the racks of women’s shorts I said, “Not gonna buy me any of those. No one wants to see these legs.” His response, “I do.”
So there you have it, this absolutely non-critical, always complimentary husband of mine is probably someone I don’t deserve, but he married me so he’s stuck with me. When I’ve said those words to him in the past, he’s responded, “And you’re stuck with me, aren’t we lucky?”
Kindness Fridays
My sister, Mary, is one of the kindest people I know. We are only eight months apart in age. You see, Mary was adopted by our parents after our mother suffered three miscarriages. Then, as oftentimes happens, once the adoption procedures commenced my mother got pregnant with me. Growing up, Mary and I always had each other as friends; we always had a playmate. People mistakenly thought we were twins; that’s how close we were, and still are.
So this wonderful, extraordinarily artistic sister of mine did something for me in response to my recent left eye cataract surgery. (See her website that spotlights some of her paintings.)
My siblings and I were raised as Roman Catholics. In our adulthood, we have followed different spiritual paths so that none of us follow the religion in which we were raised. With that said, however, Mary went to Mass the day after my eye surgery because she felt that our parents would also be there and would provide an added prayer boost to Mary’s intentions.
My sister feels very strongly about her connection with our long-deceased parents as prayer partners during Mass and has gone an additional time just this week with the intention that my left eye experiences 100% healing. She will also go next Wednesday so that my right cataract surgery that takes place the day before (April 17th) will be a complete success with no complications.
Mary has a very full and busy life with 5 children and 9 grandchildren. She volunteers every Tuesday morning to collect donated food from local grocery stores for her church’s lunch ministry. She is very attentive to her mother-in-law whose failing health requires a great deal of Mary’s and her husband’s time. She drives friends to doctor appointments, babysits her grandchildren…you get the idea. She’s busy, so adding yet another To Do to her growing list of responsibilities truly says a lot about her.
To be sure, we need more people like my sister who is the embodiment of kindness. Mary’s light shines in many places, near and far, a light that has landed on many over the years.
Kindness Fridays
The other day I was in the clothing department of a store I frequent, found the item I wanted to purchase, and made my way to the sales counter…with a 20% coupon in hand.
“Do you have any other coupons?” the salesperson asked.
“Why, no, just the one.”
“You can ask me.”
Not certain what I was supposed to do at that point I asked, “Do you have any coupons?”
Yep, she sure did, which she scanned bringing the price of the item even lower…almost to the point where I was wondering if they would owe me money, rather than the other way around.
The salesperson didn’t have to be generous and kind like that, but she was.
And that’s my Kindness Friday for this week. Don’t you just love it?
Kindness Fridays
This week’s kindness illustrates a lesson my maternal grandmother passed on to my mother, who then passed it on to me.
The best way to paint this picture is to assume you’re in the kitchen, you pull out a gallon of milk from the refrigerator, take it to the counter to pour yourself a glass of milk and the full glass of milk spills on the counter, over the edge of the counter, and onto the kitchen floor.
If another family member is in the near vicinity, that family member intervenes, tells the person who inadvertently spilled the milk to leave the kitchen, and the other family member cleans it up.
“But Mom, I spilled it, I should have to clean it up.”
“You didn’t do it on purpose, Irene. You already feel bad for spilling the milk, let me lessen your burden by cleaning it up for you.”
And that’s what happened throughout my childhood, and it’s what happens now in my adulthood. A little kindness goes a very long way…all the way from Grandma Conroy’s Edmonton, Alberta kitchen in the 1920s thru 1940s, all the way to mine in Redmond, Washington in the 21st-century.
Compare and Contrast: Good News vs Bad News
Our extended family recently went through a very difficult time with one of our members diagnosed with a large brain tumor. That tumor was removed this past Monday, March 12th.
My husband and I had the privilege of keeping the spouse of this family member company at the hospital during the day’s nail-biting, angst-filled four-hour surgery. All of us, family and strangers with a loved one in surgery, were gathered in the same neurosurgery waiting room, a room where the surgeon meets up with families immediately after the surgery to deliver the exploratory news that summarizes the surgery and its outcome.
Approximately fifteen minutes prior to our surgeon’s meeting with us, another neurosurgeon met with a family fifteen feet away from us in the waiting area. Their news was not at all good. The only words I heard were, “I know you hoped this surgery would be the end of it but that is not the case I’m sorry to say.” The four daughters and husband immediately started sobbing. I felt I was an unwelcome observer because of the grief I witnessed.
