I don’t want to live to see the day when truth is no longer our currency.
One need not read any further.
Direct focus on the truth should net us lots of superior people!
Gosh, and we sure need to be open enough to want to discover them. Am I right?
I would certainly like to live long enough for violence to be a thing of the past, and truth to be the standard by which we all live.
A healthy seed grows, no matter what. I am grateful for that fact.
That’s what I like about truth – it simply is.
Agreeing with others just so you don’t stand out – but knowing the truth is far different from what was stated – doesn’t seem like a respectable way to conduct oneself.
It is certainly a good practice to allow statements to pass through our mind filters before accepting them as absolute truth. Doubt can be healthy when weeding out that which doesn’t ring true.
Once truth is revealed, it’s really difficult for me to ignore it.
It takes practice, to be sure.
I’d rather be a vocal minority than a silent majority.
I started blogging about my Mom, Amie, after she moved in with us―after the Alzheimer’s, the congestive obstructive pulmonary disease (COPD), and the schizophrenia nearly killed her living alone. I wrote close to twenty-five posts, after which, I compiled them into my book, The Dementia Chronicles. I hoped our story would help others who found themselves as a caregiver for someone they loved.
During a visit from Phoenix with my sister and grandmother, Mom fell down the last step of our stairs and broke her hip. Within two years of that visit, Mom had moved from Phoenix to Friday Harbor, Washington to live in a separate home on our island property.
Back in May 2003, on our wedding day, Bob had to assist my Mom to walk a mere five-hundred feet from her house to our backyard where we held the ceremony. A month later, Mom was in the ER experiencing her first respiratory attack after having smoked for fifty years.
For a spell, Mom kept at bay what doctors later diagnosed as COPD. In 2010, during another visit to the ER, x-rays showed scarring within and around her bronchial tubes, invading her lungs. Mom declined steadily after that with cognition red flags frequently appearing.
By 2013, she complained of electricians stealing her checks, hackers breaking into her old college records and stealing her social security number―two of the many stand-out issues she insisted were true. By September 2014, she could no longer drive so we disabled the car engine and lied to her, telling her the car was broken and that I would drive her anywhere she wanted to go.
Mom was furious. Her anger became exacerbated, exhibited by bouts of paranoia and more detailed hallucinations. As she grew physically weaker, we knew we had to move her into our home. So, in November 2014 we set out to revamp our garage into a studio apartment. It turned out beautifully―complete with an enormous stone fireplace to keep her warm. It was so wonderful, my husband, Bob, threatened to move down there himself.
Mom fought against the move, but the only other choice was putting her into a memory care facility. With few choices on the island where we live, she would have gone to a facility on the mainland―a four-hour ferry ride or costly thirty-minute flight away – not viable options.
After transitioning her to the studio apartment, Mom tried to escape. I found her huddled by our front door gasping for air, holding her cane and, sitting dutifully next to her dog, Teddy, his own leash in-hand.
But, the hallucinations grew stronger.
Within a month of the move, the big hallucination occurred. She believed someone had snuck into her apartment, shimmied across the floor on his back over to her fireplace and had stuffed crumpled newspaper into the chimney flue causing smoke to billow. It was a cold October but she opened all her windows to air out the room anyway. There was no smoke. There was no man stuffing newspaper. What there were, were sounds―tinny “plunks” whenever the gas fireplace kicked on and off.
After a month of fighting the hallucinations and failing, I started Mom on anti-psychotics and anti-anxiety meds. Within a few days, the visions calmed.
When she normalized, I learned many things, like, how much Mom loved grilled cheese sandwiches and chocolate shakes. The in-home nurses told me I had earned an unofficial OTJ nursing degree.
One month later, after I finally figured out how to manage our lives with Mom’s, she died. I didn’t go out or to church for four months.
I still have moments when I hear Mom call for me―that’s how PTSD is. I remember screaming, anger flaring about anything and everything for six months after she died―fortunately, it was short-lived. But this is the thing, if I had a choice to do it again, I’d do it all over, the same way, but with more chocolate shakes and grilled cheese sandwiches for Mom.
Susan Wingate is a #1 Amazon bestselling author of over fifteen novels, many of which are award-winners. She writes across both fiction and nonfiction genres and typically sets her stories in the Pacific Northwest where she is the president of a local authors association. She writes full-time and lives in Washington State with her husband, Bob.
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I’ve found that avoidance doesn’t do me any good at all – as a matter of fact, it’s caused me great harm in the past. At 67 years of age, I’m wearing the mantel of transparency going forward.
I am thrilled that so many of us are exercising the control we can exert to prevent COVID-19 from spreading. We do so to protect ourselves and to protect others we will never meet.
What is so very troublesome, however, is that many still consider the virus as not being an important part of their day-to-day existence so they go out and about, not wearing masks, and not social distancing.
