Personal Struggles

The Best Alzheimers Caregiver Tool of Them All, Harvey

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The Best Alzheimers Caregiver Tool of Them All, Harvey

There is no such thing as easy caregiving – anyone who has been, or is currently, a caregiver for a loved one with Alzheimer’s or other dementia can attest to that fact.  The good news, however, is that every once and awhile we’re fortunate enough to be exposed to glorious snippits of wonderfulness that help us through the day.  Here’s hoping that this link does just that for you.

 

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Financial fraud against the elderly: it’s a family affair.

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A trusted family member would NEVER financially exploit their loved one – right?

WRONG.

All classes of people, and most age groups, become victims of financial fraud.  The elderly, however, have been hit particularly hard.  A recent Puget Sound Business Journal article (a Washington State publication) provides some astounding statistics for the state of Washington:

  • reports of elder abuse grew by 30% in five years;
  • 4,121 cases were reported to Adult Protective Services in all of 2010 and that number was already reached by November of 2011;
  • the Washington State Office of the Attorney General only receives a fraction of the financial abuse cases because many go unreported; and
  • the National Center of Elder Abuse in Washington, D.C. states that only one in 25 cases of elder abuse are ever reported.

So who are the perpetrators?  These thieves are neighbors, caregivers (family related or not), best friends, and  trusted financial professionals.

But nationally, nine out of 10 financial exploitation cases involve family members. 

This type of abuse begins innocently enough “let me help you pay your monthly bills mother.”   The adult child becomes a signatory on the bank accounts, keeps up with mom’s bills, but also pays him or herself a little here and there and before you know it, mom doesn’t have the financial means to live out her days.  Certainly most family members are trustworthy and respectful of their elders and look out for their elders’ best interests but the statistics certainly paint a horrific picture, don’t they?  And what’s worse, if the elderly victim has Alzheimer’s or other dementia, it doesn’t take much effort for anyone – family or stranger  –  to enrich their own bank account while draining mom and dad’s.

It’s virtually impossible for government agencies to monitor cases of elder abuse.  The local agencies that help the indigent elderly are strapped financially.  Budgets are being cut resulting in decreased staffing, and caseloads that are unmanageable and overlooked – but not for lack of trying!

So what can you do to protect those vulnerable adult victims that seemingly go unnoticed in our local communities?  I provide some suggestions in my blog article, Elder Fraud: a few things you can do to protect your loved one.  This article assumes that family members are trustworthy and selfless in their interests.  Fortunately, that’s probably you, but obviously, elder fraud is a national problem so it’s vital that everyone be reminded of how easily thieves can take advantage of the older generation.

I’m certain this topic affects many of you and at the very least, angers the rest of you.  I covet your input and look forward to your thoughts on this matter.

Voices of the bored retirees.

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  • “I’m trying to decide what to do with the rest of my life.”
  • “I’m a frustrated fish out of water since retiring two years ago.”
  • “I’m desperate to find something to fill my time!”
  • Woman in her 80’s: “What am I supposed to do with the rest of my life?  I feel helpless and hopeless without worthwhile connections.”
Are you living past the sunset in your life?

I attended a class four and a half years ago comprised of people in their 50’s through their 80’s.  This class was designed to make our Senior years count.  I just now stumbled on notes that I took in that class wherein each class member was asked to make a comment about their current state in life.  The above four comments are just some of those statements.

Desperation and sadness all around me.  I recall now that the mood of this class was one of desperation and sadness as those who yearned for retirement their whole working life found themselves frantically trying to fill their days.  Their feelings were summed up in these words:

  • depressed
  • lack of purpose
  • short-sightedness
  • emptiness
  • loss of self

Gerontologist, S. Barkin puts it this way regarding our responsibility to be actively walking through our senior years, and I paraphrase,

What do we want to do for the time remaining in our life?   We all should be mining our experiences and the wisdom therein to help with our present and future paths.

As I mentioned in my article, Retirement planning: it’s not what you think, all of us have a history of life skills that should not be put up on a shelf and never used again.  Instead we should be retooling those skills into something that is meaningful and enjoyable to us and beneficial to others.  The students in my class had many thoughts – mostly unfocused and therefore not very productive – but those thoughts had yet to turn into action.

The first step is to decide what is significant to you and act on it.

Aging well starts with the mind but it’s in the doing that makes it count.  We all have a choice when we find ourselves at a loss of purpose: we can stay stuck, or we can actively make a difference in the local community around us.  Baby Boomers are the first generation of peoples to have such a long life span.  We’re living longer so we have more time to pass our knowledge down to others and use our skills in a valuable way.  As the sports company Nike says in one of their ad campaigns:  JUST DO IT!