Then my family member’s surgeon met with us and declared that he had removed all of the massive tumor from my sister-in-law’s brain and it was not cancerous. We were relieved and felt exhilarated but tamped down our excitement.
How can it be that in the course of a quarter hour’s worth of time, one family’s extreme happiness could co-exist with the other family’s extreme devastation?
I guess the answer is that life happens to all of us; sometimes it is good, and other times it is not. Very sobering, to be sure.
I am ecstatic that our news was good but very much aggrieved that the other family’s was not.
Kindness Fridays
This week’s kindness celebration focuses on a long-time family friend, Walt D.
Walt came into our lives when we lived in Los Angeles, California. He worked at the same company as my father who was a mentor to the young, up-and-coming new employee at Manufacturers’ Life Insurance Company. When my family moved from LA to Honolulu, Hawaii, Walt kept in touch with us, oftentimes flying through Honolulu on his way to Maui where he vacationed from time to time.
We hadn’t seen Walt in a while, so when my mother died in September of 1994, imagine my delighted surprise when I entered the church for my mother’s funeral service and there stood Walt near the altar, a friend who had flown to Honolulu from Toronto, Canada where he had relocated years prior to work in the head office of my father’s company.
At forty years of age, I ran up the aisle of the church and threw my arms around him, so thrilled to see our family friend and so blessed that he traveled all the way from eastern Canada to honor my mother and our family by his attendance at my mother’s service.
Fast-forward twenty-four years to Monday of this week when eighty-three-year old Walt D. called me from Toronto to congratulate me on my novel, Requiem for the status quo. He had just finished reading it and couldn’t wait to talk to me about my accomplishment. “Irene, there is no reason why your novel shouldn’t be on the New York Times Best Seller List!” I thanked him for his very generous review and we then talked about the book’s subject matter (Alzheimer’s disease and its effect on families) and how he, in his golden years, had witnessed dementia’s hold on many of his friends. Since Walt and I communicate by postal mail several times a year (he does not own or use a computer), I was well-aware of his involvement with the Alzheimer’s Society of Canada where he volunteers and participates in their equivalent of the annual Walk to End Alzheimer’s. Walt visited my father after my Dad’s Alzheimer’s diagnosis, even while my father was in the middle of his Alzheimer’s journey. Walt made a point of keeping in touch with Dad, knowing the window of opportunity would come to a close in time.
I spent nearly a half hour on the phone with Walt this past Monday, feeling so close to this man who had entered our lives way back in the early 1960s, and who had remained a part of our family for almost sixty years. Friendships don’t have to end because of distance and time; when you stoke the flames they can survive and be contributory to one’s quality of life, as Walt’s has been to mine.
Kindness doesn’t recognize the barriers of distance, time, and even age.
Kindness can live on if we make the effort to nourish it.
Kindness Fridays
Can a baby purposefully exhibit kindness to others?
He doesn’t have to.
All of us came into this world without guile, judgment, or well-practiced hidden agendas. We didn’t learn that type of negative behavior until we got older and became seasoned in the fine art of selfishness and deception. I know, those are cruel and unfair words for me to say because I’m quite certain most of us do not purposefully act in a manner that is disingenuous or self-serving. With that said, however, I also know that one hundred percent of all babies are not capable of such mind games.
Our grandson – fully reliant on his parents, grandparents, and other adults – has every reason to consciously act in a manner that always guarantees the adults in his life will serve his every need. Fortunately, he doesn’t yet know how to do that. The innocence and pureness of his untainted mind has no room for such chicanery.
When my husband (his grandpa) repeatedly makes that silly noise that draws laughter from our grandson, the little guy isn’t running the following commentary through his head: Okay, that noise is kind of boring me at this point because it is SO yesterday, but I should probably laugh each and every time so I don’t hurt the old guy’s feelings. Nope, it doesn’t even occur to him to pretend because he is genuinely tickled by it. The laughter that comes from this absolutely adorable eight-month-old person is honest and outward-serving, not inward-serving.
When his mommy drops him off at our house on the two days we watch him every week, I can oftentimes be heard saying, “Is that my grandson? Oh my goodness, it is my grandson, I’m so happy to see you!” He breaks into that delightful, heart-melting smile of his, exuding pure kindness by his obvious delight at seeing his Grammo and Grandpa. When he smiles like that I think to myself: You’ve made my day, just by being you.