My concerted effort protects you – your lack of effort irresponsibly puts me and my loved ones in danger. You say you have a right to live as you please, even when doing so has proven to put others at risk, including yourself. There are daily news reports about those who previously criticized the virus as being nothing, then they have a personal experience with it and become instant, fervent evangelicals for wearing masks and distancing. “This stuff is real, folks.” or “My family member was hospitalized with it” or “I got it and I’ve never been sicker.” These victims became believers, but a day or two too late.
We are ALL inconvenienced by this virus but this is an inconvenience we can all live with, or we can die standing up for our decision to ignore proven guidelines that curtail it.
I will personally continue to protect myself and my loved ones which will also protect you. Would you please consider doing the same?
Starting today, July 1st, I am replacing my weekly good news posts with encouragement of a different sort – the value of truth. Being authentic to ourselves and toward others seems to be a healthy way to go about life. Truth is more uncomfortable than lying, but in the long run, it’s way easier. I hope you’ll enjoy the research I’ve done to provide you with these weekly notes.
Frontline workers, and every other person living in the age of Covid-19, find themselves stressed beyond their abilities. Wouldn’t it be great to have a break where you need not travel anywhere? Look at what this meditation company is doing for said people.
June is Alzheimer’s and Brain Awareness Month, a time to increase understanding of what dementia is and how it impacts the lives of those it touches. It’s also a great time to work to decrease the stigma and silence that too often accompanies an Alzheimer’s diagnosis.
Each June AlzAuthors hosts a book sale and giveaway to help caregivers and those concerned about dementia find knowledge, guidance, and support offered through shared wisdom and experience. AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience. I’m proud to be a part of this growing non-profit organization, and I’m excited my eBook, Requiem for the Status Quo, is a part of this sale for only 99 cents, but only for a week!
June 15th through June 22nd you can take advantage of this biannual opportunity to purchase excellent resources on the dementia diseases for free or at reduced prices. AlzAuthors offers a variety of genres, including fiction, memoir, non-fiction, and children’s and teen literature. Most are available in Kindle and ebook, and many are available in paperback and audio. I would like to encourage you to build a library of carefully vetted books to help guide and inspire you every day.
These books are written from a deep place of solidarity, vulnerability, and love. May you find one – or two, or more! – to help guide you on your own dementia journey. Click here for the sale’s discounted offerings.
Nearly 500,000 individuals are diagnosed with dementia every year. Year after year. As stunning as that figure is, it does not take into account the family members and caregivers who are subsequently affected by each diagnosis. When they are included, the numbers rise to an even more incredible level.
What this means in our society is a rapidly ballooning population of people faced with painful scenarios and the need to make vital end-of-life decisions for those who no longer can—a role for which most are largely unprepared. Sadness, confusion, guilt, anger, and physical and mental exhaustion become the norm for these families as the disease enters its final stage. The toughest decisions I ever made were about the life and death of my mother, who had lost her voice in decisions to dementia. But, I was one of the lucky ones: My 30 years as a doctor specializing in the care of older people and end-of-life care had prepared me to face these decisions. Yet, even with that advantage, I struggled. And my siblings struggled. The challenges that dementia and end-of-life decisions present can be – and usually are – overwhelming. When I looked for a resource to help my siblings, I found none. My personal experience compelled me to fuse my clinical knowledge, with everything I learned helping to care for my mother, into a book to help others. My family’s experiences guided me in what the book should include. As I reflected, I also realized the growth, hope, lessons, and transformation that occurred during living with a beautiful woman with dementia. While the sometimes-overwhelming nature of caregiving sent me to the bookstore looking for a guide, when writing the guide, I wanted to acknowledge the experience, strength, hope, and love that also accompanied the journey.
This book is laid out as a guidebook. Each chapter includes stories of families I’ve met and worked with during the last 30 years. These stories are meant to illustrate a common issue, concern or situation that occurs in late-stage dementia, and I hope that by seeing how others have met these challenges, others will see a way forward. This guidebook deals with the emotional aspects of being a surrogate decision-maker, communication with others at a challenging time of life, and the all-encompassing grief experienced in the process. Additionally, it provides information on dementia, its progression and the potential change in goals of care that occur as the disease moves from a chronic to a terminal stage. Finally, the book provides a view of the joy and fulfillment that can accompany assisting in the dignified death of someone you care for.
