family caregiving
An Unmistakable Truth
My thoughts about being a family caregiver. Been there, done that.
Even with all the book knowledge a person can garner, caregiving “mistakes” are bound to happen. The following tips are provided to active and former family caregivers who struggle with what they consider failed attempts at getting the caregiving task done correctly.
- Perfection is highly overrated. No one, absolutely no one, expects you to do everything correctly 100% of the time.
- Don’t be so hard on yourself. Why? See Tip #1 above and Tip #3 below.
- Caregiving is difficult, so celebrate the wins! Sometimes you will have just the right way of doing or saying something that wipes out every other time you feel you didn’t do or say something correctly. Tally up the victories and celebrate them!
- Carefully choose your confidantes. Having acquaintances that are slow to judge but quick to affirm will be just the nourishment your body and soul will need.
- If you are doing your best, that is all that is needed. But you say, “I could have done better!” No. You did the best with what you knew at the time, therefore you are to be congratulated. Instead, ask yourself, “Did I give it all that I could in the moment?” Yes, you did.
- “Mistakes” are simply learning opportunities. Even today, years after my family caregiving experience, I remind myself that when something in my life isn’t going quite as planned, I can still learn something from that lesson, which is an “unmistakably” good thing, don’t you think?
I wrote a novel about my own caregiving experience. Just like my caregiving skills were a work in progress, so too was this novel, published a few years after my father passed from Alzheimer’s disease. May it encourage you, or someone you know, who just might need a cheerleader in their corner.
Informative Novel about Family Caregiving
I lived the dementia caregiver’s journey. When it was time to write about it after my father’s death from Alzheimer’s disease, I chose the Fiction genre, rather than Non-Fiction. That’s what worked for me, and I am pleased that it also worked for readers. This review warmed my heart as it was exactly what I was hoping for.
The story-telling format is a gentle way to learn about symptoms and progression of this eventually terminal ailment. Most revealing were the passages depicting Colleen’s exchanges within her caregiver support group. This technique allows the author to educate her readers about the varied behavioral challenges faced by the patient and sometimes not-so-patient caregivers.
The author also manages, through well-written dialogues with Colleen’s siblings and her best friend, to do a lot of teaching without overwhelming technical medical jargon or lecturing.
This novel is a tender one about a family who manages to help their father maintain his dignity throughout a grueling and heartbreaking journey. – Elaine H., British Columbia, CANADA
Requiem for the Status Quo, available on Amazon or wherever you buy your books.
Blogging Award: a very tardy response
Did you ever get so busy that you received an award and didn’t go pick it up, and then you forgot that it was waiting for you? That’s me. Lori, one of my most favorite bloggers, has been writing her blog Let’s Talk About Family since December 2011. This fabulous person nominated me for the Best Moment Award in May of 2013. All I can say is that not “picking up” my award qualifies me for the Worst Moment Award, but I’ll try to make up for it with this post.
Lori’s blog family history starts with her mother’s failing health and death, and continues with her father’s life as a widower who eventually moves into an assisted living facility (ALF). Her blog is one that I never miss. You know how you can manage the notifications you receive so that you get a notification e-mail immediately, daily, or once weekly? Her blog is one of those that I receive immediate notifications – I can’t wait any longer! is the way I treat her blog. Thank you so much for opening up your life to us in the blogging world.
Rules for the Best Moment Award:
Winners post information about the nomination, thanking the person who nominated them, with their acceptance speech that can be written down or video recorded.
Winners have the privilege of awarding the next awardees (see below) The re-post should include a NEW list of people, blogs worthy of the award, and winners notify them the great news. Winners should also post the award badge on their own website.
What makes a good acceptance speech?
Thank the people who helped you along the way, be humorous if you can to keep the reader entertained and smiling. Provide inspiration that helps your story to touch the lives of others.
And here’s mine: I’m thrilled to be acknowledged as having something good to say from time to time. I don’t think I’m an excellent writer, but I do have lots to say and I’m quite willing to write up a storm. I’m the youngest of three siblings and the only one of us who has been involved in the lives of senior citizens – and everything that involvement implies – for close to two decades. I’ve always loved people older than me; I guess it gives me comfort knowing that I’m younger than someone else. My official responsibilities over the years involved: working in the senior housing industry both in the corporate environment and in assisted living/memory care facilities, being an Alzheimer’s Association caregiver support group facilitator, and a Certified Long-Term Care (LTC) Ombudsman for the State of Washington (an advocate for vulnerable adults living in LTC facilities.) I’m retired from active work but I am actively still involved in being an advocate for the vulnerable by writing my first novel – a project I hope to complete by end of this year. My novel focuses on the lives of family members who care for a loved one with Alzheimer’s or other dementia.
My nominees for the Best Moment Award are:
Kay Bransford, for Dealing with Dementia. The reason I enjoy Kay’s blog is best described by her blog’s subtitle: A family caregiver’s journey to deliver loving care with grace and humor. We all know there is absolutely nothing humorous about Alzheimer’s or other dementia, but humor can be found in the human interactions between caregiver and family member. If you look for them, you will find them. Kay, I’ll be posting my acceptance of a different award you recently nominated me for very soon. THANK YOU!
Dementia Poetry is an in your face journal of a daughter-in-law’s disease journey with her mother-in-law, in the form of extremely well-written poems. The subtitle for her blog is: The Politically Incorrect Alzheimer’s Poetry Blog.
Theresa Hupp’s blog, Story and History, is a moving journal of a family’s life covering past, present, and future. But that’s not all: Theresa is a fabulous, published author. I’d say I’m jealous, but friends, and that’s what I consider Theresa, don’t turn green with envy – at least they shouldn’t. Theresa, you nominated me for the Versatile Blogger Award in February of 2014, but I already received that award a couple years ago so I’m not going to claim it again, but I thank you profusely for nominating me.
Reflections on Dementia, Caregiving and Life in General is a must-read blog all the way from Singapore. This blogger takes care of her mother who has Alzheimer’s and vascular dementia. Her insights and her view of her world will engage you from the very first posting you read.
Moving Mom and Dad – or your spouse.
Moving Mom and Dad – Leaving Home is an article from the June/July 2012 AARP Magazine. Statistics on aging are astounding, and scary. “By 2020 some 6.6 million Americans will be age 85 or older.” That’s an increase of 4.3 million from the year 2000. Time to celebrate – right? We’re living longer – and in some cases – thriving in our older age. The reality of the situation, however, is that eventually we’ll need some sort of assistance with our activities of daily living (ADLs) that might require a move to a care facility of some sort.
The stories presented in the attached article describe family instances where emergent circumstances warranted an emergent decision to move a parent into some sort of care facility. The best case scenario, as this AARP article suggests is that you, “dig the well before you’re thirsty.” Nice sentiment – but not always possible.
I have written numerous articles for my blog that address the difficulties the caregiver, and the one needing care, go through when making the decision to choose a long-term care (LTC) facility for a loved one. Below are links to each of those articles. I hope they prove beneficial to you.
Deathbed promises and how to fulfill them.
Caregiving: The Ultimate Team Sport.
Selecting a Senior housing community – easy for some, not for the rest of us.
Adjustment disorder: a long-term care facility side- effect.
Living: the ultimate team sport 