Our grandson gives out kindness free of charge, a kindness that isn’t dependent on his current circumstances, regardless of what they may be. Innocence is such a beautiful thing, isn’t it? A pure mind – that consequently holds only pure intentions – is one of the most valuable commodities on this earth. What a privilege it is for my husband and me to be on the receiving end of such goodness.
Many thanks go out to his parents for entrusting us with this grandparenting opportunity..
Kindness Fridays
The other day, I discovered something about myself and about the way of kindness.
It’s really easy to be kind when life is going grand.
Clarification. The kindness gene resides within me, just as it does in you if you feed it and let it flourish. I feel absolutely honest saying that my pattern of thinking reflects the best of kindness one can imagine. At the very least, my intentions are pure.
With that said, however, when I’m feeling less than 100% – say, 25% – I have to work hard at not letting others be on the receiving end of that less than whole person that I’ve become. I’ve had a lousy night of sleep while also fighting seriously inflamed sinuses? Ugh, I must rein in my struggles and not take it out on the receptionist at the doctor’s office, or the supermarket employee. I sincerely don’t want to be responsible for ruining someone else’s perfect, gloriously, healthy, well-slept day. (Gawd, I’m envious of those who have been given the gift of sleep.)
All it takes is one look, one word – or the omission of a word – to spew miserableness onto someone else.
Kindness is a way of life for me but sometimes it threatens to take a break from the norm and that’s when it’s needed the most in the world. You see, I’m not the only person who has less than stellar days. I’d be self-centered to think I’m the only person the world takes a dump on now and again. Everyone in this world is vulnerable – everyone – and far too many are on the brink of giving up. We are all in this together, in good times and in bad.
I vow to not contribute to the latter.
Long-term care: squeaky wheels and raging forest fires
Although now retired, over a twelve-year period I worked in long-term care (LTC) wearing three different hats:
- My first job in this industry was in the corporate office of a very fine assisted living and memory care company. In time, I decided to work in one of the company’s facilities so I could spend more time with the residents and families who chose our company for their LTC needs;
- When I left the company, I took several years off to care for my father who had Alzheimer’s disease. A few years after his death, I became a certified long-term care ombudsman for the State of Washington – an advocate for vulnerable adults living in LTC settings;
- Concurrent with my ombudsman work I became a trained Alzheimer’s Association caregiver support group facilitator, providing a listening ear to those on the caregiving path.
Given all that experience, I’ve seen and heard of many unfortunate and nasty occurrences where residents and patients were denied the basic rights each living person should expect to receive, especially those dependent on others for their well-being and quality of life.
I’m sorry to say that some nursing homes, assisted living/memory care communities, and adult group homes do not employ sufficient staffing to meet the needs of their residents. I can confidently say that the government agencies that oversee the LTC industry are also understaffed. When complaints are called in, those government employees have to apply grease to the squeakiest wheels and must turn their fire hoses on the most out of control fires in their case files.
That’s where you and I come in.
We must be the squeakiest darn wheels we can be so our complaint(s) are attended to.
We also need to be the hottest, most devastating fire imaginable so that our vulnerable loved one’s rights are respected.
One grievous example. This is just one example of common issues that arise in LTC settings. The complaint process I mention later in this post provides a good starting point when issues arise.
Nursing home call lights are being ignored so that residents/patients are left to defecate and urinate in their adult sanitary garments on a routine basis. Not only is such an act demeaning to the poor soul with no option but to let go of his/her bodily wastes, but said wastes are sure to cause skin breakdown and a urinary tract infection that is not only extraordinarily painful but can also be life-threatening.
What does the family member/good friend do about this indignity? They need to complain vehemently to the administrator of said facility and when she/he does nothing or very little, family and friends contact the local area’s LTC ombudsman program. This website will direct you to ombudsman resources right where you live: National Long-Term Care Ombudsman Resource Center.
Your local ombudsman program will investigate, work with the facility’s staff, and if need be, get the full force of the law to come to the defense of those in need. State ombudsman programs are staffed by paid and volunteer employees, therefore their staffing levels are usually higher than many government agencies. These ombudsmen all receive the same extensive training required for such a vital role. Once you’ve reached a dead end at the facility, ombudsmen are your most active line of defense. They are passionate about what they do and they will ceaselessly advocate for you and your loved ones. Their proximity to appropriate resources and their intimate knowledge of residents’ rights laws makes them an approachable and viable alternative for the common man’s (yours and my) needs. Caveat: if you suspect criminal activities such as physical or sexual assault law enforcement needs to be immediately involved in the matter. Additionally, severe lack of care that endangers the lives and well-being of adults more likely than not will also require law enforcement involvement.