Greetings Baby Boomers! What’s on your mind?

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I love to write; I love to talk; but I also really, really, love to listen.

I placed this Blog entry in the Personal Struggles category of my Blog because I’m struggling to assure that what I’m providing on this Blog meets your needs and interests.

Sure, my ego would be stoked by having more Followers and more page hits – and I welcome all that have an interest – but that’s not my biggest concern.  What’s missing for me is reader input in the form of Comments.  A lack of comments is not the readers’ fault, rather, I think I’m missing the boat regarding the nature of my Blog entries because they don’t encourage Comments.

Are my articles too long?  Are they not sufficiently pertinent to your ongoing interests?  Is the subject matter too limited in scope?  If so, in what direction would you like me to go?  I’ll go just about anywhere with my Baby Boomer Content because I’m not an expert on a zillion topics but I am interested in at least that many.

If you have the time, I’d love to hear from you.  And I can pretty much promise that I won’t be offended by any constructive criticism you provide.  Society is like a bird.  It has two wings, and a bird can not fly when one of its wings is broken.  My wing isn’t broken, it just needs to be pointed in the right direction.  I hope you’re willing to help me do so.  I love what I do and cherish this venue where I can hone my skills and increase my knowledge because along with listening comes the benefit of learning something new.  I can hardly wait to hear from you.

Retirement planning – it’s not what you think.

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How do you define using your time in a meaningful way?  If you’re getting ready for retirement – or are already retired – how are you going to spend those 40+ hours you previously filled at your job?  “That’s easy!”, you say. “I’m gonna do whatever I want to do, whenever I want to do it: sleep in, read, play golf, travel; I’ll have no problem filling in the time!”

Now fast forward a year or two: you’re bored; your spouse is sick of you just hanging around the house; you’re feeling like there’s something more you could be doing; and even with doing whatever you’ve wanted to do, something’s missing. You wish there was more to this long sought after retirement phase of your life.

How do you envision using your free time?

You’re not alone.  The founding Director of the Stanford Center on Longevity, Laura L. Carstensen, correctly states in a recent AARP article, that “people are happiest when they feel embedded in something larger than themselves.”  As we all know, we are living longer.  In order to make good use of these added years, we need to ask ourselves what we can offer others in these bonus years of our lives.  Should we continue in what might be our restricted scope of the past: getting by, doing what we can for ourselves and our family, but rarely reaching out beyond that confined scope?  If you feel as I do, that’s not nearly satisfying enough.

What should our lives look like now that most people spend as many years as “old people” as they do rearing children?

How should societies function when more people are over 60 than under 15?

Ms. Carstensen is certain that today’s generations of older people will set the course for decades to come and that “change will happen, one person at a time.”  I personally think that too often we think that any “doing” that we do must be grandiose in scale; or remarkable and newsworthy in order to be worthwhile.  If I felt that way, I don’t think I’d even make an effort to give of my skills, my time and my passion to my community.  Why bother?  It won’t do any good, right?  WRONG!

“If every person over 50 makes a single contribution, the world could be improved immeasurably.”

Is this the sunset of your life or just the beginning?

Think about it: us Baby Boomers have a history of life skills that can benefit so many!  How sad it would be if the engineer, the lawyer, the CPA, the household family manager, the medical professional, and other highly skilled people put those skills on the shelf, never to be used again?  What a waste!  I’m not saying you continue to be that engineer, lawyer, and the like in your retirement.  What I am saying, however, is that your past experience, regardless of its nature, can be used for the good of others but perhaps reshaped into a different form.

The bulk of my employment experience has been in the legal field and the senior housing industry, but at this stage of my life I’m not specifically involved in being a paralegal, or a senior housing manager.  What I am doing, however, is combining those skills and directing them towards areas for which I am very compassionate, e.g. advocacy for older adults, and counsel for those taking care of a loved one with dementia.  You too can contribute to your local community by applying your skills in ways that benefit others and are meaningful to you.  I would be of no use to anyone if I didn’t believe my personal Baby Boomer motto:  Committed to strengthening my community one person at a time –  not one society at a time; not one State at a time, and certainly not the world.  But I can motivate myself to strengthen my community one person at a time.

At what do you excel and what do you like to do?  As an older adult, perhaps retired, you now have the luxury of doing what you LIKE and WANT to do, not just what brings home steady income and puts food on the table.  Whoo hoo!  What a luxury!!!

LET’S TALK ABOUT THIS SOME MORE:

What are you doing now to plan for a satisfactory remainder of your life?