Anne Kenny, MD, author of Making Tough Decisions about End-of-Life Care in Dementia, published in 2018 by Johns Hopkins University Press, is a Professor of Medicine with specialty training and board certification in Geriatric Medicine, and Palliative and Hospice Care. She has been a practicing physician for over 30 years and has been recognized by her peers as a “Top Doc” in Geriatric Medicine. She has been honored with a Brookdale National Fellow and the prestigious Paul Beeson Physician Faculty Scholar awards. Dr. Kenny has worked clinically as a geriatrician in nursing homes, assisted living, rehabilitation, and clinical outpatient settings. Dr. Kenny has found joy in her work with individuals and their families managing issues related to the diagnosis of dementia. Her experience in partnering in the care of these families touched close to home when her own mother was diagnosed with dementia. Dr. Kenny joined with her mother and her brothers and sister to provide the best care for her mother during the early and middle years following her mother’s diagnosis. Her expertise, coupled with her mother’s playful spirit and her sibling’s openness, support, intelligence, and compassion, allowed for the highest functioning and independence of her mother for several years. Dr. Kenny’s expertise and experience in inpatient and outpatient Palliative and Hospice care were called on when her mother reached the final stages of living with dementia. The Kenny family worked together for their mother’s graceful exit from this planet.
In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging-related issues including navigating dementia, exercise, nutrition, hormone therapy, death and dying, and frailty. She is an educator of medicine and research skills. She has over 100 scientific publications and presentations focused on improving the care and functioning of older adults.
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For this week’s story, you don’t even need to click on an attached story, such as I provide each week. Instead, my good news has to do with something that happened to me.
The other day, I went on what I call my Square Block Walk (SBW). When my husband isn’t feeling like taking a walk or has just come in from working in the yard, I take off on a very fast one-mile trek. When doing so this particular time, I passed by a neighbor (he purchased my husband’s Honda Civic for his daughter a couple years ago.) This neighbor was on his riding lawn mower in his front yard; we waved at each other and I continued on. He turned off his mower and asked me, “Is your husband okay?” I stopped in the street, “My husband?” To which he responded, “Yeah, I’ve seen you walking by yourself a few times, haven’t seen your husband with you, and I was worried.”
I almost started crying. “Thank you very much for asking. He’s fine, but sometimes I take walks by myself. But it’s so kind of you to ask – you noticed something different in my routine and you showed enough interest to ask. That means the world to me.”
I hope my neighbor’s act of kindness towards me improved your day as much as it did mine!
This post is about anticipatory vs sudden death. I know that doesn’t sound like a very positive post in honor of my sixty-seventh birthday, but this subject matter weighed on my heart the other day so I decided to write about it.
The last time I saw my mother was the 3rd week of August 1994. She died one month later. Mom and Dad visited their adult children during the month of August: my brother and I in the Seattle, WA area, and my sister in Northern California. What a gift that was – the impact of that gift not fully appreciated until Mom was taken from us during her sleep on September 24, 1994 – a life-changing shock to my father who found her, an occasion for us kids to receive the worst news possible by telephone.
The last time I saw my father was October 13, 2007 at his bedside as cancer and Alzheimer’s disease leeched the life from him. When my father was diagnosed with Alzheimer’s four years earlier, we knew there was no cure; we had time to prepare for the inevitable, an inevitability accelerated by a cancer that was not operable due to my father’s frail condition resultant from the slow deterioration of his body by Alzheimer’s disease.
Which death was more difficult, the fully unexpected one, or the expected one?
There is no comparison, and by that I mean you cannot compare grief in that manner. Grief is grief and although the shock of my mother’s death was a jolt to our emotional systems, so too was the slow death that occurred for my father. The outcome was the same: someone we all loved no longer existed, but more importantly, we became painfully aware that whether a person is seventy-seven years old when they die, as was our mother, or eighty-nine years old as was my father, life is short.
The child who succumbs to an illness, the teenager killed in an automobile accident, the newly married sweethearts starting out on their journey as a couple, the sixty-something-year-old or centenarian whose days come to an end, all those lives are valuable and their ending won’t always be anticipated.
It may be trite to say live each day as though it were your last, but trite or not, that’s what each of us needs to do. I do so without being morbid about it – rather, I have gotten into the habit of living and loving fully, always respecting and honoring those with whom I come in contact, and spreading kindness and truth wherever I go. Because, as I’ve said: life is precious.
Won’t you join me?
The current worldwide crisis appears to have torn us apart instead of drawing us together. This pandemic is not a respecter of persons: people of all political leanings, beliefs, ethnicities, and locations are its victims. A virus that has taken many thousands of innocent lives is at fault and there is no way to spin that news in a positive way. It has been said that a house divided against itself cannot stand – certainly appearing in the Bible and quoted often in such a time as this. When we come across a person who falls down on the sidewalk and is bleeding, we don’t ask them what political party, religion, or belief structure they favor. If a vehicle accident occurs while we’re out on the road, we don’t poll the victims to determine whether they are of the same political leanings or beliefs as ourselves before we call 911. No, we let compassion rule our actions and we step in to meet the need.
My prayer is that we recognize our fellow-citizens’ needs and set aside our differences and judgments for the good of all. Let’s aim to lessen the massively wide and deep divisions that are threatening to permanently separate each other from each other.
Let’s be more we-minded instead of me-minded. Equal compassion in equal measure to one and all.