Adults in long-term care settings are a reflection of you and me. By that I mean they were once active and self-reliant adults, just like many of you reading this piece, but they now find themselves unable to fend for themselves and need you and me to step in for them. Imagine, if you will, being in their shoes, unable to speak up for yourself. If you or I ever find ourselves in a similarly vulnerable situation, wouldn’t you want an advocate to step in on your behalf?
Advocacy for vulnerable adults falls on all of our shoulders. You can make a difference in the life of your loved one. Won’t you please step up to become their most important advocate?
Kindness Fridays
2017 was a year of conflicting emotions for me. There were many good times. These two stood out: our grandson was born and my novel, Requiem for the status quo, was published. But there were also times I’d like to forget, and once my hip gets better after this past October’s bionic replacement, that will become one of the most forgettable events of the year.
Kindness, however, wins out and drowns out the not-so-pleasant occurrences that can cause stumbling blocks to our gentle psyche. So on this last Kindness Friday of 2017, I’m posting links to a few of my favorites in the hopes that while I’m encouraged by past Kindnesses, you can be as well.
June 30th, 2017: walk away from cruelty
April 14th, 2017: kindness trumps all
March 17th, 2017: courtesy on the road
March 10th, 2017: my husband’s perfect eyesight
January 6th, 2017: 1st Kindness Fridays – Mall kindness
Kindness Fridays
Our grandson is seven-plus months old. He has experienced much kindness in his young life, kindness that exudes from each of us family members who love him so very much.
Lucas has several grandparents and even some great-grandparents who dote on him to no end. Aunties, Uncles, Great Aunties and Great Uncles, so many loving family members so that he will never want for love. We all go out of our way to assure his happiness and well-being, especially now while he is so dependent on us for each day of his life.
All three of our daughters had active grandparents in their lives. These weren’t just long-distance relatives who sent them cards now and then; they were tactile, involved family members who added greatly to their day-to-day lives.
I didn’t have grandparents, well, that’s not true, I had two grandmothers and one grandfather but only saw them for a total of maybe six times in my entire life. My dad’s father died before my mother and father were even married so there was no chance of me ever making his acquaintance. Grandpa Desaulniers died in a hospital when a doctor administered the wrong medicine to him, a medicine that killed him even though Grandpa’s reason for being admitted to the hospital was an extremely minor one. I never had the privilege of experiencing his kindness but I am certain Grandpa D’s character was also reflected in the way my father treated me, my brother and sister, and my mother.
But our grandson? He is on the receiving end of individual and joint kindnesses that will assure him great memories and an even greater life.
And his addition to all of our lives? A kindness that nurtures us adults and provides us with yet another reason to be glad that we’re alive in this world – a world that doesn’t always reward us so kindly.
Kindness Fridays
Nicole Brodeur, a writer for the Seattle Times newspaper, posted this article about a Costco employee who always went above and beyond his normal duties to make the customers’ days better than when they arrived at the store.
Fifty-six-year-old Tom Goessman contracted polio as a child and got around in a wheelchair. While working at the Seattle Costco store, he used a standing wheelchair while validating each customer’s receipt before they left the store. But that’s not all he did. He would make a game of guessing the amount spent just by looking at the goods in a customer’s cart; more often than not, he was right on the money. He would also draw pictures on the customer’s receipt if that customer was accompanied by a child, something fun for the kids to look forward to.
But all of a sudden, Tom was no longer at Costco’s Seattle location; customers were more than a little concerned. The Seattle Times has a column titled, Asked and Answered which provides an opportunity for people to contact the newspaper with queries that are on their mind. Turns out, many Seattle Costco customers took advantage of that column to discern the whereabouts of their beloved Tom. The person who became the highlight of their Costco warehouse shopping trips was nowhere to be found.
After some research, the newspaper discovered he had moved to Glendale, Arizona after being invited to visit that state by one of Costco’s customers, a man whose son is also paralyzed and who thrives in the dry, Arizona weather. You see, Tom gets life-threatening infections each year because of his polio; the damp, Seattle weather being an aggravating factor. Tom spent some time in Arizona two years in a row and was pleased to discover that his infections became a thing of the past. So what did he do? He relocated to Glendale, Arizona, and took on the same job he held in Seattle.
When columnist Nicole Brodeur wrote her original article about Tom a colleague of hers suggested, “If you want to restore your faith in humanity, read the readers’ comments.” Ms. Brodeur knew how much vitriol can be included in readers’ comments and so doubted her colleague’s assessment.