How are others currently benefiting from your knowledge-base and how did you find the new venue in which to share your knowledge?

If you’re retired: How satisfied are you in this stage of your life?  If you’re satisfied: why?  If you’re not satisfied: why not?

Honesty is NOT always the best policy.

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Bear with me – don’t judge me quite yet.

You are not destined for Alcatraz just because of a little well-placed dishonesty.

If you are primarily responsible for a loved one with Alzheimer’s or other dementia, or perhaps you assist an elderly relative who relies on you for help, do you find yourself telling little white lies?  Do you stretch the truth a bit in order to keep the peace?  Without doing any harm to your loved one or anyone else, do those little white lies help you accomplish tasks on behalf of your loved one, thus improving their life?  Congratulations – you understand that honesty isn’t always the best route to take and you’re in good company.

How do you jump over the hurdles of negotiating with a loved one for whom you provide care?  Here are a few examples that come to mind.

Scenario one: the need to get creative in order to leave the house for personal business.  For example, if telling your wife that you’re going to a caregiver support group meeting makes her mad, sad, or distrustful of your intentions, (“I’m sure you’re going to say bad things about me!”), why not tell your spouse that you’re going out with the guys, and you promise you will be back in two hours.  Then make sure you’re back on time!  If you’re not comfortable with that lie, by all means, every month you can continue to explain how helpful this caregiver support group is to you and how much it helps you be a better husband; and month after month your wife will not understand your rationale and will feel ashamed.  Knowing that you’re going to a support group only confirms how miserable she’s made your life. Read the rest of this entry »

Life can turn on a dime.

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If ever there is an example of how life can turn on a dime, it’s Congresswoman Gabrielle Giffords’ tragic experience.  January 8, 2012 marks one year since Ms. Giffords was shot in the head while meeting with her constituents in Tucson, Arizona.

The bullet traveled 1000 feet per second into her brain and not only did she survive, even her neurosurgeons termed her recovery a miracle.  Is Ms. Giffords back to 100%?  No.  Will she be?  There is a strong hope that she will.  As her husband said to Diane Sawyer when asked if he’s holding out too much hope: “You can’t have too much hope!  That’s not practical!”  In her ABC special on 20/20 chronicling Congressman Giffords’ and her husband, Astronaut Mark Kelly’s journey, Diane Sawyer characterized their endeavors in this manner:

 The courage & love you bring when the life you live, is not the life you planned.

Life turns on a dime in many ways: in relationships; in difficult financial times; and in sickness and in health, to name just a few.

Some of you reading this Blog are in the midst of a life trauma that you certainly didn’t plan, and from which you wish you were released.  What challenge do you face?  Did you see it coming?

One story of life’s changes. I volunteer as a Facilitator for an Alzheimer’s Association caregiver support group.  Every member of our group has a loved one with some sort of dementia diagnosis.  Some are in the early stages, some are in the middle stages, and three in particular recently experienced the end stage.

RRRING!  A telephone rings in the middle of the night and life changes for caregivers gearing up for the Holidays with their family.

In the wink of an eye, life as they knew it took a sharp turn.  It’s the Holiday season and suddenly one set of caregivers hires in-home hospice care for their parent and another caregiver rides in an ambulance with her spouse to a local hospice center because of a terminal change in health.   Within days both sets of caregivers arrange memorial services for which they hadn’t planned at this stage of their loved one’s life.

BANG!  Six lives are lost, and Gabrielle Giffords’ and Mark Kelly’s lives change forever.

Congresswoman Giffords loved spending time with her constituents.  The night before she was shot, she took a long bike ride with a friend and was eager for the next day to begin.  A week later she and her husband were to undergo in vitro fertilization so they could start planning the birth of their first child together.  And those attending this gathering, both staff and general citizenry, hoped for a successful and enjoyable experience.  The bottom line is that you can’t plan for what you can’t see coming.

Oftentimes when we hear of tragedies such as those mentioned above, we naively say to ourselves, “Those are the types of things that happen to other people; not us.”  Well, the truth of the matter is, those types of things happen to people, and that’s us.

Congresswoman Giffords’ neurosurgeons stated that they don’t know where in the brain one finds charm, optimism, humor or charisma.  Certainly no where in the brain can one find sufficient prescience that allows us to see what’s coming around the corner.

No matter how hard we try; no matter how careful we are; life turns on a dime.  And sometimes, the life we live becomes the life we did not plan.

I received inspiration for this article from the caregiver heroes with whom I am acquainted, and from Gabrielle Giffords and Mark Kelly in their book: Gabby: A Story of Courage and Hope.