The comments under an online news story are a saloon I step into with one hand on my holster. One person makes a valid, thoughtful point, but then two stools down, someone pops off with a sexist or racist comment. Someone else weighs in on that and one scroll later, a full-on brawl has broken out, the subject of the story long forgotten.
That was not the case for those readers who responded to her article. The comments were filled with positive stories about their interactions with Tom during their Costco warehouse shopping expeditions; they missed him so much! The kindnesses that Tom extended to busy Costco shoppers elicited more kindness, revealed in the shoppers’ recollections of their brief times spent with him.
It’s been said that hate breeds hate but I’m convinced just the opposite is true. Kindness generating kindness is what I’ve experienced time and again in my life; even the smallest of kindnesses can douse the flames of hatred.
And in the world in which we’re currently living, don’t you think it’s about time hatred was put in its place, once and for all?
Kindness Fridays
I’ll try to be brief with this week’s kindness. I have had a medical condition for the past three years that no doctor has diagnosed correctly. In September I went to a naturopath and based on my symptoms, she suggested a different type of doctor who specializes in what I most likely have.
My husband and I drove into Seattle to see this doctor on Wednesday of this week and within twenty minutes’ time, he easily made sense of what I’ve been experiencing, a condition that has caused my husband and I to cancel two vacations because of its acute nature. He clearly explained what was going on, was able to diagnose it and suggested treatments that will more likely than not improve my quality of life greatly. After one day of those new treatments, my body is adjusting and trying to function in a different way, and because it’s trying to do that, I didn’t sleep at all last night. I will aim not to be discouraged, however, knowing that once my body adjusts to this new treatment plan, I’ll be able to celebrate the start of a new quality of life.
Finally, a doctor who spent sufficient time with my husband and me who was able to apply his expertise to our situation, and provide hope and promise that I have not been able to enjoy for close to three years.
This week’s kindness celebrates this Seattle doctor with whom we met on Wednesday. This week’s kindness also celebrates the naturopath who got me on the right “path” to wellness without receiving financial benefit. She refused my insurance copay when I saw her back in September, not feeling it appropriate that she accept payment since she didn’t provide any measurable medical service to me.
That’s where she was wrong; her referral was one of the most effective treatments I have received for my condition up until this point.
Kindness Fridays
Chivalry isn’t dead, nor is good ol’ everyday courteousness.
We had a full day this past Tuesday, the highlight of which was taking care of our grandson. In the afternoon, a new refrigerator/freezer was scheduled to be delivered but we received a call that it would be delivered a bit late…right around our dinner hour.
I decided we wouldn’t want to cook that evening because we’d be waiting for the delivery (happened just after 4:30 pm as it turns out) and we’d be getting it filled with all the food we had placed into numerous coolers earlier in the day with solid ice blocks to maintain the foods’ integrity.
While our grandson napped I slipped out of the house to pick up a pizza at the Take and Bake pizza place nearby, leaving Lucas in the very capable hands of his grandpa. I don’t yet feel comfortable walking and carrying our grandson so Jerry needed to be the one who remained at the house so he could pick Lucas up out of the crib if he woke up before my return.
I snagged a parking space right in front of the shop so I didn’t have to get out my disabled parking pass. I hobbled into the pizza place, paid the employee for our pie, and tried to juggle my purse, my cane, and the pizza all at the same time, failing miserably in my attempts to do so. The young man quickly got out from behind the counter and said, “I’ll take the pizza to your car for you.” What a relief, and what a kindness. He didn’t know my car was so close by; it could have been anywhere in the two-days-before-Thanksgiving crowded supermarket parking lot.
And that’s this week’s kindness story.
One day at a time
Living one day at a time is a good philosophy to uphold regardless of what’s going on in one’s life. I would extend that sentiment to say, “Live each day one moment at a time.” It’s good to plan, set goals, even write a bucket list, but doing so addresses the future, not the present.
When I was admitted to a local hospital for hip replacement surgery, I knew that would be one step toward many that I would accomplish to attain complete recovery. I had no idea what accomplishments I would be able to celebrate or in what order they would appear, I simply knew I would eventually be able to move beyond my physical restrictions.
I was right.
Walker. Yep, I held onto this piece of durable medical equipment (DME) like it was my lifeline…because it was. I learned how to use it while still in the hospital and once I got home I outfitted my own walker with a multi-pocketed pouch wherein I stored necessary items: water bottle, iPhone, iPad, tissues, snacks, so that wherever I landed, I was set. Two weeks post surgery I was able to retire the walker. What a lovely step in the right direction.
Cane. Using my Hurrycane is liberating – I say is, not was, because it’s still attached to my person as a means of transportation. Today, November 6th, marks one month since my surgery and I am still nowhere near ready to retire this piece of equipment because I still need the support it provides. I’ve even learned how to use it as a pick-up-something-I-dropped-aid, as long as the dropped item is thicker than a piece of paper or bigger than the Vitamin D3 capsules I take every day but sometimes end up on the floor. I drop things often enough that my husband simply follows my trail of items to discern where I’ve been lately.
Raised toilet seat. I know, there’s a visual all of you would prefer not to have, but early on in my recovery, it was a requirement that meant the difference between responding successfully to my most base urges, or…not, and that visual would have been far worse to contemplate. Fortunately, it served me well and I retired it three weeks post-surgery.
Medications. Okay, this is a tricky one. I abhor having to take medications, whether over-the-counter or prescribed, but when your leg is sliced into, requiring major manipulations by the surgeon and his jolly helpers – not to mention sawing off sections of a bone that I would no longer need – a person is going to have lingering pain issues that need to be addressed, and this person sure does. I am a very slow healer; an 80-year old can have the same surgery as me and return to yoga or square dancing classes a mere two weeks after receiving their bionic hip. Not so, I.
So here I am, wishing I was further along in my rehabilitation but refusing to compare myself to others who appear to be better off post-surgery than I am. I can smile throughout my day and sleep well at night knowing I have one of the most effective rehabilitation tools a person could hope for: my husband. Jerry supports me physically and he supports me emotionally, the latter of which has been almost more important than the former. He recently held me in his arms on the couch while I bawled into his neck, saturating it and his t-shirt with my tears. On that particular day, I was tired of hurting. To be sure, pain is very taxing on one’s body and emotions – there is no separation between the two – so if my body is having a hard time, so is my psyche.
Is that a lose/lose situation? It can be, but if I remember to live one day or one moment at a time, I’ll be less inclined to allow fear and frustration to take root. Fear is based on the future: what if I never get better? what if the surgery didn’t work? what if I am never able to be as active as I want to be? what if I never stop hurting? All future-based.
When living in the moment I can celebrate my ability to:
- climb the stairs in my house two at a time instead of one;
- walk to the end of my driveway to retrieve the mail;
- get in and out of bed without assistance;
- bathe with very little assistance;
- dress myself;
- do more tasks in the kitchen than I was able to do four weeks ago; and
- hold my grandson and give him a multitude of smooches while he sits on my lap.
Regardless of how long it takes for me to get back to “normal” that time will come and when it does it’ll be right on time. In the interim, I’m going to acknowledge each moment as precious and not concern myself with that which has yet to occur.
Kindness Fridays
According to the 2017 Alzheimer’s Association Facts and Figures research, there are more than 15 million Americans providing unpaid care for people with Alzheimer’s or other dementias. Some have assembled a team of family and friends so the responsibilities are evenly spread out, but that is not always the case. The solo caregiver manages—or tries to manage—everything on his own.
That’s where those who are on the outside looking in can become a caregiver’s hero.
OFFER TANGIBLE ASSISTANCE. We will never be wrong in assuming the caregiver needs help so rather than saying, “Call me if you need anything” we can ask, “What exactly do you need?” If we remember what we needed when we were on the mend from illness or surgery we should be able to come up with an endless list of concrete gifts of assistance.
MEALS. You need to cook for yourself and/or your household anyway so make a double recipe, pack that extra portion in a disposable dish, freeze it, and keep doing that for a week and deliver one full week’s worth of frozen meals to the caregiver who, receiving your food offerings, can look forward to not having to be creative in the kitchen at the end of the caregiving day. Engage others to sign up for this dinner on wheels program so the responsibilities are spread out amongst many.
ERRANDS. You’re running to the store for a few items; take the time to ask Sam if there’s anything he might need while you’re out. He may need a half-gallon of milk—and he might have needed it for the past several days—but embarking on that task proved impossible for him. With very little effort on your part you can make a huge difference in Sam’s well-being. Maybe the needed item is toilet paper; acquiring that for him makes you a genuine hero!
CHORES. The last task a time-strapped caregiver considers doing is housework or yardwork. You will not insult your friend or neighbor by offering to vacuum their house or clean their bathrooms. Or perhaps it’s a lawn that needs mowing or a flower bed, weeding; that sprucing up will provide the caregiver with a virtual—and literal—fresh view of their circumstances.
OTHER OPTIONS. Sam may turn down home improvement offers but he might say, “What I could really use right now is some help figuring out Nancy’s health insurance statements.” Or he might say, “My wife’s not much of a conversationalist anymore, I’d give anything to have an hour to talk with someone who is. Could you stop by later today for a visit? I’ll even talk politics if it means having someone else to talk to.”
WHAT I KNOW FOR SURE. The family caregiver has so much going on physically and emotionally, offers of assistance can be the salve that gets them through each day.
Grief: Your caregiving friend is grieving the loss of a person who is still with him. Unlike the sudden death of a family member, the Alzheimer’s caregiver suffers the prolonged loss of their loved one—oftentimes called ambiguous loss—because although physically present, the person with dementia is continuously leaving their loved one.
Exhaustion. Physical, emotional, and spiritual exhaustion sneak up on the solo caregiver and they are killers. The solo caregiver must put their needs above those of the one for whom they are providing care and sometimes they need you, the outsider, to help them prioritize those needs. Just like the airlines’ seatbelt instructions, the person meeting the need requires attention before the one requiring it.
BOTTOM LINE. You have so much to offer the time-strapped family caregiver; your gifts of kindness are more valuable than you could ever imagine.
Do you want additional insight into what caregivers with whom you are acquainted are facing? You can order Requiem for the status quo at Barnes & Noble and Amazon as well as all online and brick and mortar chain and independent bookstores. And if you have already read my debut novel, please consider leaving a review on the online retailer’s website of your choice.
Meet Marita Golden, author of “The Wide Circumference of Love” — AlzAuthors
Silent Storm: What We Remember, What We Forget, What We Discover A Novelist Meditates on Writing about Alzheimer’s By Marita Golden I didn’t choose. I was called. That’s how inspiration, art, and creativity work sometimes. I am often asked why I wrote a novel about Alzheimer’s disease. I am not caring for anyone afflicted with […]
via Meet Marita Golden, author of “The Wide Circumference of Love” — AlzAuthors
Kindness Fridays
- Bionic hip
- Loss of independence
- Healthcare TLC
I received a new right hip this past Monday afternoon which rendered me fully dependent on the staff of a local hospital, Evergreen Health Medical Center in Kirkland, Washington. As a two-night inpatient at the hospital, I was reliant on staff for absolutely all of my needs.
If you can imagine everything you do during the course of a day requiring at least one medical person to provide intimate assistance, you can easily imagine all the tasks incumbent upon the nurses, certified nursing assistants(CNA), physical therapy personnel, food delivery staff, and even someone such as Barbara the housekeeper, at your beck and call.
My personality is such that I’d much rather be giving than receiving. Each time I pushed the nurse call button I carefully considered whether such a request was warranted: bladder full to rupturing, yeah, warranted; refill of my patient water carafe? Maybe I could wait and encumber the next person who walks into my room.
From the time I checked in for surgery at 11:30 Monday morning until I was discharged at 2:30 Wednesday afternoon, each person with whom I came in contact was fully dedicated to serving my needs. They noticed if my blankets were pushed asunder in my bed and straightened them comfortably around my body. When shuffling with my walker to the bathroom while wearing my backless hospital-issued gown they discreetly covered me up and made sure my dignity was kept intact.
Then there was the aforementioned employee who after knocking on my door said, “It’s just me, Barbara the housekeeper.” Upon granting the 60-something-year-old admission to my room, she said, “I want to be sure your room is clean and acceptable. You don’t need to do a thing, just lay there – and you (my husband) sit comfortably in the folding chair and I’ll work around you.”
I engage absolutely everyone I come across in conversation so it was quite natural for me to converse with Barbara the housekeeper. I asked her how long she had been working at Evergreen and it had been quite some time. “You must have seen lots of changes over the years.”
“Yeah, of course I have, but it’s good. I like what I do. I like all the people I get to meet over the course of a day.”
“I’m sure you’ve met those who, because of their circumstances, weren’t exactly the most friendly people you’ve encountered in your life.”
“Aw, sure, but you get that everywhere, not just in a place like this.”
True, so very true. As I’ve mentioned in past blog posts, each of us has a choice of whether to make or break someone’s day. I can tell you that there was not one employee at the hospital who broke my day, rather, each person made my stay there as palatable as it could possibly be. Mind you, the dings of call lights going off all day and all night from the nurses’ station directly across from my room weren’t the highlight of my stay, but those dings are far easier to accept when you realize that you initiated your share of call dings yourself and benefited from the responses of the dedicated medical personnel who had to answer such pleadings.
All in all, I’d have to say that if you have to go through the pain of getting a new and improved hip in order to lead a more comfortable life going forward, being treated with kindness during the process certainly renders the recovery far more appetizing. This former patient has no complaints whatsoever. She was treated like a queen.
Kindness Fridays
One way of expressing kindness is by expressing gratitude.
Anytime we think we don’t need to thank someone for something they’ve said or done that meant something to us, we do them a disservice.
My husband and I have been gifted with daily gratitude each time we take care of our grandson during our daughter and son-in-law’s work week. We have a routine: our daughter drops off our grandson and all other items needed for his day with us and as she gets into her car she always says, “Thank you.”
Our son-in-law picks up our grandson after a grueling day of work outside and after securing our grandson into the backseat of his truck, he says, “Thanks you guys.”
We’ve been caring for our grandson a few days a week since early August and now with September coming to a close the routine is pretty much set in stone but what isn’t set in stone, what is always fresh and affirming, is that our grandson’s parents bend over backwards to express their gratitude for what we’re doing to enable them to go to work and not have to worry about the care their son is receiving.
Big deal, right?
It is absolutely a big deal. We thoroughly enjoy the time we spend with our grandson – it is such a privilege we have been given – and we enjoy seeing his parents each caregiving day. Their expressions of gratitude never get old; every time they say “Thank you” I am filled with warm fuzzies that carry me through the day and the night. Such delightful adult children.
Kindness Fridays
I kind of blew it this week, so here is me being very transparent with you.
Tuesday of this week was the day my husband and I had multiple appointments to take care of. After I spent all morning having pre-surgical tests completed at the hospital in preparation for my October 9th hip replacement, I raced home to grab lunch, did some writing business in my home office, and then set out again for another doctor’s appointment that was originally scheduled for 1:30 but my doctor’s office called earlier that morning to reschedule the appointment to 2:45. I wasn’t happy with that change but sometimes – all the time – you just gotta go with the flow.
The problem was, my attitude wasn’t flowing very well by the time I arrived at said doctor’s office at 2:35 pm when the front desk employee told me my appointment was not until 3 pm.
“No, when this office called me this morning to change my appointment time, they specifically said the appointment time was 2:45, there was no indication that 2:45 was the check-in time.”
“I’m sorry, but no, the check-in time is 2:45 for a 3 pm appointment.”
I knew getting all huffy wouldn’t change the current situation but I chose to be huffy – it really is a choice when we choose to be huffy and that’s what I chose to be at that particular moment in time. I’m sure the front desk employee wasn’t the one who called that morning to tell me of my revised appointment time but I guess I felt I had a right to be upset.
Don’t get me wrong, I didn’t yell, I didn’t accuse anyone of being incompetent or anything as brash as that, but I let my mood transfer to that poor unfortunate employee and it was selfish of me to do so. You see, being kind is a conscious decision we make, but not being kind is a decision we make as well.
Fortunately, I had to return the next morning for a medical test and the same employee was at the front desk. I explained that the previous afternoon when I was checking in for my appointment I exhibited a bad mood toward her and I wanted to apologize for it. She thanked me and added that she didn’t think I was in a very bad mood at all. But I’m still glad I apologized. The Universe gave me an opportunity to make things right, and this time I chose wisely.
Kindness Fridays
Community. That’s what this world needs: a unified body of individuals.
That doesn’t mean we all have to have the same political, social, or religious affiliation. What it does mean, however, is that we choose to live in unity and in support of each other.
Have you had the experience where you’re having a pretty darn good day and someone says or does something to you and your entire day’s direction is negatively altered?
In the alternative, have you experienced a bad day when someone says or does something to you and your entire day’s direction is altered for the better?
In the former, someone chose to live separate from you; chose to not recognize you as his or her fellow man; chose to harm you and widen the gap between the two of you.
In the latter, a kind-hearted person chose to come out of themselves; chose to join with a fellow survivor on this planet where division and hatred would seek to become the norm; chose to bridge the gap between the two of you.
My modus operandi is that I assume each person with whom I come in contact during my day needs my friendly words and actions in order for their day to improve. I believe in most cases I’ll be right on the money with that MO.
I mean, it sure couldn’t hurt, could it?
Living: the ultimate team sport 